Episode 123: My MS Toolkit with Dr. Anna Kratz

Access to MS symptom self-management care is extremely limited. That's why my guest, Dr. Anna Kratz, and her colleagues created My MS Toolkit --  a web-based, self-guided symptom self-care program designed especially for people with MS. (And it's FREE!)    We're talking with Dr. Kratz about how My MS Toolkit was developed and what makes it such a powerful online tool for people living with MS. We're also talking about the latest petitions filed with the Supreme Court in the battle over the Affordable Care Act (and why this is so vitally important to people affected by MS!). If you're using gabapentin (Neurontin) to manage MS pain, we'll tell you about the warning that was just issued by the FDA. Yet another study gives us yet another reason to start disease-modifying therapy as soon as possible. And we'll explain why collecting real-world data about MS is so important, and what a team of MS experts is recommending to improve the process of real-world data collection and analysis. We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Where I'll Be in January  :27 National MS Society Joins 23 Other Patient Organizations in Requesting Supreme Court Expedites Its Review of the ACA  3:00 FDA Issues Warning About Gabapentinoids  6:51 Disease-Modifying Therapy Use Has Changed the 'Natural History' of Relapsing-Remitting MS  7:57 Paper Explores How Real-World Data Can Be Better Leveraged to Speed Solutions to People Living with MS  9:34 My Interview with Dr. Anna Kratz  15:04 Share This Episode  36:00 Download the RealTalk MS App  36:29 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  http://realtalkms.com/123 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com My MS Toolkit FDA Warns About Serious Breathing Problems when Gabapentin and Pregabalin Are Used With CNS Depressants or By Patients with Lung Problems STUDY: Outcomes in a Modern Cohort of Treated Multiple Sclerosis Patients Followed from Diagnosis Up to 15 Years Leveraging Real-World Data to Investigate Multiple Sclerosis Disease Behavior, Prognosis, and Treatment Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 123 Hosted By: Jon Strum Guests: Dr. Anna Kratz Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Gabapentinoids, ACA, RealTalkMS Privacy Policy