The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength

This season finale of The SpoonFull Show is unlike any other... because nothing is edited. No cuts, no clean‑ups, no hiding the pauses, lost words, or moments where our brains simply clock out. What you hear is exactly what happened, and honestly… it’s the perfect way to talk about brain fog.In this episode, Rachel and her sister‑in‑law Tina dive into what brain fog actually feels like, the word‑searching, task‑forgetting, mid‑sentence disappearing acts, and the emotional weight that comes with it. They share how brain fog affects conversations, confidence, daily routines, and why it can feel so frustrating even when you try to laugh it off.You’ll hear real stories about forgotten grocery items, lost timelines, misused words, and the invisible grief of not being able to multitask like you used to. They also break down what makes brain fog worse (fatigue, stress, heat, pain, overstimulation) and the practical tools that help... timers, lists, reminders, routines, humor, and asking for support.If you’ve ever felt embarrassed, overwhelmed, or misunderstood because of brain fog, this episode will make you feel seen, validated, and a little less alone.Watch the SpoonFull of Strength Instagram and TikTok pages for updates about next season — exciting things are coming.Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠Just a quick reminder—everything shared here is based on personal experiences.Please consult your doctor for your own care.

When Pain Becomes Your Purpose with Lyndsay Soprano⚠️ Content note: This episode includes discussion of suicidal ideation. Please take care of yourself while listening. If these topics are difficult for you, you can skip over minutes 15:40 to 20:00. What happens when pain becomes such a constant part of your life that you have to find a new reason to keep moving forward?In this episode of The SpoonFull Show, I'm joined by Lyndsay Soprano, who lives with Complex Regional Pain Syndrome (CRPS), one of the most painful conditions known. Lyndsay opens up about the physical and emotional toll of chronic pain, the trauma that shaped her journey, and the moments when the darkness became almost impossible to carry.We also talk about suicidal ideation, why having people who truly understand can make all the difference, and how simply talking about the darkest moments can help break the isolation that chronic pain creates.But this conversation isn't only about the hard stuff. Lyndsay shares how she found purpose in her pain, the importance of finding your "why," the power of friendship and community, and why laughter and a little dark humor can sometimes be exactly what gets you through another day.Most importantly, Lyndsay reminds us that you are not alone—and there is always hope, even in the darkest moments.Lyndsay Soprano is a bold, unfiltered voice in the chronic pain and trauma recovery space—transforming unimaginable suffering into unstoppable advocacy,  as she dives into the realities of living in—and rising from—chronic pain, trauma, and invisible illness. Find Lyndsay and her podcast, Giving Pain Purpose, at https://givingpainpurpose.com/Follow her on Instagram at: https://www.instagram.com/givingpainpurpose/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your total order.

What if your home could actually help conserve your spoons instead of using them up?In this season finale of The SpoonFull Show, I’m joined by Claire, founder of The Uncluttered Soul, for a conversation about chronic illness, clutter, grief, and creating a home that works for the life you’re actually living...not the life you thought you’d have.We talk about what “decluttering for Spoonies” really looks like when energy and mobility are limited, why traditional organizing and productivity advice often falls short, and how small changes can reduce the everyday friction that quietly drains our energy.Claire also introduces us to the idea of “fantasy self clutter”—the things we hold onto because they represent who we used to be, or who we thought we would become. We talk about the grief that can come with changing abilities, letting go of expectations, and giving ourselves permission to create spaces that support who we are now.And, of course, Claire shares practical tips for making your home more accessible and functional without spending a fortune or trying to make everything perfect.This is a conversation about decluttering, but it’s really about so much more: self-compassion, acceptance, conserving your spoons, and making room for the life you have now.Find Claire and The Uncluttered Soul at https://www.theunclutteredsoul.co/or email: [email protected] up for a free discovery call online!Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your entire order.Just a quick reminder—everything shared here is based on personal experiences.Please consult your doctor for your own care.

What if pain isn’t something to battle… but something to understand?In this deeply honest conversation, Rachel sits down with author and creator Lorraine Ansell, whose lifelong journey with hypermobile Ehlers‑Danlos syndrome reshaped everything she thought she knew about pain, pacing, and self‑compassion. Together, they explore what it means to surrender—not as giving up, but as learning to listen to the body’s cues with curiosity instead of resistance.Lorraine shares how creativity became her anchor, a place where her mind could rest and her pain could soften. From crafting and writing to redefining daily rhythms, she offers gentle, practical ways to move through chronic pain without losing yourself in it.If you’ve ever wished for “just five minutes without pain,” or wondered how to live a full, meaningful life in a body that hurts, this episode will feel like a deep exhale.Topics we explore:Recognizing pain when it’s been your “normal” since childhoodWhy fighting pain often makes it louderThe power of surrender and self‑awarenessCreativity as regulation, expression, and reliefPacing, planning, and honoring your body’s rhythmsFinding humor, softness, and joy in the midst of chronic illnessFollow Lorraine on Instagram and TikTok at @livinglavoiceart, and find her book The Surrender Agenda on Amazon at: https://a.co/d/0bJslgBTFollow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠Just a quick reminder—everything shared here is based on personal experiences.Please consult your doctor for your own care.

100 episodes. Thousands of conversations. One incredible community.We can hardly believe it—The SpoonFull Show (& SpoonFull of Strength) has reached 100 episodes!In this special celebration, Rachel and returning co-host Tina look back on where it all began, from wondering if anyone would listen to building a community that has connected Spoonies around the world.Throughout the episode, you'll hear heartfelt messages from former guests who have shared their journeys of chronic illness, disability, caregiving, advocacy, and resilience over the past two years. Together, we reflect on some of our favorite behind-the-scenes memories, the biggest lessons we've learned, a few rapid-fire questions (including dream guests and biggest fears!), and what the future may hold for the podcast.More than anything, this episode is a celebration of you, our listeners. Whether you've been with us since Episode 1 or you're joining us for the very first time, thank you for allowing us to be part of your journey.If there's one message we hope you take away from these first 100 episodes, it's this:You are never alone.Thank you for saving some spoons to celebrate this milestone with us. Here's to the next 100 episodes.Big thanks to our Spoonies who sent in messages. Give them a follow on Instagram here: Brenda Snow: https://www.instagram.com/brendalynettesnow/Rebecca: https://www.instagram.com/aka.invis_able/Mayra: https://www.instagram.com/ms_tink_a_bility/Nicole: https://www.instagram.com/gastroparesisawareness2024/Steven: https://www.instagram.com/steven_lopez_advocates/Christina: https://www.instagram.com/therunciblespoonie/Jenny: https://www.instagram.com/lifesapolyp/Maggie: https://www.instagram.com/authormaggiebushway/Karin: https://www.instagram.com/unseenyetunstoppable/Diana: https://www.instagram.com/knowingbetter.livingbetter/Emily: https://www.instagram.com/ems.stroke.of.lightning/Christie: https://www.instagram.com/christiesproba/Kait: https://www.instagram.com/alignedk8/Miranda: https://www.instagram.com/undefinedbypots/Kimberley: https://www.instagram.com/kj5mccarthy/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠Just a quick reminder—everything shared here is based on personal experiences.Please consult your doctor for your own care.

When you're living with chronic illness, appointments are short, specialists are booked months out, and it's easy to leave with more questions than answers.In this Spoonie Chat, Rachel and Tina explore how AI tools like ChatGPT are changing the way patients navigate their health. They share how they've used AI to understand confusing lab results, organize years of medical information, prepare for appointments, summarize complex research, and become stronger advocates for themselves.But they also have an honest conversation about the risks. Where should AI fit into your healthcare? When can it be helpful, and when should you put your phone down and call your doctor—or seek emergency care?This episode isn't about replacing medical professionals. It's about using technology wisely to fill the gaps, ask better questions, and feel more informed along the way.If you've ever opened ChatGPT after a doctor's appointment because you still had questions, this conversation is for you.Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠Just a quick reminder—everything shared here is based on personal experiences.Please consult your doctor for your own care.

