PODCAST · health
Let's Talk SADS Live
by Canadian SADS Foundation
The Let’s Talk SADS Live Podcast is a highly accessible educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of inherited arrhythmias, fostering a well informed and proactive patient community. Led by ARVC and heart failure patient Heather Cartwright, Let’s Talk SADS Live features monthly conversations with healthcare professionals, patients, and caregivers who share expert knowledge, practical advice, and lived experiences.To help us continue changing the lives of SADS patients and families, please consider donating at www.sads.ca/donate/.
Episodes
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Ep. 53 How Treatment for HCM Turned Fear Into Freedom
When Carmine was told he had hypertrophic cardiomyopathy, he thought he'd never see his kids grow up. Sixteen years later, he's living his best life. He spent years living in fear, isolating himself, and convinced his heart condition would eventually take everything from him. But after 16 years…
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Ep. 52 Women, Inherited Heart Conditions, and the Care They Deserve with Dr. Danna Spears
Somewhere right now, a young woman is being told her heart palpitations are just anxiety. She is being sent home without an ECG. She is being told she is too young and too low risk for anything to be wrong. She might believe them. She also might go years without knowing she has an inherited heart...
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Ep. 51 When Patients Help Design Research, Healthcare Improves
When Patients Help Design Research, Outcomes Improve. No lab coat required. Just lived experience and a seat at the table. Anne Simard shares how patient partners have rewritten study protocols, redesigned unusable wearables, and told engineers their "sexy" new tech was a disaster. She also…
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Ep. 50 A Conversation Between Two Sisters About ARVC
We have a very special episode this week of Let's Talk SADS Live. Our host Heather is talking with someone she's known her whole life: her older sister, Meredith. They share a lot. Memories, jokes, the occasional family fight. And now an inherited heart condition called ARVC. Meredith watched...
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Ep. 49 How a Teenager Turned Her CHD Into Her Superpower
You wouldn't expect a 16 year old with Congenital Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are! Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her...
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Ep 48. One Shot at a New Life with Gene Therapy Patient Brian O'Mahoney
Gene therapy. One injection. No going back. Brian O'Mahoney, the first person in Ireland to receive any gene therapy, has lived with severe hemophilia B his entire life. In this deeply personal conversation, Brian shares what it really means to make an irreversible medical decision, and how…
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Ep. 47 A New Era of Remote Heart Monitoring and What It Means for Patients with Dr. Heather Ross
Wearable technology that can predict heart failure hospitalizations days in advance is just one of the groundbreaking innovations Dr. Heather Ross, a world-renowned cardiologist and heart failure specialist, is bringing to patients. In this powerful conversation, Dr. Ross shares how a near-death...
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Ep. 46 Finding Your Story After a Life Changing Diagnosis with Dr. Sharon Bray
Your story matters. And telling it might just help you heal.After surviving sudden cardiac arrest and a heart failure diagnosis herself, Dr. Sharon Bray discovered that writing wasn't just a creative outlet. It was a lifeline.In this week's Let's Talk SADS Live, Dr. Bray shares how expressive...
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Ep. 45 Gene Therapy Is Rewriting the Future for Heart Patients with Dr. Farah Sheikh
What if a single treatment could change the future of your heart? This #HeartMonth, we are bringing you a conversation filled with hope, science, and the power of persistence. We sit down with Dr. Sheikh, a Canadian-born scientist, who walks us through her groundbreaking gene therapy research...
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Ep 44. Navigating a Father's Grief and Leading After Loss with Walker Frahm
This #HeartMonth, we are honoured to share a deeply moving conversation with a very special friend of The Canadian SADS Foundation, Walker Frahm, CEO of The US SADS (Sudden Arrhythmia Death Syndromes) Foundation . Walker opens up with raw honesty about the sudden loss of his daughter, Lavinia…
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Ep 43. From Heart Failure to Heart Life: A Survivor's Journey with Marc Bains
From unexpected heart failure at 23 to founding a national patient community. Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient...
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Ep 42. Transforming Exercise from Fear to Play
What if we rebranded exercise with a SADS condition as play? Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of...
