Ep.26- Behind the Wheels: A New Era of Advocacy (feat. Kelly and Avery)

Grab your favorite mug and settle in, because today’s brew is served extra bold. On this episode of The Chronic Brew, we are joined by the powerhouse duo behind the Wheel Talk Podcast: Kelly Berger and Avery Roberts. Kelly and Avery aren't just living with an ultra-rare form of congenital muscular dystrophy (Collagen 6)—they are dismantling the world’s perception of it. As "loudspeakers for the whispered," they’ve turned their lived experiences into a global platform for authentic representation and radical disability inclusion. In this episode, we dive into: Activation vs. Awareness: Why "awareness" isn't enough and how to actually drive systemic change. The "Ultra-Rare" Reality: Navigating a medical and social world that wasn't built for your specific diagnosis. The Proxy Problem: Reclaiming your agency when people try to speak for you instead of to you. Deconstructing Stereotypes: Moving past the "inspirational" trope to show the fierce, unpolished truth of the disability experience. Ally-ship in Action: How the chronic illness and rare disease communities can unite to create a more accessible future. Kelly and Avery bring a masterclass in resilience, wit, and unapologetic advocacy. If you’ve ever felt like your voice was being hushed, this is the episode that will teach you how to turn up the volume. Connect with our Guests: Podcast: https://open.spotify.com/show/0fOMtTCElQ9jz3x6Y0dxJA Instagram: @thewheeltalkpodcast Follow The Chronic Brew: Instagram: @mrcoolbeans2889 Support the Show: https://buymeacoffee.com/mrcoolbean2