Duchenne UK pushes tech to its limits to help those with the condition

Send us a textDuchenne UK pushes tech to its limits to help those with the condition This week we see the impact one charity is having on development of assistive technology for the degenerative condition Duchenne muscular dystrophy (DMD), which affects more than 300,000 people around the world. The technology is playing a vital role in keeping teenage dreams alive. A mother and son tell their story; he has DMD, she’s founded a charity to tackle some of the big challenges in drug development in their search for a cure for DMD. In 13 years, Duchenne UK has raised more than £27 million and used this money to fund pioneering medical research, create a DMD clinical research network of hospital sites across the country, set up a national programme establishing best practice across all the disciplines involved in DMD clinical care, and develop innovative assistive mobility technologies, such as the arm-assist Elevex, to support the independence of people with DMD. Somewhere on Earth meets Eli Crossley - musician, pupil, teenager, whose rock band was the youngest ever to perform at Glastonbury, Eli’s mum, co-founder and Chief Executive of Duchenne UK, Emily Reuben OBE, and Hayley Philippault, Head of Technology at Duchenne UK.  The programme is presented by Gareth Mitchell and the studio expert is Nick Kwek.  More on this week's stories: Duchenne UK AskewSupport the showEditor: Ania LichtarowiczProduction Manager: Liz Tuohy Recording and audio editing : Lansons | Team Farner For new episodes, subscribe wherever you get your podcasts or via this link:https://www.buzzsprout.com/2265960/supporters/newFollow us on all the socials:Join our Facebook groupInstagramTwitter/XIf you like Somewhere on Earth, please rate and review it on Apple PodcastsContact us by email: [email protected] us a voice note: via WhatsApp: +44 7486 329 484Find a Story + Make it News = Change the WorldLearn more about your ad choices. Visit megaphone.fm/adchoicesBecome a supporter of this podcast: https://www.spreaker.com/podcast/somewhere-on-earth-the-global-tech-podcast--6924871/support.Production manager: Liz TuohyEditor: Ania Lichtarowicz  Somewhere on Earth Productions UK Ltd. We’re a UK based production company creating podcasts and branded content that bring stories, places and people into focus. We’re all ex-BBC so the quality of the content is excellent and quality of the sound is amazing.🎥 Learn more about what we do: ➡️ Official Website: https://somewhereonearth.co/ 📩 Contact us or book a project: [email protected] ➡️ Email: [email protected]   📱 Follow us on socials:➡️ Instagram (https://www.instagram.com/soeptech/?hl=en) ➡️ Facebook (https://www.facebook.com/groups/httpssomewhereonearth.co)➡️ LinkedIn (https://www.linkedin.com/company/somewhere-on-earth-the-global-tech-podcast)    If you like our show please rate and review us.