Episode 209: MS Superheroes with Madison Copot

Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old young woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison. While we're on the subject of superheroes, we'll tell you about Darkhawk, who debuted last week as the first Marvel superhero to be diagnosed with MS. We're sharing the American Academy of Neurology's COVID-19 vaccine guidance. And we have a very specific message to share with anyone living with MS who is still on the fence about being vaccinated. You'll learn about new NIH-funded research that may extend our understanding of how MS happens. We'll also tell you about a clinical trial getting underway in the U.K. that's exploring whether Mavenclad can slow the worsening of hand and arm function in people with progressive MS.  And we'll share the line-up of no-cost CAN-DO MS virtual programs taking place throughout the month of September. We have a lot to talk about! Are you ready for RealTalk MS??! Darkhawk returns...and this time, he has MS  :22 AAN issues its formal COVID-19 vaccine guidance  2:34 NIH-funded research will examine cell communication in the central nervous system  6:59 CHARIOT-MS clinical trial launches in the U.K.  9:54 CAN-DO MS September programs focus on staying in charge of your life  11:28 My conversation with Madison Copot  13:43 Share this episode  26:52 Download the free RealTalk MS app for your iOS or Android device  27:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/209 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS Darkhawk (2021) Issue 1 https://www.amazon.com/Darkhawk-1-5-Kyle-Higgins-ebook/dp/B095836W91/ COVID-19 and Vaccination in the Setting of Neurologic Disease: An Emerging Issue in Neurology https://n.neurology.org/content/early/2021/07/29/WNL.0000000000012578 ChariotMS Clinical Trial https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/can-cladribine-slow Can-Do MS September Programs https://www.cando-ms.org/programs Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 209 Guest: Madison Copot Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, Marvel, RealTalkMS Privacy Policy