Epilepsy Sparks Insights

With neurologist Dr. Manjari Tripathi we hear about the complex world of epilepsy management, focusing on how treatments go beyond medications - including lifestyle changes and innovative surgical options! Join Manjari as she demystifies epilepsy treatments, preventative measures, quality of life, and looking at epilepsy surgery.Chapters 📖00:00 Trailer & intro01:03 Meet Manjari Tripathi 01:39 Epilepsy Is More Than Seizure Control: Daily Life, Stigma, and Mental Health 03:38 Diagnosing Epilepsy: Clinical History, EEG, Imaging, and Finding the Cause 05:27 Before Calling Epilepsy Drug-Resistant: Medication Adherence, Lifestyle, and Assessment 08:20 Why Early Referral Matters and How Patients Reach Epilepsy Surgery 11:01 Who Can Have Surgery? Ketogenic Therapy, Yoga, and Other Options When Surgery Isn’t Suitable 14:40 Improving Quality of Life: Exercise, Mental Health, Emotional Support, Family Communication, and Community Inclusion 18:25 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/diagnosis-treatment-mental-health-surgery-yoga🌐 More about Graeme epilepsysparks.com/guests/manjari-tripathi🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Why do around 30% of people with epilepsy still have uncontrolled seizures despite decades of new antiseizure medications? Graeme Sills, PhD, explains the leading theories behind drug resistance - and how a better understanding of the brain could transform future epilepsy treatments.Chapters 📖00:00 Trailer & intro00:45 Meet Graeme Sills01:29 Introduction to pharmacology and epilepsy02:17 Challenges in epilepsy reatment06:30 Why the drugs don’t work: the drug-transporter hypothesis08:38 Why the drugs don’t work: the network hypothesis09:31 Why the drugs don’t work: the severity and genetic hypothesis10:06 Future directions in epilepsy research13:08 Innovative approaches to research and treatment?17:58 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/pharmacology-past-present-future🌐 More about Graeme epilepsysparks.com/guests/graeme-sills🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Could a brain implant do more than reduce seizures? Dr. Vikram Rao explains how responsive neurostimulation (RNS) is changing the treatment of epilepsy, why researchers think it may work differently than first imagined, and how the technology is helping us learn more about the brain than ever before. Could it even help treat conditions beyond epilepsy in the future?Chapters 📖00:00 Trailer & intro01:07 Meet Dr. Vikram Rao02:01 What is RNS (Responsive Neurostimulation)?03:38 Surgery length and battery replacement04:21 Who’s suitable for RNS?05:12 Where RNS wires are placed06:53 RNS: a preventative approach?09:50 RNS data recording benefits12:11 Suitable for focal or generalised epilepsy?12:59 Benefits for DEEs, treatment resistant depression, and OCD?15:15 More information15:55 Safety and further development of RNS18:19 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/rns-responsive-neurostimulation🌐 More about Vikrkam epilepsysparks.com/guests/vikram-rao🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Most people think every cell in their body contains exactly the same DNA. It turns out that's not always true. Epilepsy genetics researcher Dr. Stéphanie Baulac explains mosaicism, how tiny genetic mutations can exist in just a small number of brain cells, and why they can cause a type of epilepsy called focal cortical dysplasia (FCD). These discoveries are transforming our understanding of epilepsy and could pave the way for highly targeted treatments in the future.Chapters 📖00:00 Trailer & intro00:55 Meet Dr. Stéphanie Baulac01:12 What is focal cortical dysplasia?02:33 Are these genetic mutations inherited?04:17 How can so few cells cause seizures?07:12 What is mosaicism?09:26 What does this mean for families?10:03 What is precision medicine?10:04 Can treatments target only the affected brain cells?12:49 Why were these mutations only discovered recently?14:23 How are these mutations detected?15:09 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/fcd-mosaicism-somatic🌐 More about Stéphanie epilepsysparks.com/guests/stephanie-baulac🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Could inflammation and the blood-brain barrier help explain why some seizures remain uncontrolled? Prof. Colin Doherty discusses emerging research into immune activity in epilepsy, how steroids may temporarily improve seizure control, and why future immunotherapies could help some people whose seizures do not respond to current treatments. Chapters 📖00:00 Trailer & intro00:31 Precision therapy for autoimmune diseases01:27 Hypothesis: could steroids prevent seizures through mending the leakage of the Blood Brain Barrier? 03:53 Neurologists and researchers need to think about autoimmune04:57 Blood Brain Barrier, steroids and genetics - current study07:01 History: why haven’t we done this research already?08:13 Immunologists: work with us!09:48 Comparison: cancer and immunology12:08 Clinicians and scientists: work with us!13:51 People with an epilepsy and carers: work with us!15:27 Closing thoughts & thanks🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy-blood-brain-barrier🌐 More about Colin epilepsysparks.com/guests/colin-doherty🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Could the immune system play a bigger role in epilepsy than many of us realise? Prof. Colin Doherty explains how autoimmune epilepsies challenged the traditional view of epilepsy as purely an electrical disorder. He also discusses antibody-negative autoimmune epilepsy, early immunotherapy studies, and why some people with highly refractory epilepsy may respond to steroid treatment. Chapters 📖00:00 Trailer & intro00:44 Not just an “electrical disorder”02:19 30% still don’t have seizure control03:06 Epilepsy surgery04:54 Immunotherapy for epilepsy06:28 Immunotherapy cases10:20 Needing an immunotherapy program12:10 Steroids and profit13:16 Impacts of steroids - safety14:55 Closing thoughts & thanks 🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy🌐 More about Colin epilepsysparks.com/guests/colin-dohertyEpisode mentioned:🌐 Neurologist Diagnosed With Epilepsy - You'll Love His Positivity - Dr Jim Morrow🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks​