What happens when your body whispers… then nudges… then finally screams for you to slow down?In this powerful and deeply relatable conversation, author and chronic illness advocate Michele Roys shares the moments her body tried to get her attention — and the years she spent pushing through anyway.From high‑achiever life on four continents to being bedridden with trigeminal neuralgia, fibromyalgia, and Lyme disease, Michele opens up about the grief, denial, and internal negotiations so many of us know too well. Her story is raw, honest, and full of the kind of self‑compassion we all need more of.We talk about:• The emotional weight of hearing “but you look fine”• The tug‑of‑war moment that changed everything• Why slowing down can feel dangerous for high achievers• The guilt, grief, and identity loss that come with chronic illness• How pacing becomes self‑respect instead of restriction• Reframing rest, energy, and the stories we tell ourselves• Learning to listen to your body after years of ignoring itMichele’s journey is a reminder that healing isn’t about going back to who you were — it’s about learning to love the version of you that exists now.If you’ve ever pushed through pain, ignored warning signs, or felt guilty for resting, this episode will feel like a deep exhale.Michelle's website (To find her book and Podcast links):https://www.micheleroys.com/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your total order.

What if your autoimmune symptoms aren’t your body breaking down — but your body trying to protect you?In this eye‑opening conversation, integrative physician Dr. Brendan McLaughlin, author of The Autoimmune Revival, explains why so many people with autoimmune disease feel stuck in exhaustion, inflammation, and flare cycles… even when they’re “resting.”We explore:• How chronic stress and fight‑or‑flight disrupt the immune system• Why autoimmune disease is rising — and why people often collect multiple diagnoses• The difference between rest and true restoration • Why symptoms are messages, not failures• The role of circadian rhythm, light exposure, and nervous system regulation• What needs to happen before detoxing or treating root causes• How to rebuild trust with your body after years of dismissal or misdiagnosisDr. Brendan blends clinical insight with lived experience, offering a hopeful, compassionate look at what’s possible when we stop suppressing symptoms and start understanding them.If you’ve ever felt dismissed, overwhelmed, or trapped in survival mode, this episode will help you feel seen — and remind you that your body is not the enemy.Follow Dr McLaughlin's work at https://aquarianhealthsolutions.com/and here on Substack: https://substack.com/@drbmclaughlin?utm_source=top_searchDr. McLaughlin's Podcast, Aquarian Insights: https://open.spotify.com/show/5mwNisAWDDgMKjOh23l4Up?si=1de1ac66e7504f73Find Dr. McLaughlin's book here: https://a.co/d/0bIdYQONFollow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your total order.

Living with a chronic illness doesn’t just cost energy ...it costs money, stability, and sometimes even the life you once imagined. In this week’s episode, Rachel and Tina open up about the financial burden of chronic illness: the bills no one warns you about, the insurance hoops, the lifestyle changes you never wanted to make, and the emotional weight of feeling like a financial burden on your family.From navigating disability benefits to stretching prescriptions, from moving homes for accessibility to choosing between groceries and medical care, this conversation is honest, validating, and full of practical tips. Rachel and Tina also share resources, assistance programs, and small strategies that can make a big difference when money and health collide.If you’ve ever felt alone in the financial side of chronic illness, this episode will make you feel seen and supported.Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠

What if the answers you’ve been searching for finally arrived after nearly two decades? In this inspiring conversation, Rachel sits down with author Rachel Weaver to explore her eighteen‑year journey of constant dizziness, and the unexpected path that led her toward healing.Together, they talk about the long stretch of uncertainty, the courage it takes to keep trying when nothing makes sense, and the small sparks of hope that carried Rachel forward. She shares how writing her memoir Dizzy helped her make meaning out of years of symptoms, isolation, and trial‑and‑error, and how a surprising discovery about glucose regulation ultimately transformed her life.This episode is a reminder that even when the road feels endless, breakthroughs can come from the most unexpected places. If you’re searching for answers, holding onto hope, or simply trying to make each day a little more livable, this conversation will meet you right where you are.Follow Rachel Weaver On her website: Rachelweaver.netFind her book on her website or online at: https://a.co/d/0eJ6eNeoFollow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your total order.Just a quick reminder—everything shared here is based on personal experiences. Please consult your doctor for your own care.

This week on The SpoonFull Show, Rachel sits down with licensed clinical professional counselor Julsey Roach, founder of Capon Counseling, for a powerful conversation about medical gaslighting, chronic illness, and the toxic pressure to “heal before living.” Drawing from both her professional work and personal experience navigating conditions including EDS, Lyme disease, Crohn’s, POTS, and a brain cyst, Julsey shares what it’s really like to constantly be dismissed, doubted, and told symptoms are “all in your head.”Together, Rachel and Julsey explore the emotional toll of not being believed, how medical trauma can impact self-trust, and why so many women begin putting their lives on hold while searching for answers. They also discuss practical ways to advocate for yourself in medical settings, rebuild confidence in your own body, and begin finding purpose and joy even while living with chronic illness.If you’ve ever questioned yourself, felt dismissed by doctors, or struggled with the feeling that you need to “get better” before you can truly live, this episode is for you.Follow Julsey Roach and find free resources here: website: https://www.caponcounseling.com/Instagram: https://www.instagram.com/caponcounseling/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠⁠https://spoonfullofstrength.etsy.com⁠⁠Use code PODCAST for 30% off your total order.Just a quick reminder—everything shared here is based on personal experiences. Please consult your doctor for your own care.

In this heartfelt episode of The SpoonFull Show, Rachel welcomes back former co-host and fellow Spoonie, Tina, for an honest conversation about the connection between pets and healing. Together, they share personal stories about the animals who have supported them through chronic illness, cancer, anxiety, grief, and the emotional ups and downs of daily life. From dogs sensing panic attacks before they happen to the comfort of unconditional love on difficult days, Rachel and Tina explore how pets can provide emotional support, purpose, routine, and companionship when we need it most. They also talk openly about the harder side of pet ownership, including financial stress, caregiving challenges, and the heartbreak of losing a beloved pet. Whether your pet has been your comfort during flare days, your motivation to keep going, or simply your quiet companion through life’s hardest moments, this episode is a reminder that healing sometimes comes with four legs and a wagging tail. 🐾Follow Tina on Instagram at: https://www.instagram.com/tina_h311/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.com⁠Use code PODCAST for 30% off your total order.Just a quick reminder—everything shared here is based on personal experiences. Please consult your doctor for your own care.

What happens when you finally start getting “better”… but emotionally, you still don’t feel okay?In this episode of The SpoonFull Show, Rachel sits down with patient advocate, health coach, and bestselling author Amy Kurtz to talk about her powerful new book, But You Look Fine: Trapped in the Hell Between Sick and Well and How to Break Free.Amy shares her experience navigating chronic illness, medical trauma, nervous system dysregulation, and the emotional aftermath that can come with healing. Together, they discuss the pressure to be the “good patient,” learning to work with your doctors instead of abandoning your own intuition, and how trauma can disconnect us from our bodies and sense of self.They also explore:The “Shadowlands” between sick and wellMasking and people-pleasing in chronic illnessNervous system responses to traumaSelf-compassion and rebuilding trust with yourselfMeditation, sound healing, and nervous system regulationWhy healing isn’t about becoming the “old you” againThis is an honest, validating conversation for anyone living with chronic illness, autoimmune disease, chronic fatigue, medical gaslighting, or the emotional weight of surviving in a body that’s been through a lot.Find out more about Amy and pick up a copy of her book at https://amykurtz.com/Follow Amy on social media at:Instagram: https://www.instagram.com/_amykurtz/Follow SpoonFull of Strength to see podcast clips and release info at:Instagram: https://www.instagram.com/spoonfullofstrength/TikTok: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness apparel? Check out The SpoonFull Shop at https://spoonfullofstrength.etsy.comUse code PODCAST for 30% off your total order.Just a quick reminder—everything shared here is based on personal experiences. Please consult your doctor for your own care.00:00 Introduction and Excitement for the Book02:17 Amy's Health Journey and First Book04:02 The Discovery of Medical Trauma Brain07:08 Living in the Shadowlands of Chronic Illness10:10 The Disconnect and Masking in Chronic Illness13:14 The Importance of Authenticity in Patient-Doctor Relationships15:45 Building a 50-50 Partnership with Healthcare Providers21:08 Empowering Patient-Doctor Relationships26:28 Navigating the Healing Journey30:48 Understanding Trauma and Chronic Illness35:46 Metaphors of Healing: Riding the Waves of Life44:53 closing.mp4

