Episode 204: Creating Greater Diversity and Ensuring Patient-Centricity in MS Clinical Research with Tanja Keiper

Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. -- more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance. At the same time, the conversation about putting the patient at the center of MS research has grown louder and more pronounced. Major pharmaceutical companies have gotten both of these messages and joining me to talk about increasing diversity and ensuring patient-centricity in MS clinical research is Tanja Keiper, Director in the Clinical Delivery Unit of EMD Serono. We'll also update you on the progress that MS activists are making as our key legislative issues work their way through Congress. We'll tell you about an interesting study about stress triggers and the stress coping mechanisms most often used by people living with MS. We're talking about a smartphone app that, one day, might provide your neurologist with a digital biomarker of MS-related cognitive changes. And we'll share the details of a powerful new supercomputer that's busy studying multiple sclerosis so that it can create brand new MS therapies. We have a lot to talk about! Are you ready for RealTalk MS??! MS advocacy update  :22 Study looks at stress triggers and stress coping mechanisms among people living with MS   5:52 A smartphone app to measure MS-related cognitive changes  9:20 A powerful new supercomputer is trying to figure out MS  11:41 Tanja Keiper talks about how EMD Serono is working to increase diversity and ensure patient-centricity in MS clinical research  14:29 Share this episode  27:04 Download the free RealTalk MS app for your iOS or Android device  27:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/204 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients  https://www.dovepress.com/the-role-of-stress-perception-and-coping-with-stress-and-the-quality-o-peer-reviewed-fulltext-article-PRBM p>STUDY: Reliability, Construct, and Concurrent Validity of a Smartphone-Based Cognition Test in Multiple Sclerosishttps://journals.sagepub.com/doi/10.1177/13524585211018103 evolutionRMS Studieshttps://www.evolutionstudies.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 204 Guest: Tanja Keiper Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EMDSerono, RealTalkMS Privacy Policy