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Ep 41. Rethinking Exercise Restrictions for Inherited Arrhythmias
What if your diagnosis didn't mean you had to give up the sports and activities you love? Pediatric cardiologist Dr. Robert Hamilton challenges decades of fear with a new, empowering message for the SADS community: "Complete restriction is just not healthy." Drawing from the latest patient data…
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Ep 40. Giving the Gift of an End-of-Life Plan
What if the greatest gift for your family wasn't something you could wrap? Yvonne Heath, author of "Live Your Life to Death", explains why preparing for the end of life is an essential act of love. She shares powerful stories from the bedside, revealing the profound peace that comes with planning...
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Ep 39. An NHL Career Redirected by Sudden Cardiac Arrest
Having your life's dream taken away in an instant is a reality Brett MacLean faced at 23. A professional hockey player who had just scored in the NHL, Brett's career ended with a sudden cardiac arrest on the ice. In this powerful conversation, he shares his story of survival, from waking up with…
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Ep 38. A Sister's Legacy Turned Into a Lifetime of Saving
For Lia Olmsted, the discovery that her children had Brugada Syndrome came after the devastating loss of her 21-month-old daughter, Reese. In this heartfelt conversation, Lia shares the realities of parenting a child with a life-altering condition, the critical importance of CPR awareness, and…
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Ep 37. Heart Disease Doesn't Care How Old You Are
Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to...
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Ep 36. The Journey to Recovery after a Cardiac Storm
The Road to Recovery after a Cardiac Storm In this powerful first episode of the new patient-driven Let’s Talk SADS Live, Sally Gilbert shares her journey of living with exercise-induced ARVC and the emotional aftermath of surviving multiple ICD shocks during a cardiac event earlier this year....
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Ep 35. Past to Present and What Lies Ahead for Long QT Syndrome
Join the Canadian SADS Foundation for the 35th episode of Let’s Talk SADS Live with Dr. Andrew Krahn, as we take a closer look at Long QT Syndrome and what it means for patients and families.This episode will explore the latest understanding of Long QT Syndrome, from diagnosis and risk assessment...
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Ep 34. What Gene Therapy Means for Families Living with SADS
Join us for our first pre-recorded episode! In episode 34 of Let’s Talk SADS Live, we sit down with Dr. Andrew Landstrom to explore the promise and progress of gene therapy for inherited arrhythmia syndromes. This episode dives into how gene therapies are being developed to treat conditions such…
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Ep 33. Preparing for the Next Chapter as a Parent with SADS
Join the Canadian SADS Foundation for the 33rd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Danna Spears to explore Managing Pregnancy with a SADS Condition. This episode will focus on the unique challenges and important considerations for individuals with inherited arrhythmia...
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Ep 32. The Impact of SADS Conditions on Mental Health and Wellbeing
Join the Canadian SADS Foundation for the 32nd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Lauren Schneider to explore the Impact of SADS Conditions on Mental Health and Wellbeing. This episode will highlight how anxiety, trauma, and uncertainty can affect overall wellbeing, and...
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Ep 31. The Evolving Story of ARVC in Clinical Care and Everyday Life
Join the Canadian SADS Foundation Live for the 31st episode of Let’s Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we’ll be speaking with Dr. Dominic Abrams about Arrhythmogenic Right Ventricular Cardiomyopathy, exploring how genetics, exercise, and evolving diagnostic...
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Ep 30. The Autonomic Nervous System and Its Effects on Heart Rhythm
In this episode, we will be speaking with Dr. Victoria Claydon on the Autonomic Nervous System and fainting spells (or syncopal episodes) and whether, in rare cases, it can contribute to irregular heart beats associated with a phenomenon known as “autonomic conflict”.Dr. Victoria Claydon is a...
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Ep 29. The Role of AI in the Future of SADS Conditions
Join us for the 29th episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we will be speaking with Dr. Robert Avram on the uses of AI in healthcare, and how this will affect the future of SADS conditions. Dr. Avram has completed an AI fellowship at UCSF and an...
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Ep 28. Challenges in the Diagnosis and Management of Brugada Syndrome
Join us on Episode 28 of Let's Talk SADS Live with guest Dr. Georgia Brugada of SJD Barcelona Children’s Hospital. Dr Georgia Brugada is a specialist in pediatric arrhythmias, family cardiology, and sudden death at the Cardiology Department of the SJD Barcelona Children's Hospital. For a number…
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Ep 27. New Developments in The treatment of Arrhythmogenic Cardiomyopathy
This Let's Talk SADS Live guest, Dr. Jason Roberts, discusses the evolution of treatment strategies, provide an overview about findings in recent pre-clinical research data, and shed light on novel therapeutic approaches under study for arrhythmogenic cardiomyopathies. He will also provide an...