In this episode of The SpoonFull Show, Rachel sits down with former teacher, speaker, activist, and The Bachelorette star Michelle Young for an honest conversation about navigating life with chronic illness, including POTS and overlapping health struggles.Michelle opens up about the quiet realities of living with chronic illness, the challenges of trying to understand what was happening in her body, and what it’s been like balancing major life moments — including her wedding and honeymoon — while dealing with ongoing health issues behind the scenes.Together, Rachel and Michelle talk about identity shifts, emotional health, learning to slow down, and the parts of chronic illness that people often don’t see.Whether you’re living with POTS, chronic illness, autoimmune disease, invisible illness, or simply trying to understand someone who is, this conversation is a reminder that you are not alone.Find out more about Michelle and her foundation at: https://michelleyoungofficial.com/Follow Michelle on social media:Instagram: https://www.instagram.com/michelleyoung/TikTok: https://www.tiktok.com/@michelleyoungFollow SpoonFull of Strength to see podcast clips and release info at:Instagram: ⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness apparel? Check out The SpoonFull Shop at ⁠https://spoonfullofstrength.etsy.comJust a quick reminder—everything shared here is based on personal experiences. Please consult your doctor for your own care.

In this episode, Rachel is joined by Kelly and Avery, hosts of Wheel Talk, a podcast led by two women living with congenital muscular dystrophy.Together, they explore what it really means to live with a rare disease, how their relationship with their diagnosis has evolved over time, and the powerful shift from viewing disability as a limitation to embracing it as identity.We also dive into the barriers that still exist — socially, medically, and culturally — and what true advocacy looks like in everyday life.Kelly and Avery share the inspiration behind their podcast, the impact they’re already making, and the conversations they’re working to normalize within the disability community.This episode is honest, empowering, and a reminder of the importance of representation, visibility, and lived experience.Wheel Talk With Kelly & Avery Podcast:http://ladieslivingrare.com/wheel-talk-podcasthttps://www.facebook.com/TheWheelTalkPodcast/https://www.instagram.com/thewheeltalkpodcasthttps://www.youtube.com/@TheWheelTalkPodcasthttps://www.tiktok.com/@thewheeltalkpodcreators.spotify.com/pod/show/the-wheel-talk-podcasthttps://podcasts.apple.com/us/podcast/wheel-talk-with-kelly-and-avery-podcast/id1836473324Connect with Kelly Bergerhttps://www.instagram.com/thekellyberger/https://www.facebook.com/thekellyberger/https://www.linkedin.com/in/thekellyberger/Connect with Avery Roberts:https://www.instagram.com/avery.nicole916/https://www.facebook.com/averyroberts916https://www.linkedin.com/in/averyroberts916/Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order.

In this episode of The SpoonFull Show, Rachel is joined by Kimberley for an honest and empowering conversation about navigating medications while living with chronic illness.From decoding side effects to managing multiple prescriptions, they explore the often invisible mental and emotional load that comes with being a “professional patient.” Together, they discuss the turning point where taking medication becomes more than following instructions—it becomes about understanding, questioning, and advocating.This episode dives into:The anxiety and overwhelm of researching medicationsThe balance between being informed and emotionally overloadedPractical lessons every spoonie learns (tracking symptoms, avoiding interactions, navigating insurance)How to advocate with providers and ask the right questionsThe role of chronic illness communities in sharing knowledgeThis episode is a reminder that patients deserve to be informed, heard, and empowered in their care.Follow Kim on Instagram at: https://www.instagram.com/kj5mccarthy/And, on Facebook at: https://www.facebook.com/kim.mccarthy.98Taking a vacation? Contact Kim for assistance, including planning an accessible vacationInstagram: https://www.instagram.com/blueskyandwateradventures/Facebook: https://www.facebook.com/kj5mccarthyOr find her online at : https://kimmccarthy.inteletravel.com/booktravel.cfmFollow SpoonFull of Strength for podcast clips and updates at ⁠https://www.instagram.com/spoonfullofstrength/⁠And on TikTok at: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at ⁠www.spoonfullofstrength.etsy.com⁠ Use code PODCAST for 25% off your entire order.

Gut health is often talked about in the chronic illness space—but rarely explained in a way that actually connects the dots.In this episode, Rachel is joined by Liz Roman, a Board-Certified Functional Nutritional Practitioner specializing in gut health, hormone balance, and autoimmune conditions. After being told her symptoms were “normal” despite dealing with fatigue, brain fog, skin issues, and more, Liz uncovered the root causes of her own health struggles—and now helps others do the same.Together, they explore gut health through the lens of chronic illness, including:Why gut issues are so common in chronic illnessThe connection between the gut and immune systemSymptoms you may not realize are gut-relatedWhy so many people feel stuck and aren’t getting betterThis conversation is both informative and validating—especially for anyone who feels like their symptoms don’t fully make sense or hasn’t found answers yet.If you’ve ever wondered how your gut might be impacting your overall health… this episode is for you.Follow Liz on Instagram at: @thepoopqueen Schedule a free consult with her team: fitmom.co/lizBook labs + review: https://fitmom.co/labs Free Constipation Cure Guide: https://fitmom.co/ccgPodcast - The Health Revival Show: https://open.spotify.com/show/5HUm3k84HHsDNM9FgnBB8J?si=c7f48c1cc9a94225 Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

What does parenting look like when your body doesn’t always cooperate?In this episode, Rachel is joined by Kristina for a real and honest conversation about parenting with chronic illness. Together, they talk about the emotional and physical challenges of raising kids while navigating unpredictable symptoms, low energy, and flare days—and the pressure to still “do it all.”They dive into the invisible load that comes with parenting while sick, the guilt that so many parents carry, and how our expectations of what a “good parent” looks like often have to shift. Kristina shares her experience of learning to communicate openly with her child, asking for help, and finding new ways to show up...even on the hardest days.This episode is a reminder that parenting with chronic illness may look different than you imagined, but that doesn’t make it any less meaningful.If you’ve ever felt like you’re not doing enough… this conversation is for you.Follow Kristina on Instagram at: https://www.instagram.com/kmps95/Follow SpoonFull of Strength for podcast clips and updates at ⁠https://www.instagram.com/spoonfullofstrength/⁠And on TikTok at: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at ⁠www.spoonfullofstrength.etsy.com⁠ Use code PODCAST for 25% off your entire order.

In this episode, Rachel explores what happens when patients are labeled instead of listened to — and why trusting yourself can be one of the most important decisions you make.Rachel is joined by Ali Moresco, Founder of Moresco Public Relations + Communications. She specializes in healthcare PR rooted in lived experience. After navigating her own complex health journey, she now advocates for patients with chronic and often misunderstood conditions. She is known for amplifying patient voices and has secured national media placements in outlets like The New York Times, The Wall Street Journal, and Forbes.Ali shares her journey through unexplained symptoms, medical dismissal, and ultimately, learning to trust her intuition when answers weren’t coming easily. What began as being told “it’s just stress” turned into a much deeper and more complex health story — one that reshaped not only her life, but her career.Together, this conversation dives into medical gaslighting, the challenges many patients face when advocating for themselves, and how those experiences can impact both identity and long-term health. It also explores how Ali has turned her lived experience into meaningful work, helping shift the way healthcare stories are told and ensuring patient voices are not overlooked.Ali Moresco is the Founder of Moresco Public Relations + Communications, where she specializes in healthcare PR rooted in lived experience. After navigating her own complex health journey, she now advocates for patients with chronic and often misunderstood conditions. She is known for amplifying patient voices and has secured national media placements in outlets like The New York Times, The Wall Street Journal, and Forbes.This episode is a reminder that when it comes to your body — you are not wrong.Follow Ali on Instagram at: https://www.instagram.com/alitmoresco/Website: https://www.amorescopr.com/LinkedIn:  https://www.linkedin.com/in/alexandramoresco/Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

