#BeyondHAE Youth Produced Podcast
BookmarkUS Hereditary Angioedema Association
#BeyondHAE Youth Produced Podcast is a business podcast hosted by US Hereditary Angioedema Association. It has 74 episodes, with the latest published March 2026.
The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources.
business ·en ·74 episodes
#BeyondHAE Podcast: Advocating for Rare Disease on Capitol Hill
#BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and Beyond
#BeyondHAE: High-Fiving Palm Trees
#BeyondHAE Podcast: Advocating for Yourself As You Transition into College
#BeyondHAE Podcast: A Family’s Journey with HAE
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
#BeyondHAE Podcast: A Letter to my 10 year old Self
#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar
#BeyondHAE: Meet 2024 Social Media Intern - Kailani
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery
#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully
#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy
#BeyondHAE: A Day in the Life of Zach
#BeyondHAE Podcast: A Day in the Life of Sanyu
#BeyondHAE Podcast: A Day in the Life of Caregiver Kailani
#BeyondHAE Podcast: A Day in the Life of Caroline
#BeyondHAE Podcast: A Day in the Life of Bryn
Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE
#BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)
#BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)
#BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)
#BeyondHAE Digging Deeper Interview Series: My caregiver journey (Eliana)
#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)
#BeyondHAE Digging Deeper Interview Series: My brother has HAE (Avery)
#BeyondHAE: HAEA Round Table: Young Adults (Kayla, Jack, and Morgan)
#BeyondHAE: My HAE Diagnosis and Management Journey (Ally)
#BeyondHAE: Commemorating HAE Youth Advocacy Month with a talk about advocacy and awareness
#BeyondHAE: Preparing for Back to School (Lisa & Hannah)
#BeyondHAE: I Use Social Media to Advocate for HAE (Maddie)
#BeyondHAE: HAEA Round Table: Anxiety, Stress, and Growth with HAE
#BeyondHAE: Managing my HAE in Middle School (Paige)
#BeyondHAE: HAEA Round Table: How Does It Feel to Be a Kid with HAE?
#BeyondHAE: An Interview with Lisa Facciolla (Sydney & Lisa)
#BeyondHAE: Learning to feel comfortable with my condition (Zanya)
#BeyondHAE: HAE and Dating (Kelsey and Matt)
#BeyondHAE: The first in my family with HAE (Kira)
#BeyondHAE: Finding Comfort in Community (Jess and Hannah)
#BeyondHAE: How Advocacy and Awareness Has Impacted My Life (Emma)
#BeyondHAE: Moving Away for College (Kobe)
#BeyondHAE: Never Give Up (Karissa)
#BeyondHAE: Living #BeyondHAE with the HAEi Youngsters (Nanna, Erini, Isabel, and Nevena)
#BeyondHAE: How I Support Team Jack (Ally)
#BeyondHAE: We are Caregivers (Ava)
#BeyondHAE: Understanding Anxiety (Carlie)
#BeyondHAE: Chat with my Mom: Managing Life's Changes (Sophie)
#BeyondHAE: Modern HAE medication has allowed me to live #BeyondHAE (Sophia)
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