Could medical ketogenic therapy improve more than seizures?! Like anxiety and depression? Dr. Manny Bagary shares how clinciains assess whether ketogenic therapy is working, including its potential effects on anxiety, mood, cognition and quality of life. He also talks about common misconceptions, cholesterol worries, potential pregnancies, and why so many adults with epilepsy still struggle to access specialist ketogenic therapy services. This is episode 2 of 2 with Manny.This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/enChapters 📖00:00 Trailer & intro01:50 When do you know if the ketogenic diet isn’t working?03:40 Impact on quality of life - anxiety, depression, cognition05:45 Misinformation regarding medical ketogenic therapy08:44 Feeling full09:55 When the diet isn’t safe12:20 Secondary benefits of keto diet14:08 Bipolar disorder and the diet14:53 Cholesterol - the elephant in the room18:28 Lack of adult ketogenic diet treatment centres23:19 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/efficacy-safety-mood-availability🌐 More about Manny epilepsysparks.com/guests/manny-bagary🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks

Medical Ketogenic Therapy can reduce seizures in some people - but how does it actually work?! Dr. Manny Bagary explains the nitty gritty of ketones, interactions, how they might affect brain excitability, what’s going on with neurotransmitters, mitochondria, inflammation, and even the gut microbiome! He also shares how ketogenic therapy might improve cognition, when a person should be offered it, and how it can help with status epilepticus! This is episode 1 of 2 with Manny.This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/enChapters 📖00:00 Trailer & intro01:29 Meet Manny02:03 What are ketogenesis, ketosis, ketone bodies, etc.?04:17 What makes ketosis stop seizures (in some people)?08:00 Impacts on anxiety, depression, cognition and more09:42 Different types of ketogenic diet13:17 Ketogenic therapy for status epilepticus16:31 Ketogenic diet in adults19:10 Forms of treatment - when does the ketogenic diet come in? 22:28 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketones-anxiety-depression-status-epilepticus🌐 More about Manny epilepsysparks.com/guests/manny-bagary🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks

Medical ketogenic therapy has more than 100 years of evidence behind it - so why is it still often treated as a last resort?! Ketogenic dietitian Neha Kaul explains how success can go beyond potential seizure reduction, and how the diet may affect cognition, mood and overall quality of life. Neha also covers common misconceptions, safety concerns, and what it really takes to make the diet work in everyday life.This episode is sponsored by Kanso, a brand by Dr. Schär and had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/enChapters 📖00:00 Trailer & intro01:38 Why is the ketogenic diet not widely used?04:02 Research: supporting people trying the ketogenic diet04:48 What is ketosis?07:15 Other benefits of ketogenic diet08:58 Ketogenic diet for adults - research09:34 Who’s suitable for the diet?12:37 Confusion re the diet14:01 Who responds well to the diet?15:32 Mistakes with the diet are normal18:38 Safety concerns - cholesterol and nutrient deficiencies?22:37 How much fat, protein, and carbs should be consumed? 23:39 Interactions with medications25:32 Benefits vs trade-offs27:47 Understanding personal barriers, support needed29:36 Neurologists & those with an epilepsy: know this32:34 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketogenic-diet-support📖 Jasper's Basics of Epilepsies: academic.oup.com/book/57972/chapter/476213922🌐 More about Neha epilepsysparks.com/guests/neha-kaul🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossaryClick here to view the episode transcript. 📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks

Signs of focal epilepsy before the seizures start: hear all about it from neurologist and epileptologist Dr. Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset.Chapters 📖00:00 Trailer & intro00:44 Meet Jacob02:34 Epilepsy is more than seizures02:54 Later epilepsy diagnosis & The Human Epilepsy Project 03:05 “Later onset focal epilepsy with roots in childhood: Evidence from early learning difficulty and brain volumes in the Human Epilepsy Project” paper 07:29 Anticipating seizure onset08:30 Improving recognition of seizure symptoms09:02 Seizing for years before diagnosis10:33 Learning difficulties not Intellectual Disability13:18 Closing thoughts & thanks🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/unrecognised-focal-onset-childhood🌐 More about Jacob epilepsysparks.com/guests/jacob-pellinen🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media!〰️ LinkedIn epilepsy-sparks〰️ Instagram epilepsysparks〰️ Facebook epilepsysparks〰️ TikTok epilepsysparks〰️ Bluesky epilepsysparks