What does it really mean to get stronger with chronic illness?In this episode, Rachel is joined by Charu — a mom of two living with autoimmune hepatitis and PBC — to talk about redefining strength in the chronic illness community.Together, they explore:• How the definition of “strength” changes after diagnosis • The balance between pushing forward and knowing when to rest • Starting small with movement — even 10-minute walks • Strength training while managing fatigue and medication side effects • Modifications like chair-based exercises and bodyweight movements • Maintaining strength vs. constantly trying to improve • Flare days, guilt, and learning flexibility • Meditation, body scans, and calming the nervous system when physical movement isn’t accessibleThis conversation is not about pushing harder. It’s about meeting your body where it is and finding sustainable ways to support your physical and mental health.As always, consult your medical provider before starting new exercise routines.Follow Charu on Instagram at: https://www.instagram.com/a.spoonful.0f.joy/If you’re interested in body scan mindfulness exercises, here are a few recommendations from Charu: Spotify: https://open.spotify.com/episode/7mceqGJnxVGWzKBfCSYJR2?si=x4fcSXFdQFCRHk4dKT2B6Q&t=14YouTube: https://youtu.be/3X-_qx9Txto?si=te3Tt3E8C2kbOnzcFollow SpoonFull of Strength for podcast clips and updates at ⁠https://www.instagram.com/spoonfullofstrength/⁠And on TikTok at: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Looking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at ⁠www.spoonfullofstrength.etsy.com⁠ Use code PODCAST for 25% off your entire order.

What does it mean to become disabled after living as an able-bodied person?In this episode, Rachel is joined by author Jackie Norton to talk about her memoir Burden: A Year of Journals from Someone Living with Chronic Illness. After developing long COVID in 2021, Jackie’s life changed dramatically — leading to diagnoses including POTS, dysautonomia, chronic fatigue syndrome, and mast cell activation syndrome.Together, we explore:• The shock of sudden disability• Body grief and identity shifts• People-pleasing and learning to set boundaries• The loneliness of early diagnosis• Building community in chronic illnessThis conversation is honest, validating, and deeply human.If you’ve ever felt like a burden — you are not alone.Follow Jackie on Instagram and TikTok @jackieenortonFind her book here:Amazonhttps://a.co/d/0gSDZjKvBarnes and noblebarnesandnoble.com/w/burden-jackie-norton/1147916190?ean=9798999491305Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

Uncertainty is one of the most challenging parts of living with chronic illness. The unpredictability of flares. The shifting baseline. The progressive questions about the future. The quiet grief that shows up in waves.In this episode of The Spoonful Show, Rachel is joined by Karen Wagner and Chris Burton from the Invisible Strength Podcast to explore what it really means to live alongside uncertainty.Together they discuss:Navigating flares and shifting capacityProgressive illness and “kissing the line” of future changesThe tension between hope and realismGrief that builds in wavesRebuilding self-trustFinding joy in small, intentional momentsWhy you don’t have to do this aloneThis conversation is honest, reflective, and deeply encouraging for anyone learning to live fully without guarantees.Connect with Karin & Chris here:Websites:Invigorate your Journey: https://invigorateyourjourney.com/Join their support group meeting 3/9/26: https://calendly.com/invigorateyourjourney/new-meeting?month=2026-03Guidance & Coaching: https://invigorateyourjourney.com/invigorate-coaching/Invisible Strength Podcast: https://www.youtube.com/channel/UCnb3P3J1K9u_OtofTSO7VDgSocial Media: Instagram: https://www.instagram.com/unseenyetunstoppable/TikTok:https://www.tiktok.com/@unseenyetunstoppableYouTube: https://www.youtube.com/channel/UCnb3P3J1K9u_OtofTSO7VDgFacebook:https://www.facebook.com/people/Invigorate-Your-Journey/100091620060815/LinkedIn:https://www.linkedin.com/company/invigorate-your-journey/Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

When you’re diagnosed with an autoimmune disease, it can feel like your sense of control disappears overnight. In this episode, Rachel is joined by Amy Behimer—Doctor of Pharmacy, nationally board-certified health and wellness coach, and someone living with multiple sclerosis—to talk about how to reclaim agency over your health, even when you can’t control your diagnosis.Together, they explore the difference between managing disease and creating health, why small, supportive habits matter more than perfection, and how redefining health as energy, purpose, and peace can change how you live with chronic illness. This conversation is empowering, compassionate, and a reminder that feeling better can start today—without pressure or overwhelm.Follow Dr. Amy on:Instagram at: https://www.instagram.com/amybehimercoaching/Her Podcast: https://podfollow.com/autoimmune-health-secretsFor coaching, take this quiz to get started!  https://amybehimercoaching.com/quizJoin her Club Habit!: https://amybehimercoaching.com/joinAnd, enter the March challenge at: https://amybehimercoaching.com/challengeFollow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

When chronic illness changes your body, it can also change how you see yourself. In this episode of The SpoonFull of Strength Podcast, Rachel and Kait talk about losing identity after diagnosis — and how meaningful activities can help rebuild purpose, joy, and connection to who you are now.Kait shares how running once defined her identity, how her MMS diagnosis shifted everything, and the grief that came with losing what once brought meaning to her days. Together, they explore what meaningful activities really are (hint: it’s not about productivity), how to modify activities to meet your body where it is, and why finding joy in small, accessible moments can be life-giving.Follow Kait on Instagram at  https://www.instagram.com/alignedk8/Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

What happens to your sense of worth when your body, health, or capacity changes?In this episode, I’m joined by Leisa Wallace, author of The Ultimate Act of Being Enough: Your Guide to Remembering Your Worth When Everything Falls Apart, for a deeply grounding conversation about identity, productivity, and what it means to be enough when life falls apart. After an aggressive-onset multiple sclerosis diagnosis upended her life, Leisa was forced to confront how tightly her worth was tied to achievement and doing — and to reimagine who she was beneath it all.Together, we talk about grief, forced stillness, and the uncomfortable work of separating worth from productivity. Leisa also shares the powerful framework she calls the Value Constellation, a way of understanding identity as made up of intrinsic qualities that remain even when capacity changes.This episode is for anyone navigating chronic illness, burnout, caregiving, or a season where slowing down wasn’t a choice — and for anyone who needs the reminder that worth isn’t something you earn, it’s something you remember.In this episode, we discuss:Living with aggressive-onset multiple sclerosisGrieving the loss of who you thought you’d beWhy productivity is so often tied to self-worthThe concept of the Value ConstellationLearning to be instead of proveRemembering your worth when everything feels like it’s falling apart🎧 Listen in for a compassionate, honest conversation about identity, resilience, and being enough — exactly as you are.Follow Lisa on Instagram at https://www.instagram.com/chronically.thriving.leisa/Find her book, The Ultimate Act of Being Enough, here:  https://a.co/d/9Juy4JxFollow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

This is the first episode of a new season of The SpoonFull Show, and Rachel is joined by author and patient advocate Tilly Rose as a special guest co-host for a powerful conversation about the cost of being a medical mystery.Together, they explore what it truly means to spend years searching for answers—being dismissed, misdiagnosed, and medically gaslit while your body continues to break down. Drawing from Tilly’s memoir Be Patient, the episode pulls back the curtain on the healthcare system and the unseen trauma patients carry long after hospital stays end.Rachel and Tilly talk openly about the emotional toll of not being believed, the loss of trust in medical systems, the physical consequences of delayed diagnosis, and how patients are often forced to become their own advocates just to survive. They also discuss the grief and relief that come with finally receiving a diagnosis, the identity shifts that follow, and why patient stories are essential in pushing healthcare toward real change.This episode is for anyone who has ever felt unheard, overlooked, or labeled “too complicated”—and for those who want to better understand what patients endure behind the scenes.Follow Tilly’s journey on Instagram at https://www.instagram.com/thattillyrose/Find Tilly’s book wherever books are sold. Purchase through Blackwells and receive FREE international shipping. Purchase here: https://blackwells.co.uk/bookshop/product/9781780726229Follow SpoonFull of Strength for podcast clips and updates at https://www.instagram.com/spoonfullofstrength/And on TikTok at: https://www.tiktok.com/@spoonfull.of.strengthLooking for chronic illness merch? Visit SpoonFull of Strength’s Etsy shop at www.spoonfullofstrength.etsy.com Use code PODCAST for 25% off your entire order. 

