爱的“阻拦”还是助力?学习正确陪伴法布瑞氏症患者 episode artwork

EPISODE · Jul 9, 2026 · 5 MIN

爱的“阻拦”还是助力?学习正确陪伴法布瑞氏症患者

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面对家人生病受病痛折磨,家属的关爱有时会变成“这也不能做、那也不能吃”的过度保护。这一集请专家带大家打破关于罕见病治疗的常见迷思 受访专家:新加坡中央医院,肾科,副顾问医生 李栋林 主持人:邓薪萤 AuroraSee omnystudio.com/listener for privacy information.

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爱的“阻拦”还是助力?学习正确陪伴法布瑞氏症患者

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