Memory problems are one of the most common and frustrating symptoms experienced by people with an epilepsy - but what actually causes them? And how can we "treat" them? Dr. Laurie Miller explains how different types of memory work, why memory difficulties are often linked to the underlying brain pathology rather than just seizures, and what evidence-based strategies and techniquest may help improve everyday functioning. 👕 Join the Epilepsy Sparks community with our merch 👇🏻https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻https://www.epilepsysparks.com/glossary 📲 Join us on social media!- LinkedIn https://www.linkedin.com/company/epilepsy-sparks- Instagram https://www.instagram.com/epilepsysparks- Facebook https://www.facebook.com/epilepsysparks- TikTok https://www.tiktok.com/@epilepsysparks- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------------------------------- 🔗 Kin - that Irish TV series: 👇🏻 IMDB ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobinson - Instagram: torierobinson10 - Facebook: TorieRobinsonSpeaker - TikTok: torierobinson10   #epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10   #epilepsy #epilepsygenetics #monogenic #phenotypes #filadelfia #danishepilepsycenter #DICE

5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10   #epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10     #epilepsy #neurology #autism #intellectualdisability #vaishnavkrishnan

Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #LindaDalic #LGS #DBS #Neuro _______________

Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!  ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #purpleday #epilepsy #cassidymegan

Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10   #epilepsy #neuromodulation #AnnaBochenek

Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor

Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #STXBP1 #Jean-FrançoisPerrier #genetics

Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #medtech #danielgoldenholz  

How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel 01:30 AI is fun and important for epilepsy 02:33 Using AI usefully and safely 05:12 Ethics and AI biased training 07:40 Tricking AI using AI tricks 08:32 Explainable AI controversy 10:40 AI intro pace in healthcare: benefiting and protecting humans 13:30 Epilepsy industry is full of data 14:02 When people don't want to wait 16:03 Not all epilepsy apps are proven to work 17:22 Thank you Daniel ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10     #epilepsy #medtech #danielgoldenholz #aibias #medicalai

“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #padaczka #ReettaKälviäinen

Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10         #epilepsy #InternationalEpilepsyDay #HelenCross #GreatOrmondStreet

For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk -----------------------------------------   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #epilepsynurse #youngepilepsy #childrensmentalhealthweek  

Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery

Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class   ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery 5v102IYOXYSvK83CKKU2

Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery

Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #BrainTumours #BrainTumors #MarkCunningham #RCSI

Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #SUDEP #epilepsy #BrianDlouhy #amygdala #apnea

Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #NeilWilliamson #epilepsynurse

A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X / Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10   #epilepsy #PabloCasillasEspinosa #temporallobeepilepsy #DiseaseModifyingTherapies #Tau  

Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizures  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #BenBrinkmann #seizureforecasting

Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - X: https://twitter.com/torierobinson10 - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10   #epilepsy #BenBrinkmann #MEG #EEG #MRI

Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10

Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - X/Twitter: https://twitter.com/torierobinson10

Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - X/Twitter: https://twitter.com/torierobinson10

Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ 🔗 Website & more about Meriem: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chapters 📖 00:00 Meet Meriem 02:27 Why focus on the epilepsies? 03:54 Promoting epilepsy awareness through bourbon! 05:51 Activities for Epilepsy Awareness Month - inc the Mayor of Lexington! 08:37 Help raise awareness during Epilepsy Awareness Month - through the gym… 10:09 Educating researchers and scientists about epilepsy! 12:17 Reassuring people with a new diagnosis of epilepsy 13:24 Telling PWE that heaps of people behind the scene are working for them 15:01 Thank you ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ 🔗 Website & more about Eugenia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10   #epilepsy #EugeniaRoza #Seizures #peadiatricepilepsy

Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ 🔗 Website & more about Matthew Gentry: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ 🔗 Website & more about Sammy Ashby: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ 🔗 Website & more about Elisabeth Doran: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ 🔗 Website & more about Berge: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10  

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ 🔗 Website & more about Jordi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10  

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. ------------------------------------------ 🔗 Website & more about José: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jose-serratosa-lafora-disease  -----------------------------------------   ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10

Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ 🔗 Website & more about Christoph Beier: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10

Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney. ------------------------------------------ 🔗 Website & more about Christina Maher: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christina-maher-seizure-propagation-focal-bilateral-tonic-clonic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10

Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. ------------------------------------------ 🔗 Website & more about Jacob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacob-pellinen-focal-epilepsy-onset-later-in-life-origins-childhood ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson   - Twitter: https://twitter.com/torierobinson10 - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10

Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ---------------------------------------- 🔗 Website & more about Lucas: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ---------------------------------------- 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10