Beyond the Diagnosis: Danielle’s Quest for Understanding and Advocacy in FASD

In this compelling episode of Living with FASD, join host Patti Kasper as she continues the series on adults living with FASD, offering a window into their unique experiences. Today's guest, Danielle Finnegan, shares her journey from British Columbia, discussing the personal impact of FASD and the path to her diagnosis at age 33. Danielle's story is one of resilience and self-discovery, as she recounts the anger and frustration she felt upon learning of her condition, and how it explained the challenges she faced throughout her life, particularly with reading, writing, and math. Her candid conversation with Patti delves into the difficulties of maintaining employment and the constant judgments she endures due to the invisible nature of her disability. Listeners will be inspired by Danielle's tenacity and her creative approach to advocacy, including her work on a documentary film titled "FASD Glimmers," which has garnered widespread positive feedback and increased awareness of FASD. To see her video on YouTube, go here: https://youtu.be/nWI2zM46F60?si=biv3WEnUvBHMJq_N Patti and Danielle also explore the importance of humor, family support, and community in navigating life with FASD. They touch on the pitfalls of societal expectations and the need for grace and understanding rather than judgment. As an advocate for the FASD community, Danielle shares her involvement in raising awareness through social media and potential speaking engagements, highlighting the significance of visibility and education in combating the stigma associated with FASD. For an enlightening and thought-provoking discussion that sheds light on the diversity and complexity of living with FASD, tune in to this episode of Living with FASD. Remember to share this podcast to spread awareness and support those affected by prenatal alcohol exposure. If you have suggestions for future topics or guests, reach out to [email protected]. You can join the conversation in the Living with FASD Podcast Facebook group, the Saltspring and Gulf Islands FASD Facebook Group or the Flying With Broken Wings Facebook Group. Stay tuned for more insightful episodes every Monday, and in the meantime, keep learning and advocating for a better understanding of FASD.