Ally + Noelle

Ally learned of her daughter Noelle's life limiting diagnosis, Ebstein's Anomaly, during a follow up anatomy scan.  Ally discusses what it was like to live with hope & fear while navigating a pregnancy with so much unknown. Although she only lived 62 minutes on Earth, Noelle's memory lives on in her parent's lives and heart. Ally now uses her spare time to promote Noelle's legacy and advocate and spread awareness to neonatal death, and Congenital Heart Defect (CHD) Awareness.   Ally is a light in a very dark place & she chooses to tell her daughter's story to help others suffering the same situation.  Below are some links that are helpful and relevant to what we talked about during the podcast:Ebstein’s Anomaly: https://www.cincinnatichildrens.org/health/e/ebstein https://www.ahajournals.org/doi/10.1161/JAHA.120.016684 https://academic.oup.com/ejcts/article/45/3/549/441522 https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.115.015839 Comfort care Birth Planning: https://www.perinatalhospice.org/birth-planning Little Angel Gowns: https://www.facebook.com/littleangelgowns/ Phoenix Children’s Hospital: https://www.phoenixchildrens.org/centers-programs/center-heart-care Ronald McDonald House: https://rmhc.org **************************************************************************NOTE: These are MY thoughts, experiences and opinions.  By no means am I telling anyone what to do, what's right or wrong, or how to handle grief or trauma.   This is my real life, and I'm putting it out there so you feel less alone. For more REAL TALK about baby loss and grief, hit subscribe to be notified when another video drops! Instagram https: @thekatherinelazarYoutube: @thekatherinelazarEmail: [email protected]: www.katherinelazar.com Some helpful resources:https://countthekicks.org/https://www.measuretheplacenta.org/https://www.pushpregnancy.org/https://www.tommys.org/ Ad: Scout & Cellar Clean Crafted Wine Local to Atlanta:https://www.northsidepnl.com/ Follow me on Social Media:Instagram and Facebook: @thekatherinelazar