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Patient Stories with Grey Genetics

Patient Stories with Grey Genetics

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Patient Stories with Grey Genetics is a health podcast hosted by Grey Genetics. It has 94 episodes, with the latest published May 2024.

Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.

health ·en ·94 episodes

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1

GRIN2B: An Odyssey from Diagnosis to Evacuation

2

Defying Cystic Fibrosis One Mountain at a Time [Rebroadcast]

3

Navigating Genetic Testing in Pregnancy & the Path to FiND Genetics

4

Next Chapter: Losing My Mother, Previving For My Children

5

Red Herrings, the Diagnostic Purgatory & Mitochondrial Disease

6

Next Chapter: Living with Lynch Syndrome

7

A Later Abortion Story

8

A Late Diagnosis of Cutis Laxa and the Creation of ThinkGenetics

9

Next Chapter: A Career in Genetic Counseling

10

Hypermobile Ehlers-Danlos Syndrome: An Invisible Condition

11

A Waiting Game & Another Diagnosis

12

Breaking Taboos & Leaving Room for Grief

13

Navigating the Uncertainty of a BRCA Mutation

14

Bardet-Biedl Syndrome and the Value of a Diagnosis

15

Coming Soon: Patient Stories, Season 3

16

Patient Stories is taking a hiatus…. Please take 1 minute to answer our survey!

17

Cancer, Genomics, and The Weight of Many Decisions

18

A Roll of the Dice

19

A Mother's Journey with Sickle Cell Disease

20

Far Away with Fabry

21

Epidermolysis Bullosa: Great Pain and Gigantic Love

22

The Loneliness of Living with Von Hippel-Lindau Syndrome

23

Changing the Narrative for Trisomy 18

24

Finding Support for Unexpected DNA Discoveries

25

A Long Diagnostic Odyssey to Ehlers-Danlos Syndrome

26

Pancreatic and GI Cancer Genetic Counseling

27

Finding Your Voice Through Dravet Syndrome

28

Family History 2.0

29

Psychiatric Genetic Counseling

30

Reaching New Heights with Hemophilia

31

Slowing Down with Mitochondrial Myopathy

32

Lucas & Menkes Disease: From Diagnosis Day to The Disorder Channel

33

Learning Compassion through Rett Syndrome

34

Not Parent Expected (NPE): The Untethering & My Own Story

35

Once Upon a Gene: "A Little Love"

36

Confronting Ageism with Lynch Syndrome

37

Androgen Insensitivity Syndrome (AIS): Finding Self-Acceptance and Connection

38

Representation Matters: Increasing Diversity within Genetic Counseling

39

Patient Stories is taking a hiatus…. Second Season to come in July!

40

Between Worlds: Usher syndrome type III

41

Talking about Prader-Willi syndrome with the host of Walking with Freya

42

Becoming BRCAStrong

43

Sandhoff Disease & A Spirit That Lives On

44

Walking with Freya: "Ep 53: Eleanor and Grey Genetics"

45

Unexpected Joys on the Scenic Route with Down Syndrome

46

Down Syndrome & Adoption as an Option

47

Patient Stories is taking a holiday break. More episodes in 2020!

48

She with Lynch

49

Family Health History and a Missed Diagnosis of Lynch Syndrome

50

Not Parent Expected (NPE): DNA, Identity, and Changing Family History

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