Episode 243: The Economic Burden of MS with Dr. Bruce Bebo and Bari Talente

Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society. Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente. We're also talking about a study that reveals a connection between MS severity and geography. Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question. And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time. We have a lot to talk about! Are you ready for RealTalk MS??! Measuring the financial impact of MS  :22 A study shows MS severity correlates to geographic latitude  1:47 A new study will try to understand why some people develop severe MS while others don't  4:13 iConquer MS is expanding to include MS caregivers but first they need your help  7:26 Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS   9:56 Share this episode  29:04 Download the RealTalk MS app for your iOS or Android device   29:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/243 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150 STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545 University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study https://crowdfunding.buffalo.edu/project/29733 iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 243 Guests: Dr. Bruce Bebo and Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy