The Chronic Brew

Flight 27 is now boarding. Today, we are crossing the Atlantic to the Netherlands to sit down with Carlijn Krijger—a former medical student who seemingly had it all: the grades, the look, and a bright future in traditional medicine. But beneath the surface, her body was sounding the alarm. In this "coffee talk" chronicle, Carlijn opens up about the terrifying year she lost her health, her identity, and her joy. We discuss why the "kindergarten" phase of self-help isn't always enough and why true healing often comes from removing the things that aren't yours, rather than just adding more to your to-do list. ☕ What’s Brewing in this Episode: The "Superwoman" Crash: How high-achievers mask chronic symptoms until the body forces a shutdown. Beyond Kindergarten Wellness: Why journaling and basic routines are great starters, but deep evolution requires a "quantum leap." The Power of Subtraction: Learning to let go of the lies and false ideas we hold onto about our health. Bridging Science & Spirit: How Carlijn used her medical background to navigate unorthodox health protocols and authentic spirituality. The Espresso Shot: A high-energy "This or That" round where we see the "un-Superwoman" side of Carlijn. ✈️ Connect with our Guest: Ready to dive deeper into Carlijn’s world and her "Superwoman" community? Website: Superwoman.cc Instagram: @carlijnkrijger 🎙️ Join the Flight Crew: If this episode spoke to your journey, don't let the conversation end here! Support the Brew: Loving the show? You can help keep the beans grinding and the episodes flowing by buying me a coffee! Every cup helps support the production of these conversations: [buymeacoffee.com/mrcoolbean2] Follow the Host: Catch behind-the-scenes content and chronic health tips on Instagram @MrCoolBeans2889. Subscribe & Review: If you enjoyed Flight 27, please Like, Comment, and Subscribe on your favorite platform. Your reviews help other "passengers" find us! Disclaimer: The views and protocols discussed in this episode are based on personal experience and do not constitute medical advice. Please consult with your healthcare professional before making significant changes to your health routine. Thanks for flying Chronic Brew Airlines. See you on the next flight!

Grab your favorite mug and settle in, because today’s brew is served extra bold. On this episode of The Chronic Brew, we are joined by the powerhouse duo behind the Wheel Talk Podcast: Kelly Berger and Avery Roberts. Kelly and Avery aren't just living with an ultra-rare form of congenital muscular dystrophy (Collagen 6)—they are dismantling the world’s perception of it. As "loudspeakers for the whispered," they’ve turned their lived experiences into a global platform for authentic representation and radical disability inclusion. In this episode, we dive into: Activation vs. Awareness: Why "awareness" isn't enough and how to actually drive systemic change. The "Ultra-Rare" Reality: Navigating a medical and social world that wasn't built for your specific diagnosis. The Proxy Problem: Reclaiming your agency when people try to speak for you instead of to you. Deconstructing Stereotypes: Moving past the "inspirational" trope to show the fierce, unpolished truth of the disability experience. Ally-ship in Action: How the chronic illness and rare disease communities can unite to create a more accessible future. Kelly and Avery bring a masterclass in resilience, wit, and unapologetic advocacy. If you’ve ever felt like your voice was being hushed, this is the episode that will teach you how to turn up the volume. Connect with our Guests: Podcast: https://open.spotify.com/show/0fOMtTCElQ9jz3x6Y0dxJA Instagram: @thewheeltalkpodcast Follow The Chronic Brew: Instagram: @mrcoolbeans2889 Support the Show: https://buymeacoffee.com/mrcoolbean2

What started as a routine trip to the eye doctor for a persistent headache ended with a sealed envelope and a frantic drive to the emergency room. At 28 years old, Dan MacQueen’s life was perfectly on track—until a devastating brain hemorrhage shattered his reality. In this episode of The Chronic Brew, Dan joins us at the table to share how he navigated two emergency brain surgeries, a coma, and the grueling process of relearning how to walk, talk, and even smile. But this isn't just a survival story; it’s about the "refocused mind." Dan breaks down the practical strategies he used to rebuild his life and return to the fast-paced tech world, proving that while we can’t always control what happens to us, we have total power over how we respond. Grab your favorite brew and join us as we discuss: The "Sealed Envelope" Moment: The surreal transition from a normal day to a life-saving surgery. Relearning the Basics: The humility and ego-work required to practice "simple" human functions. The #BetterThanYesterday Philosophy: How to find a win when it feels like you're taking three steps back. Professional Resilience: Tips for returning to a high-pressure career after a major health trauma. The Quick Espresso Shot: A rapid-fire round covering recovery playlists, victory snacks, and more. Connect with Dan MacQueen: Website: https://www.macqueendan.com/ Instagram: @macqueendan LinkedIn: https://www.linkedin.com/in/macqueendan/ Keep the conversation going: If Dan’s story resonated with you, tag us on social media with your "First Sip" or your biggest takeaway from the episode. Don't forget to subscribe and leave a review—it helps other members of the chronic community find our table! #TheChronicBrew #Resilience #BrainInjuryRecovery #BetterThanYesterday #DanMacQueen #ChronicIllnessPodcast

