Ep. 48: Addiction Ft. Bill/ Lauren (Conradi-Hunermann Syndrome)

We want to acknowledge that addiction can be difficult for some listeners. If you find it triggering, feel free to skip ahead to 41:30 to hear our Spoonie story of the episode—Lauren’s journey with Conradi-Hünermann Syndrome. In this powerful two-part episode, we welcome back Bill from Episode 35 to dive into an important conversation about addiction. Bill opens up about his personal journey, the struggles he faced, and the hard-won lessons that helped him in recovery. He also shares heartfelt advice for those battling addiction and their loved ones.In the second half, we sit down with Lauren Schoeller, a dedicated advocate, rare disease patient, and healthcare professional. Born with Conradi-Hunermann Syndrome, a rare form of dwarfism that affects multiple systems in the body, Lauren has turned her personal experiences into a mission. She’s an outspoken advocate for the rare disease community, hip dysplasia, and limb differences. With a background in clinical research and a passion for amplifying patient voices, Lauren hosts The Patient Perspectives Podcast and is currently pursuing a career in medicine.Join us as we discuss the complexities of addiction, the power of advocacy, and the resilience of the human spirit. Don't miss this inspiring conversation!Struggling with addiction? Contact the SAMHSA 24/7, 365 hotline at 1-800-662-HELP (4357)Follow Lauren's story on Instagram at https://www.instagram.com/lauren.schoeller/Listen to the Patient Perspectives Podcast here:Spotify: https://open.spotify.com/show/0LDQdlCqY9R0BiiNxspsk4?si=c2a7bf10543e42eeYouTube: https://www.youtube.com/@PatientPerspectivesPod