What if your body isn’t broken — but responding exactly as it was designed to?In this episode of The SpoonFull Show, Rachel is joined by Dana Hargis, a trauma-informed therapist and educator who helps people understand the deep connection between trauma, the nervous system, and chronic illness. Together, they explore why so many spoonies feel stuck in survival mode — and why rest, safety, and slowing down can feel so uncomfortable, even when our bodies desperately need it.This conversation dives into how trauma lives in the nervous system, how chronic illness can amplify nervous system dysregulation, and why symptoms are often signals rather than failures. Dana shares compassionate insight into how our bodies are constantly trying to protect us, even when it feels like they’re working against us.In this episode, Rachel and Dana discuss:How trauma impacts the nervous system over timeWhy rest can feel unsafe for people with chronic illnessThe link between emotional overwhelm and physical symptomsWhat nervous system regulation actually looks like (and what it doesn’t)Gentle ways to begin rebuilding trust with your bodyDana brings both clinical expertise and deep compassion to this conversation, offering a trauma-informed lens that validates the lived experience of chronic illness without pushing “fixing” or toxic positivity.To learn more about Dana’s work, visit Restore of Ada at RestoreofAda.com. Restore of Ada is a trauma-informed therapy practice dedicated to helping individuals reconnect with their bodies, regulate their nervous systems, and heal in a way that feels safe, compassionate, and sustainable.If you’ve ever felt frustrated with your body, confused by your symptoms, or guilty for needing rest — this episode is for you. Healing doesn’t mean pushing harder. Sometimes, it starts with understanding what your nervous system has been carrying all along.You can find this podcast on Spotify, Apple, Amazon Music, IHeart Radio and YouTubeFollow SpoonFull of Strength at:Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok:⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Use code PODCAST for 25% off your entire order

Living with chronic or mental illness can feel incredibly isolating — but the truth is, illness doesn’t just affect the person diagnosed. It impacts families, relationships, and the people who love us, often in ways no one is prepared for.In this episode, Rachel is joined by Michelle Sherman, licensed clinical psychologist and expert in family systems and mental illness, for an honest and compassionate conversation about the shared experience of illness. Together, they explore what it’s like to live with mental illness while also navigating the emotional responses, misunderstandings, and challenges that arise within families.This conversation bridges both perspectives — the person living with illness and the loved ones trying to support them — offering insight, validation, and practical tools for better communication, healthier boundaries, and deeper empathy on all sides.Whether you’re managing illness yourself or struggling to feel understood by the people closest to you, this episode is a reminder that healing doesn’t have to happen alone.In this episode, we discuss:Why illness creates emotional ripple effects within familiesWhat to do when loved ones don’t understand or believe your illnessHow guilt, frustration, and grief show up on both sidesSetting boundaries while maintaining connectionFinding compassion — for others and for yourselfThis episode is for anyone navigating the complicated space between loving someone and being the one who needs love.Follow Michelle at https://www.instagram.com/michelle_sherm/Her website: https://www.seedsofhopebooks.com/You can find her books and great resources for families.Follow SpoonFull of Strength at:Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠⁠Use code PODCAST for 25% off your entire order

In this episode, Rachel sits down with therapist, educator, and author Tammy Gangloff, whose work bridges chronic illness, trauma, eating disorders, and lived experience. Tammy shares her personal story of growing up with scoliosis, undergoing multiple spine surgeries, and navigating years of recovery from an eating disorder, alcoholism, and PTSD.What began as a simple survey on social media became meaningful research, professional training presentations, and ultimately her new book—highlighting the mental and emotional layers of chronic illness that are so often overlooked.Their conversation explores the turning points in Tammy’s mental health journey, including her decision to seek inpatient treatment when PTSD became unmanageable. She opens up about the role of talk therapy, EMDR, safe relationships, and the rare but life-changing impact of seeing someone fully recovered.Together, they unpack the struggle between independence and needing help, redefining interdependence as a healthy, human way of surviving the unpredictable reality of chronic illness.Tammy also shares vital insight into medical PTSD—why it’s so common, why it’s so misunderstood, and what she wishes doctors and medical professionals knew about the patients who walk into their rooms already carrying fear, exhaustion, and past trauma.A powerful, validating conversation for anyone living with chronic illness, supporting someone who is, or working in healthcare.Follow Tamie on Instagram at: https://www.instagram.com/authortamiegangloff/Find Tamie's book, Chronic Illness and Eating Disorders: Assessment, Clinical Skills, and Lived Experiences, here:https://a.co/d/0wV7XCaFollow SpoonFull of Strength at:Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok:⁠ ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠Use code PODCAST for 25% off your entire order

In this episode of The SpoonFull Show, Rachel is joined by Melissa, a registered nurse with over three decades of experience in women’s health and autoimmune conditions. Together, they dive into the often-overlooked relationship between hormones and chronic illness — how stress, cortisol, thyroid function, and even basic nutrient absorption can shift the way Spoonies feel day to day. Melissa breaks down why hormones are the body’s chemical messengers, why they matter long before menopause, and how issues like insulin resistance, thyroid dysfunction, and cortisol dysregulation can hide behind chronic symptoms. She also opens up about her own journey with Hashimoto’s, the importance of comprehensive testing, and why understanding your “baseline” numbers can be a game changer for long-term health. The conversation also touches on perimenopause in younger women, the role of nutrition, and the power of having a supportive community — including Melissa’s own Menopause Skool platform.  It’s a wonderful Facebook-like community for women to learn and support each other. All ages are welcome. It’s an empowering, eye-opening discussion designed to help Spoonies advocate for themselves and better understand what their bodies are trying to say.Enroll in Melissa’s Skool here ( It’s a wonderful Facebook-like community for women to learn and support each other. All ages are welcome.)https://www.skool.com/navigating-through-your-pause/aboutFollow Melissa on Instagram at: https://www.instagram.com/melissa_thyroid_rn/Follow SpoonFull of Strength at:Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠Use code PODCAST for 25% off your entire order

In this powerful episode of SpoonFull of Strength, Rachel sits down with Dr. Jenny Tufenkian, a naturopathic physician with decades of experience treating complex chronic illness, and someone who has personally survived multiple severe crashes of ME/CFS, long COVID, and hormone-triggered fatigue.Dr. Jenny opens up about her early health struggles, a devastating medical-school crash that left her bedridden for months, the emotional and spiritual breakdown that followed, and the remarkable healing that came from subconscious work, hypnotherapy, and rebuilding her body from the inside out. She also explains what happened when she relapsed years later during perimenopause, and again after COVID, and how those experiences shaped the work she does today.Together, we explore:• The 5 core energy drainers (root causes of chronic fatigue)• How stress and the hormone triangle (adrenals, thyroid, ovaries/testes) create the “gateway” to chronic illness• Why viral reactivation happens (EBV, parvovirus, and more) — especially after stress or infection• The role of the gut, mitochondria, toxins, and immune dysregulation• What long COVID teaches us about ME/CFS• The unexpected power of subconscious healing, hypnotherapy, and emotional release• How to honor your body when you’re in a crash — and why relapses don’t mean failure• What true remission looks like, and how to protect itIf you’ve struggled with chronic fatigue, long COVID, ME/CFS, or unexplained exhaustion, this episode offers validation, clarity, and hope — plus practical places to start.Learn more or apply to work with Dr. Jenny at drjennyteufenkian.com.Follow Dr Jenny on Instagram at: https://www.instagram.com/dr.jennytufenkian/Follow SpoonFull of Strength at: Instagram:⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠TikTok: ⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠Use code PODCAST for 25% off your entire order

