EPISODE · Feb 3, 2025 · 10 MIN
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
from #BeyondHAE Youth Produced Podcast · host US Hereditary Angioedema Association
In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Ella, a devoted caregiver to her mother, shares her perspective on supporting a loved one with HAE and the impact it has had on her journey. Kati, who has been living with HAE since childhood, reflects on her experiences, the obstacles she has faced, and the strength she has found within the HAEA community. As new members of the HAEA Youth Leadership Council, both Ella and Kati are committed to raising awareness and supporting others in the HAE community. Tune in for an inspiring conversation about caregiving, resilience, and the power of connection. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org. Thank you to our sponsors, KalVista and Pharvaris.
What this episode covers
In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Ella, a devoted caregiver to her mother, shares her perspective on supporting a loved one with HAE and the impact it has had on her journey. Kati, who has been living with HAE since childhood, reflects on her experiences, the obstacles she has faced, and the strength she has found within the HAEA community. As new members of the HAEA Youth Leadership Council, both Ella and Kati are committed to raising awareness and supporting others in the HAE community. Tune in for an inspiring conversation about caregiving, resilience, and the power of connection. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org. Thank you to our sponsors, KalVista and Pharvaris.
NOW PLAYING
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
No transcript for this episode yet
Similar Episodes
Mar 26, 2026 ·1m
Jan 2, 2026 ·47m
Dec 21, 2025 ·46m