Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp

Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic inequities of our healthcare system. Matoaka joins me this week to share her MS journey. We're also talking about why the U.S. Supreme Court tossed out a lawsuit that threatened access to healthcare for every person living with MS in the United States. We'll tell you who was just named this year's recipient of the prestigious Charcot Award and you'll learn how this person's work has directly affected your MS diagnosis. We're sharing the surprising results of a study of cannabis use and cognition among people with MS. And we'll tell you about a $1 million dollar award that will fund no-cost outdoor adventures (think adaptive skiing, kayaking, etc!) for young adults who are living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! National MS Society's statement in support of the LGBTQ+ community  :22 U.S. Supreme Court Tosses Out ACA Lawsuit (and why that matters to everyone living with MS)  3:26 Winner of the Charcot Award is announced  7:14 Surprising results from a study on cannabis and cognition among people with MS  10:07 If you're living in the U.K. and you use a wheelchair for mobility, here's your chance to be a part of MS research  14:07 First Descents receives $1 million dollars to support no-cost outdoor adventures for young adults living with MS  15:04 Matoaka Kipp shares her MS journey  17:30 Share this episode  40:41 Please join me next week for our 200th episode!  41:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/199 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society LGBTQ+ Needs Survey  https://ntlms.org/LGBTQSurvey Matoaka's Greeting Cards https://www.instagram.com/habibimail STUDY: Impaired Awareness: Why People with Multiple Sclerosis Continue Using Cannabis Despite Evidence to the Contrary https://onlinelibrary.wiley.com/doi/10.1002/brb3.2220 University of Birmingham Study Participant Information https://drive.google.com/file/d/10CW_slePiO4n7HjVeimSuCGgfdEX1y-m/view First Descents Outdoor Adventures for Young Adults Impacted by MS https://firstdescents.org/programs/ms-programs/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 199 Guests: Matoaka Kipp Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy