Ep. 11 - Susan

Episode 11 of the Patient POV podcast, hosted by Jess Hay, titled "Ep. 11 - Susan" was published on January 8, 2024 and runs 27 minutes.

January 8, 2024 ·27m · Patient POV

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Summary

Hello Hello! I'm Jess (insta: jess_and_elda) and this is Patient POV! Today we chatted with Susan (@the.chronic.wanderer) who shares her story with Crohn's, IBS, IC, hEDS, migraines, and pelvic pain. Recommendations Line for procedure anxiety: “Can you please tell me what you are going to do before you touch me” Have an ongoing note on your phone about questions, thoughts, and concerns so you know what you want to discuss before going in Support system is helpful if you have it Ice packs or heat pads Meditation - short guided one is helpful before bed Journal - to process thoughts Her dog is good for her mental health Sunshine and fresh air is helpful Therapy Stretching Do enough research to inform yourself BUT don’t fall down the google hole It is overwhelming and scary but those feelings are relatable for those with chronic illnesses. Feeling anxious, depressed, or angry is okay and normal and you need to work through them to feel a nice life despite the illnesses, it might just look different than what you expected your life was going to look like.

Episode Description

Hello Hello! I'm Jess (insta: jess_and_elda) and this is Patient POV!

Today we chatted with Susan (@the.chronic.wanderer) who shares her story with Crohn's, IBS, IC, hEDS, migraines, and pelvic pain.

Recommendations

Line for procedure anxiety: “Can you please tell me what you are going to do before you touch me”
Have an ongoing note on your phone about questions, thoughts, and concerns so you know what you want to discuss before going in
Support system is helpful if you have it
Ice packs or heat pads
Meditation - short guided one is helpful before bed
Journal - to process thoughts
Her dog is good for her mental health
Sunshine and fresh air is helpful
Therapy
Stretching
Do enough research to inform yourself BUT don’t fall down the google hole
It is overwhelming and scary but those feelings are relatable for those with chronic illnesses. Feeling anxious, depressed, or angry is okay and normal and you need to work through them to feel a nice life despite the illnesses, it might just look different than what you expected your life was going to look like.

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