What happens when your education and your intuition tell you one thing, but the medical system tells you another? Today on Chronic Brew, we’re sitting down with Amanda Hewitt—a trauma survivor, advocate, and the force behind the Chronic Illness Crew. Amanda lives with a complex "alphabet soup" of conditions, including MCAS, PTSD, endometriosis, and chronic pain. But instead of letting medical gaslighting dim her fire, she leaned into what she calls her "audacity" to reclaim her narrative. In this episode, we discuss: The "Audacity" Factor: How to trust your gut when doctors second-guess your reality. Mastering the Pivot: Why shifting your outlook isn't "giving up"—it's an essential survival skill. Community as Medicine: How Amanda’s virtual book club, Chronic Illness Crew, creates a sanctuary where nobody has to explain their symptoms. Finding Peace: Practical ways to protect your energy while advocating for yourself and others. Whether you’re listening from bed, a waiting room, or your favorite cozy corner, this conversation is a reminder that you are the expert on your own body. Grab your favorite brew and join us! Connect with Amanda: Join the Crew: @chronic.illness.crew.bookclub Follow Amanda on Instagram: @little.miss.undiagnosed Website: linktr.ee/little.miss.undiagnosed Stay Connected with Chronic Brew: Follow us on Instagram: @mrcoolbeans2889 Support the Show: https://www.buymeacoffee.com/mrcoolbean2 Subscribe: Don’t forget to rate and review us on your favorite podcast app!

In honor of National Kidney Month and World Kidney Day, The Chronic Brew is proud to present a conversation that defines the very heart of kidney advocacy. While the world turns its attention to the statistics of CKD this March, we are zooming in on the human spirit with our guest, LaVise McCray. LaVise is a retired Special Education teacher and Sociology scholar who navigated a staggering 7.5-year marathon on dialysis. Her journey is a testament to the "long game" of kidney health. In this intimate "coffee table" session, she shares the raw reality of navigating the dialysis chair while grieving the loss of her husband three years prior to receiving her life-saving transplant in March 2023. In this special Kidney Month feature, we discuss: Advocacy in Action: How LaVise uses her background in Psychology and Sociology to change the patient experience. The Power of Compliance: Finding the "inner grit" to stay on track during a 7.5-year wait. Grief and the Kidney Warrior: Navigating a health crisis after the passing of a spouse. Breaking the Silence on CBS: Bringing vital awareness to Charles Bonnet Syndrome (visual hallucinations) and its impact on those with vision loss. The Global Mission: Why LaVise’s work with the NJ Sharing Network and KidneyLyfe is essential for the future of transplant equity. Whether you are listening during our March awareness events or discovering this years later, LaVise’s message is universal: Even when things feel impossible, hope is a practice. Connect with our Guest: Mentor/Community Work: NJ Sharing Network, Quality Insights, & Lyfebulb. Follow LaVise:  Instagram: @LDYBUG97 Facebook: @LaVise Ldybug McCray LinkedIn: @LaVise McCray Celebrate National Kidney Month with us: If LaVise’s story inspired you, please help us spread awareness. Subscribe, leave a five-star review, and share this episode to help a fellow kidney warrior find their voice. #WorldKidneyDay #NationalKidneyMonth #KidneyTransplant #DialysisWarrior #TheChronicBrew #OrganDonation #CKDAdvocacy #CharlesBonnetSyndrome #KidneyAction

What happens when the athlete’s body you’ve always relied on suddenly changes the rules?” In today’s episode of Chronic Brew, we’re pulling up a chair with Tamie Gangloff—a therapist, educator, and author who navigates life with a unique "double-lens." Tamie joins us to share her powerful journey from competitive athlete to chronic illness patient, and her hard-won recovery from eating disorders, alcoholism, and mental health challenges. We dive deep into the messy middle of healing, discussing: The Identity Shift: How to grieve your "former self" when chronic illness takes the lead. Rebuilding Body Trust: Making peace with a body that feels like it’s "glitching." The Wounded Healer: How lived experience transforms the way Tamie sits across from her clients. Redefining the Win: Why a "successful day" looks different when you're playing the long game of chronic recovery. Whether you're in the thick of your own "wreckage" or looking for a spark of resilience, this conversation is the perfect brew of clinical expertise and raw human heart. Connect with Tamie: Instagram: @authortamiegangloff Linkedin: https://www.linkedin.com/in/tamiegangloff/ Website: TamieGangloff.com  Resources & Books: Browse Tamie’s resilience-focused tools and recovery guides. ☕️ SPECIAL OFFER: Tamie is generously offering our listeners a discount on her resources! Use code COOL BEANS at checkout to save on your purchase. Enjoyed this brew? Don't forget to subscribe, leave a review, and follow us on social media for more honest conversations about life with chronic conditions. One sip at a time.

What happens when a top-tier heart surgeon decides that "fixing the plumbing" isn't enough? In this episode of The Chronic, we sit down with Dr. Bilal Ahmed, an interventional and structural cardiologist and the co-founder/CSO of Lylah Health. Dr. Ahmed pulls back the curtain on the "invisible" gaps in our healthcare system—from the 20-year window where preventative care fails to the "Wild West" of the supplement industry. We discuss his philosophy of "meeting patients in the middle," how he’s bringing clinical rigor to wellness, and why empathy is the most important tool in a surgeon’s kit. Whether you’re navigating a complex diagnosis or looking for the truth behind health supplements, this "coffee table" conversation offers a rare, human look at the man behind the mask. What’s in the Cup: The First Sip: A high-energy game of Sweet or Bitter where Bilal weighs in on everything from biohacking to 15-minute doctor appointments. The Structural Gap: Why the medical system is great at emergencies but often leaves chronic patients behind. The Supplement Solution: Why Bilal stepped out of the OR to build Lylah Health and how to spot "hard science" vs. marketing hype. The Espresso Shot: A 30-second jolt of honesty where we find out the "human" side of a world-class surgeon. Final Advice: Bilal’s one piece of truth for anyone feeling overwhelmed by their health journey. About Our Guest: Dr. Bilal Ahmed is a renowned interventional and structural cardiologist. Beyond the operating room, he is a dedicated entrepreneur and the Chief Scientific Officer of Lylah Health, a company focused on bringing transparency and evidence-based science to the supplement space. He is a vocal advocate for patient-centered care and medical empathy. Connect with Dr. Bilal Ahmed: Lylah Health: https://lylahhealth.com/ LinkedIn: https://www.linkedin.com/company/lylahhealth/ Follow The Chronic Brew for more deep dives into the reality of long-term health. Don’t forget to rate, review, and subscribe! The Chronic Brew: Episode Disclosure Medical Disclaimer: The information provided in this episode is for educational and informational purposes only and is not intended as medical advice, diagnosis, or treatment. While Dr. Bilal Ahmed is a board-certified cardiologist, his appearance on this podcast does not establish a doctor-patient relationship with the listener. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you heard on this program. Conflict of Interest / Financial Disclosure: Dr. Bilal Ahmed is a Co-founder and the Chief Scientific Officer (CSO) of Lylah Health. This podcast is not a sponsored advertisement for Lylah Health; however, listeners should be aware of this professional affiliation when health supplements or specific wellness products are discussed.

How do you navigate a "perfect storm" of health challenges for over 50 years? Today, we are joined by Beverly Meyer, a Certified Clinical Nutritionist who has been a "medical detective" since the 1970s. Managing her own diagnoses of Celiac, Hashimoto’s, and CVID, Beverly shares her unique perspective on using precision nutrition to handle complex conditions like CKD, MS, and POTS. We dive into the evolution of the Paleo diet, preventing illness progression, and the "no-nonsense" mindset required to stay persistent on the road to wellness. Key Topics Discussed: The 70s Medical Detective: Navigating chronic illness before the digital age. Paleo for Autoimmunity: Why ancestral nutrition is a powerful lever for inflammation. The Clinical Tightrope: Tailoring nutrition for the specific needs of CKD and POTS. Halting the "Snowball Effect": Using food to prevent the progression of illness. The Persistence Mindset: Moving from grief into high-agency research and action. Important Disclaimer Please Note: The views and opinions expressed by Beverly Meyer are her own and represent her clinical experience and personal journey. This content is for informational and educational purposes only. It is not a substitute for professional medical advice. Always consult with your physician or a qualified medical provider before making any changes to your diet, supplements, or treatment plan. Connect with Beverly Meyer: Official Website: DietaryHack.com Podcast: Primal Diet – Modern Health Supplement Shop: On-Demand Clinical Resources Facebook: Beverly Meyer - Dietary Hack Instagram: @beverlymeyer_dietaryhack

What happens when your relationship with food becomes a medical battlefield? For many in the chronic illness community, "normal" eating is complicated by more than just willpower—it’s tangled up in medical restrictions, clinical stereotypes, and a healthcare system that doesn't always see the full picture. In this episode of The Chronic Brew, we sit down with Jessica Setnick, MS, RD, CEDSS, an international leader in the eating disorder field who brings a unique, "human-first" perspective to nutrition. As an anthropologist and dietitian, Jessica helps us peel back the layers of why we eat the way we do. We dive deep into the intersection of chronic health and dysfunctional eating, exploring how to find a "peaceful" relationship with food when your body feels out of sync. In this episode, we discuss: The Anthropological Lens: How understanding our history as a species can remove the shame from our eating behaviors. The "Wellness" Trap: Distinguishing between medical necessity and the rise of Orthorexia. Advocacy & The Nutrition CARE Act: Why we are fighting to make nutrition counseling a standard, covered service for everyone. Medical Gaslighting: Navigating a system that often mislabels physical symptoms as "all in your head." Redefining Food Peace: What it looks like to find a neutral, sustainable way to eat while managing chronic illness. Whether you're a patient navigating a complex diagnosis or a healthcare professional seeking a more compassionate approach, this "Coffee Talk" session is the jolt of clarity you've been looking for. 🗝️ Key Takeaways Bio-Behavioral Nutrition: Why your brain chemistry and biology drive your hunger more than your "discipline." Access to Care: Breaking down the stereotypes of what an eating disorder "looks like." Advocacy: How to support legislation that ensures better recovery protection for all. 🔗 Connect with Jessica: Main Website: JessicaSetnick.com Advocacy Platform: IFEDD (International Federation of Eating Disorder Dietitians) Professional Training: Eating Disorders Boot Camp [Disclaimer: This episode discusses eating disorders and dysfunctional eating behavior. The content is for educational and supportive purposes and is not a substitute for professional medical advice or treatment. Please listen with self-care in mind.] #ChronicBrew #JessicaSetnick #EatingDisorderRecovery #ChronicIllnessSupport #SpoonieLife #NutritionCareAct #FoodPeace #OrthorexiaAwareness #DietitianAdvocacy

When chronic illness enters a relationship, it often feels like an uninvited guest that takes up all the space at the table. But does a diagnosis have to mean the end of intimacy, joy, and connection? In this episode of The Chronic Brew, we’re sitting down with Lisa Gray, a licensed Marriage and Family Therapist and author of the groundbreaking book, Thriving in a Relationship When You Have Chronic Illness. Lisa brings a unique "double-shot" of perspective to the show: she is a clinical expert in couples therapy and a fellow "spoonie" living with hEDS (hypermobile Ehlers-Danlos Syndrome). We dive deep into the first chapter of her book to discuss why communication is the ultimate lifeline, how to break out of the "caregiver vs. patient" trap, and how to protect your identity as a couple when the "how" of your life starts to change. In this episode, we discuss: Sweet or Bitter: Lisa plays our signature icebreaker game, reacting to the relatable highs and lows of chronic life. The Communication Filter: Why "Chapter One" communication strategies are a game-changer for couples in crisis. Identity Protection: How to remember that your relationship is not your illness. The Espresso Shot Round: Rapid-fire advice for navigating flares, maintaining intimacy, and finding resilience. About Our Guest: Lisa Gray, LMFT, is an author and therapist specializing in helping couples navigate the complexities of chronic illness. After a decade-long career as an air traffic controller, she transitioned into therapy to help others find calm in the turbulence of life. She is the author of Thriving in a Relationship When You Have Chronic Illness and Healthy Conflict, Happy Couple. Connect with Lisa: Website: lisagrayauthor.com Clinical Practice: lisagraymft.com Instagram: @TherapyBookNook Grab the Book: https://lisagrayauthor.com/books/thriving-in-a-relationship-when-you-have-chronic-illness-navigate-challenges-and-keep-your-relationship-strong-using-acceptance-and-commitment-therap-lisa-gray/9781648486081 Don't forget to subscribe to The Chronic Brew on Podbean so you never miss a fresh episode. If you enjoyed this conversation, leave us a review—it helps other "chronic couples" find the show! Keep your spirits high and your coffee hot.

Are you tired of being told your labs are "normal" while you’re struggling to get out of bed? In Episode 17 of The Chronic Brew, Mr. Cool Beans welcomes Beth Mielbrecht, a specialized Health Detective who helps brilliant, intuitive people stop the guessing game. Beth doesn't just look at symptoms; she investigates the "cold cases" of chronic illness using Digital Muscle Testing to find hidden imbalances. In this deep dive, we discuss how to stop seeing your body as the enemy and start using it as a "Google Map" to lead you back to wellness. If you’ve been searching for the missing piece to your health puzzle, this investigation is for you. In This Episode, We Cover: The Detective’s Origin: How Beth transitioned from a health mystery of her own to helping others solve theirs. Digital Muscle Testing 101: A look at the non-invasive "talk" with your body's systems to find what bloodwork misses. Intuition as a Tool: Why people with chronic illness are often the best "detectives" of their own bodies. The Google Maps Framework: How to determine your "Point A" and draw a direct route to recovery. Sweet or Bitter: Beth’s take on the highs and lows of the modern health journey. Connect with Beth Mielbrecht: Website: https://yourhealthwithbeth.com/ Instagram: @yourhealthwithbeth Support The Chronic Brew: If this episode helped you find a little more clarity today, please share it with a friend who is currently in the thick of their own health mystery. Follow us on Instagram: @mrcoolbeans2889 Leave a Review: If you're enjoying the brew, please leave us a 5-star review on Podbean or Spotify! Disclaimer: This podcast is for educational and informational purposes only. Beth Mielbrecht is a Health Detective and coach; her insights are not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

