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EPISODE · Dec 24, 2025 · 1 MIN

Connecting The Rare Disease Community With Rare Patient Voice

from Arachnoiditis Unfiltered Podcast · host Steve

Changing patients' lives and connecting the rare disease community. Sara and Steve have a powerful conversation with Rare Patient Voice President Wes Michaels and patient advocate Stacy.Through our discussion, we learn how signing up and participating in research projects for all types of diseases and conditions benefit patients financially, strengthen advocacy, and accelerate progress for the rare disease community.

Episode metadata supplied by the publisher feed · Published Dec 24, 2025

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Connecting The Rare Disease Community With Rare Patient Voice

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