Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell episode artwork

EPISODE · Oct 19, 2020 · 44 MIN

Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell

from RealTalk MS · host Jon Strum with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell

MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States and less than 10,000 cases worldwide, but those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, and pediatric MS expert Dr. Brenda Banwell.   We're also talking about study results that show a simple sugar that's available over the counter is effective in preventing myelin degeneration in the mouse model of MS. And we'll tell you how a research team at the University of Chicago went about designing a novel MS therapy that's been demonstrated to promote myelin repair and even stop MS from developing in the mouse model of MS.    You'll hear about the first oral disease-modifying therapy that's been approved to treat active secondary progressive MS in England, Wales, and Scotland. And we'll tell you how you can be a part of future MS research projects.   We have a lot to talk about! Are you ready for RealTalk MS??! Study shows an over-the-counter simple sugar promotes myelin repair in mouse model of MS  1:31 Researchers design a new MS therapy that reduces MS symptoms and even prevents MS from developing in mouse model of MS  3:15 Mayzent approved for treating secondary progressive MS in England, Wales, and Scotland    5:28 Register to participate in future research at the University of Washington MS Rehabilitation & Wellness Center  6:38 Online survey for parents of a child living with pediatric MS  8:02 My Interview with pediatric MS patient Hannah Schnitzler and her mom  9:22 My Interview with pediatric MS expert Dr. Brenda Banwell  21:57 Share this episode  42:00 Donate to the National MS Society COVID-19 Response Fund  42:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/164 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) STUDY: N-acetylglucosamine Drives Myelination By Triggering Oligodendrocyte Precursor Cell Differentiation STUDY: Prolonged Residence of an Albumin-IL-4 Fusion Protein in Secondary Lymphoid Organs Ameliorates Experimental Autoimmune Encephalomyelitis SURVEY: University of Washington Multiple Sclerosis Rehabilitation & Wellness Center Research Participant Survey SURVEY: Parents of a Child with Pediatric MS (English) SURVEY: Parents of a Child with Pediatric MS (Spanish) National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 164 Guests: Hannah Schnitzler, Melissa Fisher & Dr. Brenda Banwell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PediatricMS, RealTalkMS Privacy Policy

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Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell

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