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Ep. 10 - Shannon

Episode 10 of the Patient POV podcast, hosted by Jess Hay, titled "Ep. 10 - Shannon" was published on December 18, 2023 and runs 36 minutes.

December 18, 2023 ·36m · Patient POV

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Summary

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Shannon (@chronicpainhacker) who shares her story with Fibromyalgia, Guillain-Barre Syndrome, FND, Mental Health, and Dysautonomia.  Things that have helped her: Divide your day in half with a nap in the middle to help with fatigue Guided meditation and breathwork.  Light therapy when you first wake up in the morning Get involved in your own healthcare and speak up when a treatment option makes you uncomfortable Join chronic pain support groups  Group therapy with your partner  Activities: Gardening, Word searches, adult colouring books, going to the library, reading, journalling, bibles study Social connections are important! Radical acceptance - “Pain + not acceptance = suffering” “Pain + acceptance = thriving” Carve out joy and make things interesting in your life Give yourself grace Set yourself up for success (doing tasks slightly different to work with your body, rather than against it) Recommendations: Shannon’s book: Chronic Pain Hacker: Because Healing is Hard https://amzn.to/48oIdt5 Book: The Body Keeps Score https://amzn.to/3NvUpA7 Vagus Nerve exercise book (many different options):  https://amzn.to/3GMIBFT  Book: The Missing Link https://amzn.to/3tlcslC

Episode Description

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Shannon (@chronicpainhacker) who shares her story with Fibromyalgia, Guillain-Barre Syndrome, FND, Mental Health, and Dysautonomia. 

Things that have helped her:

  • Divide your day in half with a nap in the middle to help with fatigue

  • Guided meditation and breathwork. 

  • Light therapy when you first wake up in the morning

  • Get involved in your own healthcare and speak up when a treatment option makes you uncomfortable

  • Join chronic pain support groups 

  • Group therapy with your partner 

  • Activities: Gardening, Word searches, adult colouring books, going to the library, reading, journalling, bibles study

  • Social connections are important!

  • Radical acceptance - “Pain + not acceptance = suffering” “Pain + acceptance = thriving”

  • Carve out joy and make things interesting in your life

  • Give yourself grace

  • Set yourself up for success (doing tasks slightly different to work with your body, rather than against it)

Recommendations:


Book: The Missing Link https://amzn.to/3tlcslC

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