Episode 124: Fighting for Safety: Anneka’s Kidney Warrior Story & the “Safe Lines, Safe Lives” Campaign

In this powerful and inspiring episode of Diary of a Kidney Warrior Podcast, Dee is joined by Anneka Murphy. Anneka is a Primary School PPA Cover Teacher, a devoted wife, and a mother of four who has been navigating life on dialysis for the past year.   Anneka shares her remarkable Kidney Warrior journey, beginning with her unexpected diagnosis of Chronic Kidney Disease (CKD) Stage 3b following a needle stick injury. Having no prior health issues, Anneka recounts the rollercoaster of medical appointments, emotional challenges, and the impact of CKD on her family, especially her children. She provides heartfelt insights and invaluable advice on managing family dynamics and initiating meaningful conversations with children about chronic illness.   In addition to her personal story, Anneka highlights her advocacy work through the Safe Lines, Safe Lives campaign. Motivated by her own struggles to access essential medical equipment due to cost-cutting measures, Anneka is passionately working to ensure government provision of infection-prevention equipment for all central line patients.   Join us to hear Anneka’s lived experiences, the vital lessons she’s learned, and the importance of patient advocacy. Discover how you can support her campaign and be inspired by her unwavering resilience and determination.   Tune in now for a heartfelt conversation that offers hope, guidance, and encouragement to everyone navigating life with CKD.   For updates and more, follow Dee Moore on:   Instagram: www.instagram.com/diaryofakidneywarrior  Facebook: www.facebook.com/diaryofakidneywarrior  Twitter: www.twitter.com/diaryofakidneyw  Tik Tok: @diaryofakidneywarrior  Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/   Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!   diaryofakidneywarrior.getform.com/rjv47   WhatsApp   ‎Follow the Diary of a Kidney Warrior Podcast (Kidney Health Podcast) channel on WhatsApp: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r   Follow Anneka Murphy Facebook: https://www.facebook.com/anneka.n.murphy TikTok: https://www.tiktok.com/@annekamurphkidneywarrior?_t=8sPpyeJVK4X&_r=1   Find Your MP https://members.parliament.uk/FindYourMP   Template letter to copy and paste and use to contact your MP.     Dear My local MP ……………*name, I feel compelled to write as I feel very strongly about this issue. I have recently become aware of a campaign started by a lady in Wakefield West Yorkshire. The “Safe Lines, Safe Lives” campaign. Anneka Murphy is a haemo dialysis patient with a central line to her heart as access for the life saving dialysis needed, until she gets a transplant.  Anneka has recently been informed the shower pouches she uses from Independence direct, that she was getting on prescription, are now stopped due to their cost.  These pouches are essential to prevent the central line from getting wet. It is national guidelines central lines must remain dry to prevent serious infection, but without the appropriate tools how are patients with a line meant to do this?  Anneka has raised this with her MP Jade Botterill who is escalating but support from other MP’s would be appreciated. Please raise this with Wes Streeting the health secretary. Patients health is at risk of serious infection without these pouches. All patients in West Yorkshire have been now told these will no longer be issued. This is not just an isolated occurrence as it is happening in pockets all over the country.  Please keep me informed .   Kind regards   ………….*name     Contact Kidney Care UK   •           Website: www.kidneycarekuk.org •           Email: [email protected] •           Tel: 01420 541 424 •           Facebook: www.facebook.com/kidneycareuk.org •           Instagram: @kidneycareuk •           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A   To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]