Peeps, what do you do when your body feels like a courtroom where you’re constantly losing the case? In this episode of The Chronic Brew, we sit down with a powerful advocate, known to the chronic illness community as The Thriving Zebra. As a former paralegal and recovering gym addict, our guest was used to "powering through"—until a complex web of diagnoses including POTS, MCAS, EDS, and ME/CFS changed the rules of her life forever. Today, She joins us to share her "Zebra’s Guide" to navigating the storm. We discuss: The Advocacy Edge: How her legal background gave her the tools to fight for answers in a medical system that often dismisses "invisible" illness. The Power of Regulation: Why nervous system regulation and hormone health became the keys to managing her flares when traditional medicine fell short. Identity & Strength: What it looks like to redefine your worth when you can no longer rely on physical "hustle" or high-intensity workouts. Spoonie Parenting: Real talk on managing family life, "chronic guilt," and communicating your limits to the people you love most. Grab your favorite mug and join us for our new opening segment, "The First Sip," as we dive into the "Sweet and Bitter" moments of the chronic journey. Connect with our guest: Follow her on Instagram: @TheThrivingZebra Support The Chronic Brew: If this episode resonated with you, please subscribe, leave a review, and share it with a fellow warrior. Your story is your power. > Disclaimer: This podcast is for educational and advocacy purposes only and does not constitute medical advice. Please consult with a qualified healthcare professional for your specific medical needs. SEO Tags / Keywords for Podbean: Chronic Illness, POTS, Mast Cell Activation Syndrome, MCAS, Ehlers-Danlos Syndrome, EDS, ME/CFS, Myalgic Encephalomyelitis, Hashimoto’s, Nervous System Regulation, Self-Advocacy, Women's Health, Hormone Healing, Spoonie Life, Chronic Pain, The Thriving Zebra, The Chronic Brew.

Grab your favorite drink and settle in for a raw, honest conversation at The Chronic Brew. Today, we’re pulling back the curtain on a topic that hits close to home for so many in the chronic illness community: medical malpractice and "bad doctors." I’m joined by my amazing co-host for the day, Pretty Rude JJ, as we dive into why the medical system feels like it’s failing us. We’re moving past the "medical gaslighting" and getting into the real-world mechanics of how good care goes bad. We’ve broken the conversation down into three real talk segments: 💰 Segment 1: The System Made Them Lazy. We talk about the "assembly line" nature of modern medicine. Is it the doctor's fault, or is the insurance-driven system forcing them to rush through our 15-minute appointments? 🧠 Segment 2: The Brain Shut Down. This is all about those mental traps doctors fall into—like Anchoring Bias—where they decide it's "just anxiety" and stop looking for the real cause. We’re sharing tips on how to snap them out of it. 🔪 Segment 3: They Just Didn't Care. We’re looking at the big, unforgivable breaches of duty. We deep-dive into the Michael Jackson/Dr. Conrad Murray case to see what happens when a doctor completely ignores the standard of care for personal gain or convenience. Whether you’re a patient fighting for a diagnosis or just someone tired of being unheard, this episode is about finding your voice and understanding the "why" behind the white coats. Cases Featured in This Episode: The King of Pop’s Fatal Care: A breakdown of how Dr. Conrad Murray’s "extreme deviations" from medical standards led to the involuntary manslaughter of Michael Jackson. Read the Michael Jackson Case Details The $7.9 Million Florida Stroke Verdict: How a Miami-Dade jury held cardiologists accountable for stopping a patient's necessary blood-thinning medication, leading to a debilitating stroke. Read the Florida Stroke Case The $4.25 Million New Hampshire Cancer Delay: A heartbreaking look at what happens when a primary care doctor ignores a patient's concerns for four years, allowing a curable lump to become terminal cancer. Read the New Hampshire Cancer Delay Case Connect with us! Don't forget to follow Pretty Rude JJ and share your own "bad doctor" stories with us on social media. Your voice matters, and you are your own best advocate. Judgment of Dr. Conrad Murray | Court TV Podcast This video provides an excellent audio-first deep dive into the Michael Jackson trial, offering the expert testimony and legal arguments needed to fully understand the "Breach of Duty" we discussed in the episode.