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Ep 26. The ABC's of Genetics in SADS Conditions
Join us on Episode 26 of Let's Talk SADS Live as Melanie Care discusses the ABC’s of Genetics in SADS conditions. Melanie Care is a Genetic Counsellor for the University Health Network, specifically working in the molecular diagnostic laboratory as well as the inherited arrhythmia clinic.Our…
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Ep 25. Why Join a Research Study for SADS Conditions?
Join us as Dr. Michael Fridman teaches us about the importance of research and how it can be a source of hope for patients. Dr. Michael Fridman is an attending Pediatric Cardiologist and Electrophysiologist at the Alberta Children’s Hospital in Calgary, Alberta.Our Let's Talk SADS Live Series is...
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Ep 24. SADS Conditions and Medications
Join us for Let's Talk SADS Live Episode 24 SADS conditions and Medications. Our special guest is Dr. Roxane Carr she is a pharmacist at the BC Children’s Hospital and a Clinical Professor with the Faculty of Pharmaceutical Science at the University of British Columbia in Vancouver BC.Our Let's...
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Ep 23. Updates on the Contempory Management of Patients with HCM
Join us for Episode 23 of Let's Talk SADS Live where we will converse on the updates of contemporary management of patients with HCM. Our special guest today will be Dr. Rafik Tadros. Dr. Tadros is a cardiologist and cardiac electrophysiologist at the Cardiovascular Genetics Centre of the…
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Ep 22. Sports and Exercise with SADS Conditions
Join us on our latest Let's Talk SADS Live Episode 22 where Dr.Nathanial Moulson will be speaking to us about navigating sports and exercise with SADS conditions. Dr. Moulson is a Preventative and Sports Cardiologist at the University of British Columbia where he is a Clinical Assistant Professor...
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Ep 21. Cardiac Denervation as a Treatment for SADS Conditions
Join us for Episode 21 of Let's Talk SADS Live where our special guest, Dr. Joseph Atallah, will guide us through the use of Cardiac Denervation as a treatment option for SADS conditions. Dr. Joseph Atallah is a Cardiologist and serves as the Medical Director for the sections of Electrophysiology...
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Ep 20. Patients at the Heart of Innovation of Gene Therapy and CPVT
Join us for our 20th episode of Let's Talk SADS Live featuring Dr. Gabriel Brooks and guest Annie Ganot. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we…
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Ep 19. Navigating Inherited Cardiac Care With Implantable Devices
Join us for our 19th edition of Let's Talk SADS Live with Dr. Elizabeth Stephenson from The Hospital for Sick Children!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable...
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Ep 18. Understanding the History, Genetics and Management of Brugada Syndrome
Professor Behr is a leading figure in cardiovascular medicine at St. George’s, University of London, and a renowned Consultant at both St. George’s University Hospitals NHS Foundation Trust and Mayo Clinic Healthcare, London. His groundbreaking work in arrhythmias and genetic risks for cardiac...
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Ep 17. ARVC and the Newfoundland Connection
This session, we're honored to host Dr. Kathleen Hodgkinson, an acclaimed professor of clinical epidemiology and genetics at Memorial University. With a remarkable career starting from the University of Manchester to groundbreaking research in Newfoundland, Dr. Hodgkinson has made significant...
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Ep 16. Bonus Q&A on SADS Conditions
Following the overwhelming response to our previous session, we're thrilled to announce that Let's Talk SADS Live Q&A is back for its second edition! We are honored to welcome back Dr. Ciorsti MacIntyre, who has accepted our invitation to share her expertise as our guest speaker again. Our Let's...
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Ep 15. Special Q&A on SADS Conditions
Join us for a special Q&A episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani with guest expert Dr. Ciorsti MacIntyre. It's your opportunity to ask the experts about LQTS, Brugada Syndrome, HCM, ARVC, CPVT, and more.Our Let's Talk SADS Live Series is provided at no cost to the…
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Ep 14. The Secrets of CPVT
Join us for the first Let’s Talk SADS Live episode of 2024! We are excited to have Dr. Arthur Wilde as our guest as we dive into the world of CPVT. Dr. Wilde is a world renowned cardiac electrophysiologist at the Amsterdam University Medical Center. The Amsterdam UMC was one of the first…
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Ep 13. Insights and Challenges of Long QT Syndrome in Children
Join us for our 13th episode of Let's Talk SADS Live as we discuss Long QT Syndrome with special guest, Dr. Susan Etheridge! Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable...
