Ep 64: A diagnosis of CTD after 17 years with Bonnie & Andrea

from collectively coeXisting · host Remember The Girls

Our Carrier Connections program features a different X-linked condition each month with the goal to increase awareness of X-linked conditions and how they impact the lives of women and girls. This month, we are featuring creatine transported deficiency, or CTD. We are partnering with Association Xtraordinaire to bring you interviews and educational graphics on our social media pages. Our guests for this episode are Bonnie, an 18-year-old tennis player living with CTD and her mother, Andrea. Carrier Connections is sponsored by Kyowa Kirin and Amgen. For more information about our organization, check out ⁠⁠⁠⁠⁠⁠rememberthegirls.org⁠⁠⁠⁠⁠⁠.

Episode metadata supplied by the publisher feed · Published Nov 21, 2024

Embed this episode

Attribution link and audio player

NOW PLAYING

Ep 64: A diagnosis of CTD after 17 years with Bonnie & Andrea

0:00 26:08

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

No similar episodes found.

Similar Podcasts

Close All Tabs KQED Ever wonder where the internet stops and IRL begins? Close All Tabs breaks down how digital culture shapes our world through thoughtful insights and irreverent humor. From internet trends to AI slop to the politics of memes, Close All Tabs covers it all.How will AI change our jobs and lives? Is the government watching what I post? Is there life beyond TikTok? Host Morgan Sung pulls from experts, the audience, and history to add context to the trends and depth to the memes. And she’ll wrestle with as many browser tabs as it takes to explain the cultural moment we’re all collectively living.Morgan Sung is a tech journalist whose work covers the range of absurdity and brilliance that is the internet. Her beat has evolved into an exploration of social platforms and how they shape real-world culture. She has written for TechCrunch, NBC News, Mashable, BuzzFeed News and more. We love listening to shows about technology and culture like Power User with No Small Endeavor with Lee C. Camp Tokens Media What does it really mean to live a good life—in our politics, our faith, our work, and our relationships?On No Small Endeavor with Lee C. Camp, we explore the ideas, practices, and public debates that shape human flourishing today. Each week you’ll hear thought-provoking conversations with bestselling authors, philosophers, neuroscientists, psychologists, theologians, artists, and political leaders—people wrestling with the biggest questions of meaning and purpose in our time.Together we ask:How can religion be a force for healing instead of division?What does neuroscience reveal about happiness, habits, and productivity?Where do politics and justice meet the pursuit of the common good?How do truth, beauty, and goodness help us live well—personally and collectively?If you care about faith, politics, social justice, science, or the search for meaning, you’ll find courag Hashivenu Reconstructing Judaism Hashivenu is a podcast about Jewish teachings and practice around resilience. Cultivating resilience in challenging times, both individually and collectively, is an essential path to personal renewal. Support Hashivenu Find out more about the show at About (https://hashivenu.fireside.fm/about), and learn about our theme song at Theme Song (https://hashivenu.fireside.fm/theme-song). Subscribe by Email This podcast is produced by Reconstructing Judaism. Visit us at ReconstructingJudaism.org (https://ReconstructingJudaism.org) How to Save a Planet Gimlet Does climate change freak you out? Want to know what we, collectively, can do about it? Us, too. How to Save a Planet is a podcast that asks the big questions: What do we need to do to solve the climate crisis, and how do we get it done? Join us, journalist Alex Blumberg and scientist and policy nerd Dr. Ayana Elizabeth Johnson, as we scour the earth for solutions, talk to people who are making a difference, ask hard questions, crack dumb jokes and — episode by episode — figure out how to build the future we want.

Frequently Asked Questions

How long is this episode of collectively coeXisting?

This episode is 26 minutes long.

When was this collectively coeXisting episode published?

This episode was published on November 21, 2024.

Can I download this collectively coeXisting episode?

Yes. Use the download control on the episode player to save the publisher-provided media file.

URL copied to clipboard!