What happens when the medical emergency ends, and the silence begins? After weeks of non-stop work, teaching, battling the meteoropathy, and enduring a major renal stent exchange, Mr. Cool Beans took a necessary break. Now, they're back to share a raw look at the quiet period that follows an acute medical crisis. In this deep solo reflection, we explore the truth about recovery: the hardest work isn't always the procedure itself—it's the emotional processing afterward. We dive into: The shock of the standstill—feeling adrift when the urgent schedule stops. The emotional backlog and the unexpected grief that hits when your mind finally catches up to the trauma your body survived. The essential shift from fighting your body to partnering with it. Why mental recovery must be treated as its own, non-negotiable phase of healing. This episode is for anyone who has ever felt pressure to "bounce back" quickly after a major health event. It’s a powerful validation that you are worthy of the rest, and that the quiet work is the most crucial work of all. Keywords: Chronic Illness, Medical Crisis, Renal Stent, Post-Crisis Processing, Grief, Mental Health, Emotional Backlog, Chronic Pain, Solo Reflection, Kidney Health, Meteoropathy, Recovery.

"I'm Not Rude, I'm Disabled": The Fierce Advocacy of Pretty Rude JJ What happens when a chronic illness forces you to stop working and you lose the identity you spent your life building? This week on The Chronic Brew, we sit down with Jessie Myers, known online as "Pretty Rude JJ," to explore the raw emotional cost of sudden disability. Jessie shares the intense personal journey from managing an illness to becoming unable to work, a pivotal shift that forced her to redefine her entire future. We dive deep into: The profound grief and emotional toll of losing your career and professional self-worth. The exhausting fight for validation when dealing with an invisible illness—from doctors, friends, and family. The moment she chose to turn her struggle into fierce advocacy and education for others. If you've ever felt unseen, unheard, or like you were a burden because of your health, Jessie’s story offers validation and a powerful blueprint for finding your voice. Social Media: "prettyrudejj" on IG, TikTok, and Threads PrettyRudeJJ.square.site Keywords: Chronic Illness, Disability Advocacy, Invisible Illness, Validation, Grief, Loss of Identity, Pretty Rude JJ, Chronic Pain, Disability Support.

On the Road to Resilience: A Farmer's Fight with Dialysis (ft. Jarod Palmer) In this special episode, host Mr. Cool Beans took the microphone on the road (right after a doctor's appointment!) to capture an incredible conversation. Jarod Palmer is living a life defined by intense commitment: carrying forward his family's generational legacy of hard work and farming tradition while navigating the life-long demands of dialysis. This session is a raw and powerful masterclass in resilience. Jarod shares his deeply personal story of how he learned to cope with a chronic illness diagnosis, the mental shifts required to schedule treatments around a sun-up-to-sundown job, and where he finds the motivation to uphold his heritage on the days he feels most drained.   In this episode, you will hear:   How Jarod balances the physical demands of farming with the exhaustion of dialysis. The small, meaningful coping mechanisms he uses to feel productive on his hardest days. The unexpected way the rhythm of the seasons helped him accept the rhythm of treatment. Connect with Jerod Palmer: Check out his journey and show him some support!  Tiktok: Jarodpalmer8 Facebook: Jarod Palmer (Photo with Blue shirt) Find all links mentioned in this episode in the show notes below! Next Week: We switch gears but keep the theme, talking to a guest who had to completely pivot their career after a chronic illness diagnosis. Subscribe so you don't miss it!

Welcome back to The Chronic Brew for the most essential lesson in chronic living: Defending Your Spoons! We established that our energy is a finite resource. Now, we're forging the armor to protect it. This episode dives deep into the uncomfortable truth that for those with chronic illness, boundaries aren't rude—they are non-negotiable acts of survival. We tackle the biggest barriers to energy management: the guilt that comes with saying "no" and the fear of being a "burden" when you need to ask for help. In this episode, you will learn: The Time and Activity Boundaries: Concrete scripts for saying "no" to loved ones and protecting your physical energy. Silencing the Internal Critic: The most vital boundary against the voice that tells you you're "lazy" or "should be able to do more." Reframing the Narrative: Why asking for help is an act of courage, not a sign of failure. The Specific Ask Strategy: How to use small, manageable requests to make receiving help easy and guilt-free. I share my personal reflection as a CKD patient (GFR 24-30) on why defending your peace is the most critical element of chronic management. Bonus: Get a powerful tease for our next episode where we talk to an incredible guest: a working farmer who manages his demanding schedule around his dialysis treatments! #DefendingYourSpoons #SpoonTheory #Boundaries #ChronicFatigue #CKD #AskForHelp #SelfAdvocacy #ChronicLife