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Ep 12. Navigating Patient Perspectives in ARVC
Join us for a special episode of Let's Talk SADS Live featuring a patient perspective! Our guest, Kristina Bangma, Kristina is a personal trainer, cycling coach, and former competitive endurance athlete whose entire life was turned upside down when, at the age of 40, she was diagnosed with...
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Ep 11. Risk Stratification and Emerging Therapies for ARVC
Join us for episode 11 of Let's Talk SADS Live with our guest Dr. Julia Cadrin-Tourigny! She will be talking about some of the latest approaches on risk stratification for ARVC and emerging therapies with our host, Dr. Shubhayan Sanatani!Our Let's Talk SADS Live Series is provided at no cost to…
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Ep 10. A Coroner's Contribution to SADS Diagnoses
Join us for our special Sudden Cardiac Awareness Month episode of Let's Talk SADS Live with Chief Coroner of Ontario, Dr. Dirk Huyer. Our host, Dr. Sanatani will be discussing how the Coroner plays a role in the diagnosis of an inherited cardiac condition and it's implications.Our Let's Talk SADS...
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Ep 9. The Role of CPR and AEDs in Schools
Join us for our this episode of Let's Talk SADS Live with special guest Dr. Katherine Allan, PhD. With September being back to school, we will be discussing some of Dr. Allan's recent work in creating sudden cardiac arrest safe communities through CPR and AED education in schools. Our Let's Talk...
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Ep 8. Navigating Brugada Syndrome from Science to Practice
Join us for our 8th episode of Let's Talk SADS Live with our host Dr. Shubhayan Sanatani and special guest Dr. Robert Hamilton from The Hospital for Sick Children. We will be discussing the use of biomarkers in Brugada and Brugada Syndrome in children. Be sure to join us to have a chance to have...
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Ep 7. What we can Learn from Stem Cells in SADS
We're back again with our host Dr. Shubhayan Sanatani and guest speaker Dr. Glen Tibbits! In this episode they discuss some of the latest research regarding stem cells in the context of SADS conditions. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make...
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Ep 6. New Frontiers in Patient HCM Care
Join us on Tuesday, June 20th, at 12PM ET to learn more about some of the new frontiers in hypertrophic cardiomyopathy care in Canada with Dr. Thomas Roston. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally…
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Ep 5. Navigating the CHallenges of Genetic Testing and Counselling
Join us for part II of our Let's Talk SADS episodes for another discussion on genes and their implications in SADS conditions. In this episode, we will be talking about navigating some of the challenges that are faced with the genetic testing and counseling of SADS conditions. Our Let's Talk SADS...
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Ep. 4 Cracking the Genetic Code in SADS Conditions
Join us for our 4th episode of Let's Talk SADS Live for an exciting introduction to DNA with our guest, genetic counsellor, Melanie Care. Learn how DNA works and it's implications in a variety of different SADS conditions!Our Let's Talk SADS Live Series is provided at no cost to the viewer,...
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ABOUT THIS SHOW
The Let’s Talk SADS Live Podcast is a highly accessible educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of inherited arrhythmias, fostering a well informed and proactive patient community. Led by ARVC and heart failure patient Heather Cartwright, Let’s Talk SADS Live features monthly conversations with healthcare professionals, patients, and caregivers who share expert knowledge, practical advice, and lived experiences.To help us continue changing the lives of SADS patients and families, please consider donating at www.sads.ca/donate/.
HOSTED BY
Canadian SADS Foundation
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Frequently Asked Questions
How many episodes does Let's Talk SADS Live have?
Let's Talk SADS Live currently has 53 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Let's Talk SADS Live about?
The Let’s Talk SADS Live Podcast is a highly accessible educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of inherited arrhythmias, fostering a well informed and proactive patient community. Led by ARVC and heart failure patient Heather Cartwright,...
How often does Let's Talk SADS Live release new episodes?
Let's Talk SADS Live has 53 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Let's Talk SADS Live?
You can listen to Let's Talk SADS Live on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Let's Talk SADS Live?
Let's Talk SADS Live is created and hosted by Canadian SADS Foundation.
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