EPISODE · May 3, 2026 · 1H 6M
Episode 2 - The Longest Month: Heart Surgery, the CVICU, and Learning to Survive It
from Something Wasn't Right: Missed Diagnoses & Rare Conditions · host The Advocate Co.
One day we were searching for answers… the next, we were preparing for heart surgery.In this episode, I share what it was like to hand my baby over for open heart surgery and spend the next month in the hospital navigating life in the CVICU.From the moment after surgery — seeing him covered in tubes and monitors — to the emotional highs and lows of recovery, this is the part no one can really prepare you for.This episode is about survival mode, learning to advocate in real time, and what it actually feels like to become a “hospital parent.”If you’ve ever had a child in the hospital, or are facing something similar, you are not alone in this.In this episode:• What to expect during infant heart surgery recovery• The emotional reality of having a medically complex baby• Advocating for your child in a hospital setting
What this episode covers
One day we were searching for answers… the next, we were preparing for heart surgery.In this episode, I share what it was like to hand my baby over for open heart surgery and spend the next month in the hospital navigating life in the CVICU.From the moment after surgery — seeing him covered in tubes and monitors — to the emotional highs and lows of recovery, this is the part no one can really prepare you for.This episode is about survival mode, learning to advocate in real time, and what it actually feels like to become a “hospital parent.”If you’ve ever had a child in the hospital, or are facing something similar, you are not alone in this.In this episode:• What to expect during infant heart surgery recovery• The emotional reality of having a medically complex baby• Advocating for your child in a hospital setting
NOW PLAYING
Episode 2 - The Longest Month: Heart Surgery, the CVICU, and Learning to Survive It
No transcript for this episode yet
Similar Episodes
Sep 29, 2023 ·76m
Sep 29, 2023 ·73m
Sep 29, 2023 ·72m
Sep 29, 2023 ·75m
Sep 29, 2023 ·75m
Sep 29, 2023 ·73m