Welcome to a new chapter of The Chronic Brew! In this pivotal episode, we’re expanding our focus beyond Chronic Kidney Disease to embrace the entire chronic illness community. Join us as I share the personal story behind this rebrand and reveal why this is so much bigger than my own journey. We dive into the staggering global impact and economic burden of non-communicable diseases like heart disease, cancer, and diabetes. Then, we bring the conversation home to a struggle so many of us know too well: chronic fatigue. I introduce the powerful Spoon Theory as a tool for managing limited energy and offer a raw, personal reflection on what living with an unpredictable body truly feels like. Whether you live with a chronic illness or support someone who does, this episode is for you. Tune in to feel seen, understood, and part of a bigger conversation. Episode Highlights: The personal reason behind the podcast's rebrand. The global and economic impact of common chronic illnesses. A deep dive into what chronic fatigue truly feels like. How to use the Spoon Theory to manage your energy. A raw reflection on the emotional toll of living with CKD. #ChronicIllness #ChronicFatigue #SpoonTheory #CKD #Podcast #Health #Wellness  

Join us on this episode of The Chronic Brew as we sit down with the amazing Michelle, the creator behind Hobbies for Broken Bodies. Michelle's journey with multiple chronic illnesses—including Chiari Malformation, POTS, EDS, and gastroparesis—has taught her the incredible power of finding purpose through creativity. We'll explore how she’s blended humor and advocacy to build a vibrant online community, the unexpected lessons she's learned along the way, and how a creative outlet can truly be a lifeline. Plus, Michelle shares her experience writing for The Mighty and what she wishes others understood about living with chronic illness. Get ready for a conversation that's honest, inspiring, and full of heart. Links: Follow Michelle on Instagram: [@hobbiesforbrokenbodies] Follow The Chronic Brew on Instagram: [@mrcoolbeans2889] Read Michelle's article on The Mighty: [https://themighty.com/topic/fibromyalgia/fibromyalgia-symptoms-invisible-instagram/ ]

If you love someone battling a chronic illness, this episode is for you. In Part 2 of our series, we shift our focus to the other side of the battle: the caregivers, family, and friends who provide an essential lifeline. This episode is your compass, a guide to helping without getting lost yourself. We'll share actionable advice on: How to Validate: Learn the difference between comforting words and truly validating your loved one's feelings. The Power of Practical Support: Find out how specific acts of service can mean more than any words. Educating Yourself: Discover how understanding the illness makes you a stronger advocate and ally. This journey is a shared one. Join us as we equip the support system with the tools they need to stand strong for the ones they love. Don't forget to listen to Part 1: The Patient's Toolbox for insight into the patient's perspective, and follow Mr. Cool Beans (mrcoolbeans2889) on Instagram to become part of our community.

You've heard about the mental and emotional weight of chronic illness—now, let's talk about the tools you can use to carry it. In Part 1 of this special two-part series, we're building a practical toolbox for your mind and spirit. This episode is all about empowering you. We'll dive into simple yet powerful coping strategies, including: Mindful Moments: Discover how a 60-second reset can calm your nervous system. Creative Expression: Learn how to use journaling, doodling, and even the beat of house music to release what's hard to put into words. The Power of Community: Find out how to connect with people who truly understand your journey. This is the first step in a powerful conversation about not just surviving, but finding ways to thrive. Join us as we open up the toolbox and start the fight back. Tune in next time for Part 2: The Caregiver's Compass, where we’ll talk directly to the loved ones who are part of this journey. Follow me @mrcoolbeans2889 on Instagram to join the conversation and get updates on future episodes.

In this powerful episode of The Brew with Mr. Cool Beans, we honor Suicide Prevention Month by pulling back the curtain on a silent battle. We've all seen the sobering statistics on chronic illness, but what do those numbers truly feel like? Join us as we go beyond the data and listen to the raw, honest voices of those on the front lines. Hear the story of CKD patients who face a daily fight with a body held together by a renal stent, who have survived a ruptured kidney, and who wait in an agonizing GFR limbo—too healthy for a transplant list, yet battling for their life. This is a story of a living donor who has been approved and is ready, making the wait a unique and difficult emotional burden. This episode isn't just about the struggle; it’s about the strength. Discover the unexpected gifts found in the fight: the new perspectives, the deepened relationships, and the unbreakable courage that emerges from adversity. Tune in for an episode filled with honesty, hope, and the profound resilience of the human spirit.  

