Ep. 49 How a Teenager Turned Her CHD Into Her Superpower episode artwork

EPISODE · Apr 28, 2026 · 29 MIN

Ep. 49 How a Teenager Turned Her CHD Into Her Superpower

from Let's Talk SADS Live · host Canadian SADS Foundation

You wouldn't expect a 16 year old with Congenital Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are!Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her answer might surprise you.In this uplifting conversation, Amelia opens up about finding her people at Campfire Circle, advocating for other cardiology patients through the Chameleon app, and why she actually sees her heart condition as something that made her life better, not worse.Amelia's story is proof that resilience looks a lot like joy.Watch the full episode and follow us on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon#LetsTalkSADSLive #SADS #CHD #CongenitalHeartDefect #DoubleOutletRightVentricle #Fontan #HeartWarrior #CampfireCircle #PatientPartner #YouthAdvocacy #RareDisease #HeartCondition #TeenWithCHD #Cardiology #TransitionToAdultCare #SelfAdvocacy #LivingWithCHD #HeartPalpitations #RollerCoaster #AmazingPeople

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Ep. 49 How a Teenager Turned Her CHD Into Her Superpower

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