Dravet Syndrome - a rare epilepsy - Elena Muñoz & José Aibar

Today; Torie is talking to  Elena Muñoz & José Aibar from the Dravet Syndrome Foundation EU about (as you can probably guess from the name) the rare genetic epilepsy Dravet Syndrome. They chat about the work that they put into finding an effective treatment for Dravet through scientific research and how they educate clinicians and families from around the world. A bold statement of theirs is: "We want to find a drug within three years that eliminates the symptoms and allows us to preserve the cognitive state of our patients until we are able to find a definitive solution for the disease.". **CHECK OUT THE YOUTUBE VIDEO WITH JOSE & ELENA** https://www.youtube.com/c/TorieRobinson/videos ** CONNECT WITH THE DRAVET SYNDROME FOUNDATION EU TEAM ** • https://www.dravetfoundation.eu • https://www.linkedin.com/in/elena-cardenal • https://www.linkedin.com/in/jaibar **CONNECT WITH TORIE** • Website: https://www.torierobinson.com • Twitter: https://twitter.com/torierobinson10 • LinkedIn: https://www.linkedin.com/torierobinson • Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG** • YouTube: https://www.youtube.com/c/TorieRobinson • Blog: https://www.torierobinson.com/blog **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY** https://www.torierobinson.com/contact