Dementia Is Terminal – But We Are Not Told How With Theresa Flavin

Theresa Flavin was diagnosed with younger-onset Alzheimer’s Disease at 47. What followed was not just a medical journey, but a profound reckoning with how unprepared our systems are for people living with dementia.In this deeply moving and confronting conversation, Theresa shares what it felt like to be dismissed, unheard and effectively “managed away” after diagnosis. From being told her diagnosis via dictaphone to discovering that dementia care systems are built around suppression rather than understanding, Theresa speaks with extraordinary clarity about what it truly feels like to live inside a brain that is changing.We explore behaviour, consent, dignity, palliative care, human rights, and the urgent need for proper pathways after diagnosis. Theresa also shares her powerful moment addressing the United Nations, advocating for cognitive diversity and the rights of people living with dementia.This episode is not about fear. It is about truth, agency and preparation.Thank you for listening.We'd love to hear from you. Send us a text :-)Death is hard, make death admin easy with the Critical Info Platform. It’s a simple, secure system that helps you prepare and share your legacy, wishes and personal paperwork.It’s packed with prompts, guides and even a To Do List to help you easily gather critical information for a complete end-of-life plan.Leave behind a legacy, not a mess.Sign up now to your free trial at critical info.com.auNo credit card needed. Every Tuesday at 7pm, I host Critical Chat Tuesdays — free, online conversations where you can ask questions or just listen.No pressure. No expectation.Because this isn’t about planning for “someday” — it’s about being ready for whatever life throws your way.Join anytime at criticalinfo.com.au/events MY LOVED ONE HAS DIED, WHAT DO I DO NOW?Our guide, ‘My Loved One Has Died, What Do I Do Now?’ provides practical steps for the hours and days after a loved one's death. Download it here.SUPPORT SERVICESIf you're feeling overwhelmed by grief, find support through our resources and bereavement services here.Support the showSupport the 'Don’t Be Caught Dead' podcast with a one-off or regular donation to help Critical Info, a certified social enterprise, keep creating free, high-impact conversations about death, grief and planning—every contribution fuels our mission to reduce the burden on families and build a more death-literate, compassionate community. Donate here now.Learn more: https://criticalinfo.com.au/Connect with Don't Be Caught Dead podcast host Catherine Ashton & Critical info on socials:https://linktr.ee/catherine_critical_info?utm_source=linktree_profile_share&ltsid=c1879300-84db-4c70-9270-18d17d3ec22aMusic composer: Ania Reynolds - https://www.aniareynolds.com/