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Ep.6 - Kisha

Episode 9 of the Patient POV podcast, hosted by Jess Hay, titled "Ep.6 - Kisha" was published on October 29, 2023 and runs 34 minutes.

October 29, 2023 ·34m · Patient POV

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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Kisha, a public health nurse with POTS. She created her instagram page as a way of explaining what life is like with a chronic illness for her family and now it extends to those who have chronic health conditions or their loved ones! Notes from our talk: Everyday is different and everyday is hard, but we need to find time to rest our bodies Coping strategies she has found to help her: Being in peace and quiet Reading the bible Calm app - brown noise or green noise Journaling - feelings from the day or anything that comes to mind You are your own biggest advocate! Don’t stop if you don’t feel the answers are the solutions to your problems! There is an answer out there for you, just keep pushing The diagnosis is just validation for how you’ve already been feeling What you are going through is real - don’t let the doctors make you think you are making it up or that it's all in your head because it's not!! Resource links: Liquid IV Pink himalayan salt Dysautonomia International: http://www.dysautonomiainternational.org/  Dr. Diana Driscoll https://potscare.com/  Calm app students get a discount too: https://www.calm.com/?pid=googleadwords_int&af_channel=googlesem&af_c_id=15251743825&af_adset_id=131213006073&af_ad_id=561263049540&af_siteid=g&af_sub_siteid=&af_keyword=kwd-100623440&af_sub3=c&af_sub4=Cj0KCQjwhfipBhCqARIsAH9msbni6R3GsscXIQN3M8wfGpOfRoT9q2coKSlCSX0NQjHjSeM6K6OzohsaAvi0EALw_wcB&utm_medium=paid&utm_source=googlesem&utm_campaign=15251743825&utm_content=homepage&utm_term=kwd-100623440&gad=1&gclid=Cj0KCQjwhfipBhCqARIsAH9msbni6R3GsscXIQN3M8wfGpOfRoT9q2coKSlCSX0NQjHjSeM6K6OzohsaAvi0EALw_wcB 

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Kisha, a public health nurse with POTS. She created her instagram page as a way of explaining what life is like with a chronic illness for her family and now it extends to those who have chronic health conditions or their loved ones!

Notes from our talk:

  • Everyday is different and everyday is hard, but we need to find time to rest our bodies

  • Coping strategies she has found to help her:

    • Being in peace and quiet

    • Reading the bible

    • Calm app - brown noise or green noise

    • Journaling - feelings from the day or anything that comes to mind

    • You are your own biggest advocate! Don’t stop if you don’t feel the answers are the solutions to your problems!

    • There is an answer out there for you, just keep pushing

    • The diagnosis is just validation for how you’ve already been feeling

    • What you are going through is real - don’t let the doctors make you think you are making it up or that it's all in your head because it's not!!

Resource links:

Patient Stories with Grey Genetics Grey Genetics Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors. Patient PrepRheum Podcast CreakyJoints Australia Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. In Patient PrepRheum, we are looking at three key areas:Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; andthe importance of good patient-doctor communication.Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit the CreakyJ Take 1: Patient Julie Soukup Julie Soukup Hosts. With Medical Memory recording over 150,000 (and counting) patients, we felt it relevant to start discussing what are the best practices in patient communication and how can we optimize these conversations now captured and recorded by video.We will be meeting with industry and video communication experts about how to elevate these conversations to optimize time, and maximize the patient experience. What can we learn from the medical and surrounding industries now that the camera is on, and the patient is watching? STAY TUNED Heart Failure and Beyond - Patient Fuelled Podcast Pumping Marvellous, the UK's Heart Failure Charity. Fuelled by patients. This Podcast has been brought to you by the Pumping Marvellous Foundation the UK's Heart Failure Charity.In our series of Podcasts, talking to people about heart failure, we look beyond the cardiologist and delve into what makes people tick, what’s their “Secret Sauce” the Elixir that drives people to overcome and conquer challenging situations in their life.
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