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Az én az megszűnt, az anyukaüzemmód működik csak (18)

EPISODE · Feb 23, 2023 · 32 MIN

Az én az megszűnt, az anyukaüzemmód működik csak (18)

from Egyszer lent · host Betone.hu

Ez az epizód Berkeiné Télessy Petra és kislánya, Olívia története. Olívia az országban az egyetlen CTNNB1-szindrómával diagnosztizált gyerek. Betegsége annyira ritka, hogy a világon alig száz esetről tudnak az orvosok, és nincs rá gyógymód. Ez a rendellenesség Olívia életének minden szeletét érinti: a mozgását, a beszédét, az értelmi és érzelmi fejlődését. Kattints és Iratkozz fel a hírlevelünkre További műsoraink a betone.hu-n Facebook: Betone Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices

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Az én az megszűnt, az anyukaüzemmód működik csak (18)

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