PodParley PodParley
PodParley PodParley
Log in

Ep. 16 - Mariah (@endodoula)

Episode 16 of the Patient POV podcast, hosted by Jess Hay, titled "Ep. 16 - Mariah (@endodoula)" was published on February 11, 2024 and runs 32 minutes.

February 11, 2024 ·32m · Patient POV

0:00 / 0:00

Summary

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Mariah (@endodoula) who shares her story with endometriosis, adenomyosis, pelvic floor dysfunction and mental health struggles. We dive into the complexities and misunderstanding of endometriosis. Recommendations: Website: https://www.bestworstclub.com/  go to Clubhouse tab for a private group space. Coping strategies:  Home is my safe place  Heating pad Epsom salts and hot bath Daily cannabis for pain Sleeping, eating, drink water Stretch daily When out of the house bring: portable heating pad, lidocaine patches, vape pen, water. Planning and preparing for the anxiety from chronic pain If you ask your doctor to try something (ex: test or treatment) and they say no, ask them to note your request in the chart (it may also change their decision).  Ask for a copy for your doctor’s notes (sometimes things are written that were not discussed or they may have opinions written like combative patient or undiagnosed mental health conditions (when you are just clarifying as asking questions)) Know you are not alone.  Someone else is going through similar situations.   Your worth is not wrapped up in your illness

Episode Description

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Mariah (@endodoula) who shares her story with endometriosis, adenomyosis, pelvic floor dysfunction and mental health struggles. We dive into the complexities and misunderstanding of endometriosis.

Recommendations:

  • Website: https://www.bestworstclub.com/  go to Clubhouse tab for a private group space.

  • Coping strategies: 

    • Home is my safe place 

    • Heating pad

    • Epsom salts and hot bath

    • Daily cannabis for pain

    • Sleeping, eating, drink water

    • Stretch daily

    • When out of the house bring: portable heating pad, lidocaine patches, vape pen, water.

  • Planning and preparing for the anxiety from chronic pain

  • If you ask your doctor to try something (ex: test or treatment) and they say no, ask them to note your request in the chart (it may also change their decision). 

  • Ask for a copy for your doctor’s notes (sometimes things are written that were not discussed or they may have opinions written like combative patient or undiagnosed mental health conditions (when you are just clarifying as asking questions))

  • Know you are not alone.  Someone else is going through similar situations.  

  • Your worth is not wrapped up in your illness

Share this episode

Similar Episodes

Finally, a Loyalty and Rewards App That Actually Works

Jan 8, 2026 ·35m

Let's discuss our guide to having a Cardiac Device fitted in patients with Heart Failure

Jan 5, 2026 ·8m

From Pain to Power – A Lupus Journey of Hope

Nov 6, 2025 ·27m

A New Horizon for Treating Lupus

Oct 28, 2025 ·44m

IBD and Running with Professional Runner, Grayson Murphy

Sep 21, 2025 ·30m

Managing Daily Life and Self-Care with axSpA

Aug 4, 2025 ·33m

Similar Podcasts

Patient Stories with Grey Genetics Grey Genetics Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors. Patient PrepRheum Podcast CreakyJoints Australia Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. In Patient PrepRheum, we are looking at three key areas:Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; andthe importance of good patient-doctor communication.Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit the CreakyJ Patient Obsessed The Axis Patient Obsessed is the aesthetic practice marketing podcast that explores what makes people choose one doctor or provider over another. In a word, the conversion, the magic moment.From inquiry to appointment and appointment to surgery, the obsession always has been and always will be conversions. How do we tell stories and create content that brings more patients and doctors together? Not just any patients, but the ones you want? What are the tools, data, process, and resources that help you do more with less? For more resources and middle of funnel marketing advice, go to patientobsessedpodcast.com. If you're doing something innovative to improve or disrupt the patient experience, we want to hear from you! To inquire about being a guest on Patient Obsessed, send an email to [email protected] you're a doctor or a Take 1: Patient Julie Soukup Julie Soukup Hosts. With Medical Memory recording over 150,000 (and counting) patients, we felt it relevant to start discussing what are the best practices in patient communication and how can we optimize these conversations now captured and recorded by video.We will be meeting with industry and video communication experts about how to elevate these conversations to optimize time, and maximize the patient experience. What can we learn from the medical and surrounding industries now that the camera is on, and the patient is watching? STAY TUNED
URL copied to clipboard!