Something Wasn't Right: Missed Diagnoses & Rare Conditions

One day we were searching for answers… the next, we were preparing for heart surgery.In this episode, I share what it was like to hand my baby over for open heart surgery and spend the next month in the hospital navigating life in the CVICU.From the moment after surgery — seeing him covered in tubes and monitors — to the emotional highs and lows of recovery, this is the part no one can really prepare you for.This episode is about survival mode, learning to advocate in real time, and what it actually feels like to become a “hospital parent.”If you’ve ever had a child in the hospital, or are facing something similar, you are not alone in this.In this episode:• What to expect during infant heart surgery recovery• The emotional reality of having a medically complex baby• Advocating for your child in a hospital setting

Everyone told me he was fine.But he wasn’t.In this first episode of Something Wasn’t Right, I share thebeginning of Kip’s story — the feeding struggles, the subtle symptoms, and the gut feeling I couldn’t ignore… even when multiple providers reassured me everything was normal.From poor weight gain and NG tube feeds to sweating, breathing changes, and tests that didn’t give answers, this is what it looked like to live in the space between “something’s wrong” and actually being heard.If you’ve ever questioned whether you’re overreacting, or felt like yourconcerns were being dismissed — this episode is for you.Because sometimes the signs are there… they’re just missed.In this episode:• Early signs of a possible heart condition in a baby• What feeding difficulties and failure to thrive can look like• Navigating reassurance from doctors when something feels off• Learning to trust your gut as a parentIf this resonates, share it with someone who needs it — or someone who needs to understand.Follow Something Wasn’t Right for more real stories about medical advocacy, missed diagnoses, and raising medically complex kids.

You know that feeling… when something isn’t right—but no one else sees it.This is the trailer for Something Wasn’t Right, a podcast about missed diagnoses, rare conditions, and the moment a parent realizes they have to fight for answers.I’m sharing my story—and the stories of other families who trusted their instincts, even when they were told not to.If you’ve ever felt dismissed, questioned yourself, or pushed for someone to listen… this is for you.Follow now. Episode 1 is just the beginning.