How do you find the strength to fight a battle you've already seen someone lose? In "From Battle to Breakthrough," we sit down with the remarkable Ruth Toutoute, who candidly shares her experience with CKD—a journey that began with the tragic passing of her father from the very same disease. She takes us through the darkest moments of her life, from the emotional weight of a family history with CKD to the grueling reality of dialysis treatments and the daily challenge of a body that was failing her. But this isn't just a story of hardship; it's a testament to hope. Ruth reflects on her breakthrough moment: receiving a kidney transplant in September. She shares what it feels like to have a second chance at life and what it means to live each day to the fullest. This episode is a must-listen for anyone who has faced adversity and is seeking a reminder that a new beginning is always possible.

From classroom farewells to quiet contemplation, Mr. Cool Beans opens up on this episode of The Brew. He shares the emotional experience of saying goodbye to his students, provides an update on his ongoing health journey, and delves into the often-overlooked habit of minimizing symptoms when facing a chronic condition like CKD. Tune in for a candid and insightful conversation.

In this deeply moving episode, we sit down with Donna Slack, who bravely shares her journey through the profound loss of her mother. Donna opens up about the raw realities of caregiving, the often-unspoken loneliness, and the emotional weight of navigating grief. But this isn't just a story of sorrow; it's also a testament to resilience. Donna reveals her path to rediscovering herself, finding joy again, and honoring her mother's memory. Prepare for an honest and inspiring conversation about love, loss, and the strength of the human spirit.

Welcome back to Brew, everyone! This week, I, Mr. Cool Beans, am stepping aside to share a deeply personal and incredibly important conversation. We're tackling the often-overlooked intersection of Chronic Kidney Disease (CKD) and mental health, and I'm honored to have my amazing wife, Shauntae Mondesir, join me. Shauntae wears many hats: she's my wife, a dedicated social worker, and my primary caregiver as I navigate my CKD journey. In this raw and honest episode, she opens up about the emotional and mental toll that CKD can take, not just on the patient, but on the entire family. We'll be diving into: * The caregiver's perspective: Shauntae shares her experiences balancing her professional life as a social worker with the demands of caregiving. * Navigating the emotional rollercoaster: We explore the challenges of coping with the uncertainty, stress, and grief that often accompany a CKD diagnosis. * The importance of mental health: Shauntae emphasizes the need for open conversations about mental well-being for both patients and caregivers. * Practical tips and resources: We'll discuss strategies for managing stress, building resilience, and finding support. * It's Still Okay Not To Be Okay: We reinforce the message that vulnerability is strength and seeking help is a sign of courage. This episode is a must-listen for anyone affected by CKD, whether you're a patient, a caregiver, or simply someone who wants to learn more about the human side of chronic illness. Join us as we brew up a conversation about empathy, support, and the power of shared experiences.

CKD can be a physically and emotionally challenging condition. Many people with CKD experience mental health issues such as depression, anxiety, and stress. In this episode of The Brew, Mr. Cool Beans talks about the link between CKD and mental health, and offers some strategies for managing your mental health while living with CKD. He also discusses the importance of seeking professional help if you are struggling.

Welcome to another heartfelt episode of the Brew Podcast with Mr. Cool Beans. In this episode, aired on Monday, February 10th, our host shares his personal journey dealing with chronic kidney disease (CKD) and high blood pressure, delving into how these conditions have intersected with his weight loss efforts and overall health journey. He emphasizes the importance of mental and men's health, advocating for awareness and support for those facing similar challenges. Throughout this episode, Mr. Cool Beans opens up about his serious health battles, from multiple medications to the impact of stress, and reflects on the unexpected diagnosis of stage four kidney disease. He paints a vivid picture of his perseverance, motivated by the desire to be there for his son and improve his quality of life. Join in for an enlightening discussion about the nuances of navigating through chronic illness, as Mr. Cool Beans aims to inspire listeners by sharing both the struggles and small victories from his ongoing health journey. American Heart Association: https://www.heart.org/en/health-topics/high-blood-pressure National Kidney Foundation: https://www.kidney.org/how-to-classify-ckd

Welcome to the very first episode of the Brew Podcast hosted by Mr. Cool Beans, also known as Moe. Join Moe as he embarks on a heartfelt journey, sharing personal stories and experiences of navigating through health challenges, specifically chronic kidney disease, and advocating for awareness on men's health and mental health. In this episode, Moe delves into his life story, from growing up in Miami to pursuing a degree in education, building a family, and ultimately confronting unexpected health struggles such as high blood pressure, anemia, and a shocking stage four kidney disease diagnosis. As he candidly shares his battles with weight, lifestyle changes, and multiple surgeries, Moe offers listeners a raw and inspiring perspective on overcoming life's unforeseen obstacles. Moe's hope is to foster a sense of community and support, encouraging listeners to draw from his experiences, learn about the importance of health advocacy, and appreciate the significance of life's unexpected turns. Tune in to be a part of this transformative conversation, where sharing, healing, and resilience brew within every dialogue. Follow Moe on Instagram at mr cool beans 2889 for more updates and insights.