PodParley PodParley

Ep. 19 - Em

Episode 19 of the Patient POV podcast, hosted by Jess Hay, titled "Ep. 19 - Em" was published on March 4, 2024 and runs 39 minutes.

March 4, 2024 ·39m · Patient POV

0:00 / 0:00

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Em (insta: chronically_creative_em) who shares their journey with fibromyalgia, migraines, asthma, IBS, depression and anxiety, and more!  Notes: Goal to speaking to a friend once a week Find a balance of doing the things you love but not pushing yourself too  To do list app: habitica Book/reading app: Blinkist Face massager app: forYou Storage on wheels for all your supplies and take throughout your house Walking sticks / canes:  Cheaper: Flexyfoot with cork handle  More expensive: Neo-Walk (has fun designs) Starting out of your diagnosis journey, you have 2 obstacles:  A diagnosis: overcome your people's pleaser side and advocate for yourself and/or bring someone with you and follow people on social media who you can relate to and feel less alone but stay away from accounts that make you feel shameful. Mental side of it: reclaim the chronic illness identity and be proud of it go from feeling shameful to feeling prideful in who you are and how you identify which may be disabled.

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Em (insta: chronically_creative_em) who shares their journey with fibromyalgia, migraines, asthma, IBS, depression and anxiety, and more! 

Notes:

  • Goal to speaking to a friend once a week

  • Find a balance of doing the things you love but not pushing yourself too 

  • To do list app: habitica

  • Book/reading app: Blinkist

  • Face massager app: forYou

  • Storage on wheels for all your supplies and take throughout your house

  • Walking sticks / canes: 

    • Cheaper: Flexyfoot with cork handle 

    • More expensive: Neo-Walk (has fun designs)

  • Starting out of your diagnosis journey, you have 2 obstacles: 

  1. A diagnosis: overcome your people's pleaser side and advocate for yourself and/or bring someone with you and follow people on social media who you can relate to and feel less alone but stay away from accounts that make you feel shameful.

  2. Mental side of it: reclaim the chronic illness identity and be proud of it go from feeling shameful to feeling prideful in who you are and how you identify which may be disabled.

Patient Stories with Grey Genetics Grey Genetics Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors. Patient PrepRheum Podcast CreakyJoints Australia Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. In Patient PrepRheum, we are looking at three key areas:Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; andthe importance of good patient-doctor communication.Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit the CreakyJ Take 1: Patient Julie Soukup Julie Soukup Hosts. With Medical Memory recording over 150,000 (and counting) patients, we felt it relevant to start discussing what are the best practices in patient communication and how can we optimize these conversations now captured and recorded by video.We will be meeting with industry and video communication experts about how to elevate these conversations to optimize time, and maximize the patient experience. What can we learn from the medical and surrounding industries now that the camera is on, and the patient is watching? STAY TUNED Heart Failure and Beyond - Patient Fuelled Podcast Pumping Marvellous, the UK's Heart Failure Charity. Fuelled by patients. This Podcast has been brought to you by the Pumping Marvellous Foundation the UK's Heart Failure Charity.In our series of Podcasts, talking to people about heart failure, we look beyond the cardiologist and delve into what makes people tick, what’s their “Secret Sauce” the Elixir that drives people to overcome and conquer challenging situations in their life.
URL copied to clipboard!