Episode 187: Progressive MS Research, Treatment, and Rehabilitation with Dr. Kathy Zackowski and Dr. Daniel Ontaneda

About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And about 15% of the people diagnosed with MS are diagnosed from the beginning with primary progressive MS. So identifying ways to optimally treat progressive MS is a priority.    Joining me with updates on progressive MS research, treatment, and rehabilitation are Dr. Kathy Zackowski and Dr. Daniel Ontaneda. Dr. Ontaneda is an associate professor of Neurology at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and a staff member at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis. And Dr. Zackowski is the Senior Director of Patient Management, Care and Rehabilitation Research at the National MS Society and a member of the International Progressive MS Alliance Scientific Steering Committee. We're sharing some startling details about MS care from the European MS Platform's MS Barometer 2020. We're talking about a study that shows that lifestyle choices like increasing physical activity and choosing not to smoke can have a positive impact on MS fatigue. And we'll tell you about a new program that empowers people affected by MS to pose the questions that will drive MS research. We have a lot to talk about! Are you ready for RealTalk MS??! Details from the European MS Platform's MS Barometer 2020  1:34 The International Progressive MS Alliance issues a call to action on progressive MS rehabilitation with Dr. Kathy Zackowski   4:35 Study shows that lifestyle changes can impact MS fatigue   18:00 Our Own Questions Have Power  19:20 Progressive MS treatment and Research with Dr. Daniel Ontaneda  21:03 Share this episode  38:17 Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  38:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/187 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS MS Barometer 2020 Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance STUDY: Associations Between Fatigue Impact and Lifestyle Factors in People with Multiple Sclerosis: The Danish MS  Hospitals Rehabilitation Study iConquer MS: Our Questions Have Power Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 187 Guests: Dr. Kathy Zackowski and Dr. Daniel Ontaneda Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  RealTalkMS Privacy Policy