PODCAST · society
Navigating PVS
by Jen Joly
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
Episodes
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Pioneering PVS: The Families Who Went First
In this episode, Jen Joly is joined by Jessica Sawyer, mother of 11-year-old PVS survivor Jaylie and one of the founding voices behind the PVS Families Facebook community. Jessica shares a story shaped by both heartbreak and hope, beginning with the loss of her son Jude and continuing through...
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When PVS Leads to Transplant
In this episode, Jen Joly is joined by fellow PVS mom Crystal Costante for a powerful conversation about one of the most difficult topics in the PVS community: lung transplant. Crystal shares the extraordinary story of her son Nathan, who was diagnosed with complex congenital heart disease at...
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Experiencing Love and Loss with PVS
💗 This is a very emotional conversation discussing child loss. Consider having tissues handy and taking breaks as needed while listening. 💗 In this episode, Jen Joly is joined by fellow PVS mom Brenna Smith for a deeply personal and courageous conversation about losing a PVS warrior – her son,...
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Finding Comfort in the Cold Realities of PVS
In this episode, Jen Joly is joined by fellow PVS mom Haley Jezewski for an honest conversation about their daughters’ shared love of the cold — and how both moms have learned to keep breathing through it all. Haley shares the story of her daughter Emma’s birth, NICU stay, and Pulmonary Vein...
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PVS Life: The Fridge Is Broken and the Phone Won’t Stop Ringing
In this episode, Jen Joly is joined by fellow PVS mom Lauren Bizarro, a former bench scientist who now works in cancer pharmaceuticals, to share the story of her son Myles and their family’s journey with pulmonary vein stenosis. From the shock of a “quiet baby” leading to an emergency admission…
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Defying Odds and Thriving with PVS
In this special "mini-episode", host Jen Joly sheds light on her own family’s deeply personal journey with Pulmonary Vein Stenosis (PVS) — a story many listeners have asked to hear. Since Summer’s diagnosis at 11 weeks old in July 2022, their path has been marked by uncertainty, fierce advocacy,...
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The PVS Lessons That Change You
In this episode, Jen Joly is joined by Jori Monich—fellow PVS mom, two-time twin mom, and long-time member of the PVS Families group on Facebook. Jen and Jori reflect on their often parallel journeys through the world of pediatric pulmonary vein stenosis as Jori shares her daughter Avery’s story...
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Fostering Hope Through the Unknowns of PVS
In this episode, Jen Joly speaks with Liz Poe, co-founder of The Lady Josephine Foundation, as they explore the layered and deeply human experience of raising a child with Pulmonary Vein Stenosis (PVS). Jen and Liz discuss the emotional and logistical upheavals of traveling for care, the…
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Careers, Caregiving & Community: Parenting Through PVS
In this episode, host Jen Joly talks with fellow working mom Lindsay Hughes about the extraordinary journey of raising a child with Pulmonary Vein Stenosis. The conversation traces Lindsay’s path from her daughter's premature birth at just 24 weeks (and her own traumatic preeclampsia experience)...
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Across the Pond: Two Moms, Same Fight Against PVS
In this episode, host Jen Joly is joined by U.K.-based PVS Mom, Mischa Hand. Jen and Mischa share their heartfelt journeys as mothers navigating the complexities of their daughters' pulmonary vein stenosis (PVS). Despite living in different countries, their experiences highlight the universal...
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Introduction with Jen Joly
In this trailer for Navigating PVS, host Jen Joly introduces the mission behind the podcast and what listeners can expect. Jen shares a brief look at her family's journey and explains her commitment to creating a helpful, welcoming space for families impacted by PVS (Pulmonary Vein Stenosis) to...
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ABOUT THIS SHOW
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
HOSTED BY
Jen Joly
CATEGORIES
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Frequently Asked Questions
How many episodes does Navigating PVS have?
Navigating PVS currently has 11 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Navigating PVS about?
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
How often does Navigating PVS release new episodes?
Navigating PVS has 11 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Navigating PVS?
You can listen to Navigating PVS on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Navigating PVS?
Navigating PVS is created and hosted by Jen Joly.
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