In this Spoonie Chats episode, Rachel is joined by Christina Lisk, one of the top-downloaded guests from episode 6 of the SpoonFull of Strength podcast.Christina shares big updates since her first appearance: her ovarian vein transposition surgery has now been declared a success, and she’s received formal diagnoses of hypermobile Ehlers-Danlos Syndrome (hEDS) and POTS. What once felt like “bad luck” running through generations is now understood as genetics—and that shift changes everything about how she sees her past, her body, and her future.Together, Rachel and Christina explore what it means to live a life that feels split into “before diagnosis” and “after diagnosis.” They talk about:The shock of a diagnosis that shatters your story overnightWhen your body slows down but your mind is still go-go-goRedefining success after you can’t work the way you used toLearning to ask for help and respect your limits (instead of self-abandoning for productivity)Advocating with doctors, using research wisely, and getting clear on what you want from your careChristina’s powerful concept of “catastrophic reconstruction”—rebuilding your identity after everything you believed about yourself breaksIf you’re still in the “before” phase—searching for answers, feeling gaslit, or terrified of what a diagnosis might mean—or if you’re trying to figure out who you are after everything changed, this conversation will make you feel seen.What’s one way you’ve changed—for better or for harder—since your diagnosis?Follow Christina on Instagram at https://www.instagram.com/therunciblespoonie/Find her collaborative book here: https://www.walmart.com/ip/Seasons-of-Sisterhood-The-Magic-of-Our-Journey-to-Cameroon-Paperback-9781957296395/14151274823?wmlspartner=wlpa&selectedSellerId=0&adid=2222222229214151274823_0_0000000000_569516217&wmlspartner=wmtlabs&wl0=e&wl1=o&wl2=c&wl3=72843111714422&wl4=pla-2324642460507122%3Aaud-815770365&wl5=49079&wl6=&wl7=&wl10=Walmart&wl11=Online&wl12=14151274823_0&wl14=seasons+of+the+sisterhood+book&veh=sem&gclid=a35792ca181f1ca827dafbd6980e9b57&gclsrc=3p.ds&msclkid=a35792ca181f1ca827dafbd6980e9b57&sid=125a186c-449c-43ad-b2c5-7a7dcbab99c1 Follow SpoonFull of Strength at: Instagram:⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠TikTok: ⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠Use code PODCAST for 20% off your entire order

What happens to love when illness enters a relationship?In this episode of The SpoonFull Show, Rachel sits down with Lisa Gray, LMFT, author of Thriving in a Relationship When You Have a Chronic Illness: An ACT-Based Guide for Protecting Your Bond at Each Stage of the Journey.Lisa is a licensed marriage and family therapist who helps couples navigate the challenges that come with chronic illness, loss, and changing roles — using an Acceptance and Commitment Therapy (ACT) approach that focuses on connection, values, and emotional resilience.Although Lisa’s book applies to any type of relationship, today’s conversation focuses on marriage — how illness can shift communication, identity, and expectations, and how couples can protect their bond through it all.Whether you’re the partner living with illness or the one loving and supporting through it, this episode offers practical insight and hope for staying connected when life gets hard.Find Lisa's books here: https://lisagrayauthor.com/booksor wherever books are soldConnect with Lisa online at:Author Website: https://www.lisagrayauthor.com/Therapy Website: www.lisagraymft.comInstagram: https://www.instagram.com/lisagraymft/Join her Instagram page where she reviews books at https://www.instagram.com/therapybooknook/Twitter: gray_therapyThreads: lisagraymftBlue Sky: @gray-therapy.bsky.socialFollow SpoonFull of Strength at: Instagram:⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠TikTok: ⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠Use code PODCAST for 20% off your entire order

⚠️ Content Warning:This episode discusses mental health and suicide. Listener discretion advised.In this deeply personal episode, Steven joins Rachel to share his powerful story of finding light after living through his darkest days. After a suicide attempt, Steven began a journey of healing...one that led him to rediscover purpose, connection, and the strength to speak out for others facing similar battles.Today, he’s using his voice to remind people struggling with mental illness and chronic conditions that they are never alone. Together, Rachel and Steven talk about the intersection of physical and mental health, what recovery truly looks like, and the courage it takes to reach out for help.This episode is a message of hope — proof that even in the deepest pain, healing and purpose can still grow.If you or someone you know is struggling:📞 Call or text 988 to reach the Suicide and Crisis Lifeline (available 24/7, free, and confidential).💬 Text HOME to 741741 to connect with the Crisis Text Line anytime.Follow Steven's journey onInstagram https://www.instagram.com/steven_chiari_warrior/TikTok: https://www.tiktok.com/@steven_chiari_warrior?lang=enFollow SpoonFull of Strength at: Instagram:⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠TikTok: ⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠Use code PODCAST for 20% off your entire order

Living with chronic illness often means living with fatigue. Yet sleep, the very thing our bodies crave most, can feel impossible to find. In this episode, Rachel sits down with Dr. Sarah Silverman, a Stanford-trained sleep psychologist and insomnia expert, to unpack the science and struggle of sleep when you’re chronically ill.Dr. Sarah has been published in reputable scientific journals, including Sleep Health: Journal of the National Sleep Foundation, and her expertise has been featured in major outlets such as HuffPost, MindBodyGreen, Women’s Health, Prevention, Well+Good, and Oprah Daily. She currently serves as a sleep expert on the Sleep Foundation’s Health & Community Advisory Board and believes that quality sleep isn’t a luxury...it’s a basic human need.Together, Rachel and Dr. Sarah explore: Why sleep is often disrupted in chronic illness How circadian rhythms affect healing and energy The impact of medications on sleep quality Small, realistic changes that can improve rest Why rest isn’t lazy, it’s essentialIf you’ve ever felt “tired of being tired,” this conversation will leave you feeling validated, understood, and equipped with tools to finally reclaim your rest, one spoon at a time.To find a local sleep psychologist or insomnia / CBT-I specialist near you, visit the Society of Behavioral Sleep Medicine (SBSM)  and search based on your state.  https://behavioralsleep.org/index.php/united-states-sbsm-membersTo find a local sleep medicine physician or sleep center near you, visit the American Academy of Sleep Medicine (AASM)  and search with your zip code. https://sleepeducation.org/sleep-center/Follow Dr Sarah here:Instagram: https://www.instagram.com/drsarahsleep/Through her website" https://www.drsarahsleep.com/Follow SpoonFull of Strength at: Instagram:⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠TikTok: ⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠Use code PODCAST for 20% off your entire order

In this episode, Rachel sits down with returning guest Karissa Fox to talk about what healing really looks like when you live with chronic illness.Together, they explore what longevity healing means for people with chronic conditions. From holistic and naturopathic medicine to nutrition, supplements, and daily habits that support the body over time. They also get honest about the cost and accessibility of alternative care, the difference between managing and truly healing, and how to find balance between what’s realistic and what’s ideal.Rachel and Karissa share their own experiences with trial and error, self-advocacy, and learning that healing isn’t always about doing more , sometimes it’s about doing less with intention.If you’ve ever wondered how to support your body without breaking the bank or burning out, this episode will remind you that healing is personal. And it doesn’t have to look perfect to be powerful.Follow Karissa at Instagram: ⁠ https://www.instagram.com/chronically_karissa/Karissa has shared some of her resources, which can be found here: https://benable.com/ChronicallyKarissaFollow SpoonFull of Strength at: Instagram:⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠Shop SpoonFull's Etsy shop at: ⁠⁠SpoonFullofStrength.etsy.com⁠⁠Use code PODCAST for 20% off your entire order

