Defying Odds and Thriving with PVS

from Navigating PVS Hosted by Jen Joly

In this special "mini-episode", host Jen Joly sheds light on her own family’s deeply personal journey with Pulmonary Vein Stenosis (PVS) — a story many listeners have asked to hear. Since Summer’s diagnosis at 11 weeks old in July 2022, their path has been marked by uncertainty, fierce advocacy, and the quiet strength of one extraordinary child. From critical care decisions to navigating palliative and transplant conversations, Jen reflects on the resilience it takes to face the unimaginable. And the moments of kindness, clarity, and courage that helped them keep going. This story is about more than survival. It’s about thriving, even when the odds say otherwise.

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Defying Odds and Thriving with PVS

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Frequently asked questions

How long is this episode of Navigating PVS?

This episode is 30 minutes long.

When was this Navigating PVS episode published?

This episode was published on July 23, 2025.

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Yes. Use the download control on the episode player to save the publisher-provided media file.