In this Spoonie Insight episode of The SpoonFull Show, Rachel sits down with Brenda Snow , a 30-year Multiple Sclerosis patient, author, and founder of Snow Companies, a global leader in patient engagement. Brenda turned her personal journey with chronic illness into a movement that empowers patients and caregivers to share their stories and find strength through connection.Together, they talk about the ups and downs of life with chronic illness, not just at diagnosis, but in the years that follow. Brenda opens up about the stages of grief that come with illness, the importance of caring for the caregiver, and how our relationships and identities evolve over time.Her new book, Diagnosed: The Essential Guide to Navigating the Patient Journey, offers a powerful roadmap for patients and care partners alike — showing that while illness may change your life, it doesn’t have to define it.Buy Brenda's book here: https://www.amazon.com/Diagnosed-Essential-Navigating-Patients-Journey/dp/B0DMGMH67C/ref=sr_1_1?crid=39HZGFRJ7IQMJ&dib=eyJ2IjoiMSJ9.ai1nxlCsHYohsKEZ2rqmWQ.qH5qDgnT8iQlK0gD5e1gHQnFhNYPqpxnctv7Qs4tKXk&dib_tag=se&keywords=brenda+snow+book+diagnosed&qid=1760134761&sprefix=%2Caps%2C161&sr=8-1Follow Brenda at Email: [email protected]: https://www.instagram.com/brendalynettesnow/Follow SpoonFull of Strength at: Instagram:⁠https://www.instagram.com/spoonfullofstrength/⁠TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠Shop SpoonFull's Etsy shop at: ⁠SpoonFullofStrength.etsy.com⁠Use code PODCAST for 20% off your entire order

In this Spoonie Chats episode, Rachel is joined by Spoonie co-host Em, who had a stroke at just 26 years old and is now living with lasting deficits on one side of her body. Together, we dive into what it’s like to face mobility challenges at a young age — from the self-consciousness of using handicap parking, to the importance of setting boundaries for your health, to the daily realities of living in a body that feels “older” than you are. This is an open and relatable conversation about resilience, self-acceptance, and the strength it takes to keep moving forward.Listen to Em's story on The SpoonFull of Strengths podcast here: https://open.spotify.com/episode/6njNL5XgwGRTqO1u8EgO1B?si=Q0VtwEYzSwiSZoLah_9u6QFollow Em's journey on Instagram at: https://www.instagram.com/ems.stroke.of.lightning/Follow SpoonFull of Strength at: Instagram:https://www.instagram.com/spoonfullofstrength/TikTok: https://www.tiktok.com/@spoonfull.of.strengthShop SpoonFull's Etsy shop at: SpoonFullofStrength.etsy.comUse code PODCAST for 20% off your entire order

Welcome to The SpoonFull Show! Formerly known as SpoonFull of Strength, this podcast is here to share real Spoonie stories and insights for life with chronic illness. In this preview episode, I re-introduce myself, give you a glimpse of what to expect this season, and tease some exciting episodes ahead. Whether you’re a longtime listener or brand new, I’m so glad you’re here—let’s take this journey together, one spoon at a time.Follow SpoonFull of Strength on Instagram at: https://www.instagram.com/spoonfullofstrength/And, on Tik-Tok at: https://www.tiktok.com/@spoonfull.of.strength

✨ Big news, Spoonies! ✨ The SpoonFull Show is back with a brand-new season. Formerly SpoonFull of Strength, the show is hosted by Rachel, who lives with MS and Type 1 Diabetes. This season brings even more real Spoonie stories, powerful conversations, and expert insights about chronic illness, advocacy, and hope. Hit follow so you don’t miss an episode!

It’s the final episode of Season 4 of SpoonFull of Strength! In this two-part episode, Rachel opens solo while Tina is out sick to share an honest conversation about finding the Spoonie Balance. She dives into the hard choices that come with putting your health first, the guilt and fear of letting others down, and the moment she realized she needed to step back from certain commitments.In part two, Rachel and Tina sit down with Sarah Michelle Boes, MSN, APRN, FNP-BC—Founder of Sarah Michelle NP Reviews, Chief Nursing Officer at Blueprint Test Prep, and board member for Conquering CHD—to talk about her powerful journey of advocacy. Sarah shares how she received the life-changing news of her daughter Meadow’s heart condition just weeks before giving birth, and how that experience fuels her mission to improve care for children with congenital heart defects.Stay tuned until the end of the episode for a special announcement that will change SpoonFull forever. Thank you for joining us throughout Season 4—we’re so grateful for this community and can’t wait to share even more inspiring stories and conversations going forward!Follow Sarah and Meadow on Instagram at : https://www.instagram.com/sarahmichellenp/Find more information on Sarah visit:https://sarahmichelleboes.com/Come join SpoonFull of Strength's Instagram page here:⁠https://www.instagram.com/spoonfullofstrength/⁠This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠⁠⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠⁠⁠Get 15% off at Spicey by clicking here:⁠⁠⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠

In this two-part episode of SpoonFull of Strength, Rachel and Tina dive into the tricky question: “How do you explain a good day without invalidating your illness?” Together, they share how they navigate the everyday “How are you?” question, what boundaries they’ve learned to set, and how to protect their energy when others aren’t truly invested in the answer.In Part 2, we welcome Zach, a Spoonie and paraplegic whose life was forever changed after a motor vehicle accident. Zach walks us through the crash that reshaped his world and how he has transformed that experience into powerful advocacy for disability rights, accessible healthcare, and gun violence prevention. Beyond advocacy, Zach is a passionate adaptive athlete—competing in wheelchair tennis and football—and proving that sports can be both healing and empowering. His story is one of resilience, honesty, and turning pain into purpose.This episode is a reminder that chronic illness and disability don’t erase joy, strength, or purpose—they redefine it. We hope Zach’s story inspires you to find your own voice, honor your limits, and know that your journey matters, both on the hard days and the good ones.Follow Zach's story here:https://www.instagram.com/thestrategicparaplegic/Come join SpoonFull of Strength's Instagram page here:https://www.instagram.com/spoonfullofstrength/This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠⁠Get 15% off at Spicey by clicking here:⁠⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠

In this two-part episode of the SpoonFull Podcast, Rachel and Tina dive into Kicking Sick: Your Go-To Guide for Thriving with Chronic Illness by Amy Kurtz—a book we loved so much, we just had to share our favorite takeaways with you. In Part 1, we discuss the moments, lessons, and insights from the book that resonated with us the most. This book covers everything from self care, to being your own advocate, from food to social situations. We can' t recommend this book enough. Then, in Part 2, we welcome Amy herself—patient advocate, health coach, and bestselling author—who has lived with autoimmune disorders, thyroid disease, and late-stage Lyme. She shares her personal journey, the inspiration behind Kicking Sick, and the empowering message she hopes every reader carries with them.Buy Kicking Sick here:https://www.amazon.com/Kicking-Sick-Go--Thriving-Conditions/dp/1622036654Follow Amy here:https://amykurtz.com/https://www.instagram.com/_amykurtz/Don't forget to follow SpoonFull of Strength on Instagram here:https://www.instagram.com/spoonfullofstrength/This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠Get 15% off at Spicey by clicking here:⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠

Join our SpoonFull Instagram page at: https://www.instagram.com/spoonfullofstrength/In Part 1 of this uplifting episode, Rachel and Tina dive into the question, “What’s the greatest gift you’ve given your body?” From the power of positive self-talk to the importance of setting boundaries, they explore how grace, affirmations, and compassion can help us better care for ourselves—especially while living with chronic illness.In Part 2, we welcome rare disease advocate Jenny, the founder of Life’s a Polyp. Jenny shares her powerful journey with Familial Adenomatous Polyposis (FAP), Short Bowel Syndrome, and medical PTSD after surviving eight surgeries and living with an ileostomy for six years. She opens up about how she turned her pain into purpose—creating a children’s book, launching the NORD FAP Research Fund, and raising awareness through her advocacy shop. Her story is one of fierce resilience, community-building, and hope.Go to https://www.lifesapolyp.com/ to find Jenny's podcast, shop and important information on Life's a Polyp.Check out Jenny's children's book, Life's a Polyp: with Zeke and Katie here: https://www.amazon.com/dp/1946512559?ref=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&ref_=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&social_share=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&bestFormat=true&titleSource=avft-a&previewDoh=1Follow Jenny on Instagram at: https://www.instagram.com/lifesapolyp/This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠⁠https://www.instagram.com/getspicey/⁠⁠Get 15% off at Spicey by clicking here:⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠

In part 1 of this episode, Rachel and Tina dive into the question: Is your mental health being ignored? They share personal experiences, discuss the emotional toll of chronic illness, and explore what needs to change when it comes to integrating mental and physical healthcare.In part 2, we’re joined by Laura, founder of Let’s Talk UTI and the UTI Health Alliance, the only U.S.-based advocacy organization focused on urinary tract infections. Laura shares her nearly 60-year journey with chronic UTIs and how her lived experience inspired her to create a platform to educate, empower, and drive change. She talks about the power of speaking up, finding support through social media, and the urgent need to improve how UTIs are diagnosed and treated.Get more information on UTIs at:https://www.letstalkuti.org/Find Laura on Instagram at:https://www.instagram.com/letstalkuti/And Facebook at:https://www.facebook.com/letstalkutiThis episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠https://www.instagram.com/getspicey/⁠Get 15% off at Spicey by clicking here:⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠

In Part 1 of this episode, Rachel and Tina dive into the question: Who's really in charge of your medical care? From fighting with insurance companies to chasing down referrals and managing a pile of appointments, we explore what it means to be the CEO of your own health—whether you wanted the job or not. We also share tips for advocating for yourself in a system that doesn’t always make it easy.In Part 2, we welcome Claire, a passionate advocate living with vestibular and hemiplegic migraine. Claire shares her long road to diagnosis, how her symptoms challenged expectations—especially since she doesn’t get headaches—and what she wishes more people understood about migraine. Her story is honest, powerful, and proof that chronic illness is never one-size-fits-all.Follow Claire's journey on Instagram at:https://www.instagram.com/the_migraine_leopard/This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠https://www.instagram.com/getspicey/⁠Get 15% off at Spicey by clicking here:⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠

In this two-part episode of SpoonFull of Strength, Rachel and Tina dive into a powerful question: “What makes you feel seen in a world that often doesn’t get it?” Part 1 explores the reality of invisible illness—what it feels like to constantly prove your pain, the emotional toll of feeling unseen, and personal stories that so many in our Spoonie community will relate to.In Part 2, we welcome Jessica Graham—a certified somatic trauma resolution guide, Brainspotting practitioner, meditation teacher, and author of Good Sex: Getting Off Without Checking Out and Being (Sick) Enough: Thoughts on Invisible Illness, Childhood Trauma, and Living Well When Surviving Is Hard. Jess specializes in complex PTSD and post-traumatic growth and has taught internationally at places like the Esalen Institute. Their work has been featured in Women’s Health, GOOP, Bustle, and more, and they appear in The Great Courses’ Masters of Mindfulness. In addition to their therapeutic work, Jess is an award-winning actor, filmmaker, and acting teacher, bringing creativity and deep compassion to everything they do.This episode is for anyone who has ever wondered, Am I sick enough? and for everyone craving validation in a world that doesn’t always understand invisible pain.Buy Jessica's book here: Use code SPOONFULL for 25% off and free shipping!⁠https://www.northatlanticbooks.com/shop/being-sick-enough/Follow Jessica here: https://www.instagram.com/jessicaclarkgraham/https://www.tiktok.com/@jessicaclarkgrahamhttps://substack.com/@jessicagrahamThis episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: https://www.instagram.com/getspicey/Get 15% off at Spicey by clicking here:⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠

In this episode, Rachel and Tina dig into the world of clinical trials—what they are, how they work, and why they matter—especially in the rare disease and chronic illness space. To help us separate fact from fiction, we’re joined by two incredible experts who bring decades of experience to the table.Kerry Biron is a clinical development leader with over 25 years of experience in global clinical operations. She’s helped bring multiple FDA-approved treatments to market, with a focus on rare and orphan diseases. Kerry is also a Spoonie herself, living with Psoriatic Arthritis and Hashimoto’s Thyroiditis.Nova Silver, RN, MBA, brings over 35 years of experience in clinical development and operations. A former VP of Clinical Operations at Fortress Biotech, Nova has worked across a range of therapies including gene therapy, CAR-T, and small molecule development. Her unique background includes both nursing and teaching mathematics at Harvard.Whether you’ve considered participating in a trial or are just curious how treatments make it to patients, this conversation will leave you more informed—and maybe even a little inspired.Find clinical trials at: www.clinicaltrials.govThis episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: https://www.instagram.com/getspicey/

In Part 1 of this episode, Rachel and Tina dive into a topic that doesn’t get talked about enough: toxic positivity. What happens when you're constantly trying to “stay strong” or “look on the bright side”—even to your own detriment? Rachel opens up about how she sometimes turns toxic positivity inward, and together they explore how this mindset can unintentionally delay healing and affect mental health in the chronic illness community.In Part 2, we’re joined by Melissa, a registered nurse who specializes in autoimmune rare disorders—and who found herself unexpectedly on the other side of the chart when she was diagnosed with Hashimoto’s Thyroiditis. What started as a routine EKG turned into a heart-stopping moment (literally), eventually leading to a cardiac ablation. Now, Melissa is on a mission to help other women understand the deep connection between hormones, thyroid health, and the warning signs we often overlook. Her focus? Empowering women to advocate for their own health through perimenopause, menopause, and beyond.This two-part episode will make you think about the language we use with ourselves—and the power of truly listening to your body.Follow SpoonFull on Instagram at: https://www.instagram.com/spoonfullofstrength/Follow Melissa on Instagram at: https://www.instagram.com/melissa_thyroid_rn/and also at: https://www.instagram.com/elemental_nurses/#And on Facebook at:https://www.facebook.com/people/Elemental-Nurses/61573718195310/This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: https://www.instagram.com/getspicey/

 Bonus Episode: The Diagnosis Struggle – Medical Gaslighting & Patient PowerBetween Season 3 and 4, we're bringing you a powerful bonus two-part episode that dives deep into the real-life chaos of the diagnostic journey.In Part 1, Rachel and Tina get real about medical gaslighting—the subtle (and not-so-subtle) ways patients are dismissed, misheard, or told "it's all in your head." From endless referrals to the emotional exhaustion of chasing answers, they unpack the frustration of being bounced between specialists, handed vague explanations, and constantly fighting to prove their pain is real.In Part 2, we welcome our fellow Spoonie and special guest Tilly Rose, author of Be Patient. Tilly spent over 20 years as a so-called "medical mystery" before receiving diagnoses like Addison’s Disease and hypermobile Ehlers-Danlos Syndrome. Her memoir is a raw, witty, and powerful look at what happens when the healthcare system forgets the human behind the patient chart. Be Patient pulls the curtain back on the inner workings of the healthcare system—highlighting both its failings and its heroes—and makes a bold call for change. Through storytelling and advocacy, Tilly is using her voice to speak up for patients everywhere.Follow Tilly's journey on Instagram at: https://www.instagram.com/thattillyrose/Use these links to purchase Tilly's book:Order BE PATIENT (free worldwide shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229Order BE PATIENT UK: https://www.amazon.co.uk/Be-Patient-Laughter-Hospital-Curtain/dp/B0CXK6XDNG/ref=mp_s_a_1_1?crid=1FGRBU999UI33&dib=eyJ2IjoiMSJ9.5Dks7Y1UNnyBacVhgUlrrw.Ke1Cd6DNaQvJVIfp8jVqFpPn7GtlOiRVPfa8l5I4Cns&dib_tag=se&keywords=be+patient+tilly+rose&qid=1747329860&sprefix=be+patient%2Caps%2C163&sr=8-1Visit Tilly's website, That Patient Collective:  https://www.thatpatientcollective.com/Tilly Rose's website is a platform dedicated to sharing patient stories and experiences, offering a perspective of life behind the hospital curtain. It serves as a space for individuals to connect, share their journeys, and advocate for change in the healthcare systemis a platform dedicated to sharing patient stories and experiences, offering a perspective of life behind the hospital curtain. It serves as a space for individuals to connect, share their journeys, and advocate for change in the healthcare system We’ll be announcing Season 4 soon, so make sure you’re following us on Instagram @spoonfulofstrength for updates and sneak peeks!