Episode 253: Managing Grief and MS with Dr. Rosalind Kalb

Everybody remembers the day -- sometimes, even the moment -- when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt like everything was about to change. One of the most common emotional responses to MS is grief. Joining me to talk about the relationship between grief and MS, as well as share some specific steps and strategies that you can take to process and manage grief in a healthy way is clinical psychologist Dr. Rosalind Kalb. Dr. Kalb has specialized in MS care and education for almost 40 years. She's a past Vice-President of the Professional Resource Center at the National MS Society. And currently, Dr. Kalb is the Senior Programs Consultant for Can Do MS. We'll also share the details of the experiments conducted by two German scientists that may shed important light on the process of myelin repair. We'll tell you what a research team learned from the largest MS fatigue study ever conducted in the United Kingdom. We'll highlight some of the changes to the updated guidelines for diagnosing and treating MS in the U.K. And we'll share the results of an extension study of Kesimpta presented last week at the annual meeting of the European Academy of Neurology. We have a lot to talk about! Are you ready for RealTalk MS??! Grief and MS   :22 Scientists may have discovered two proteins that stop myelin repair  1:26 Researchers share results of the largest MS fatigue study in the U.K.  3:39 Updated guidelines for diagnosing and treating MS in the U.K.  6:31 Kesimpta extension study participants show no evidence of disease activity after 4 years  8:57 Dr. Rosalind Kalb discusses grief and MS  11:42 Share this episode  30:03 Download the RealTalk MS app for your iOS or Android device   30:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/253 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance The Extracellular Matrix Proteins Tenascin-C and Tenascin-R Retard Oligodendrocyte Precursor Maturation and Myelin Regeneration in Cuprizone-Induced Long-Term Demyelination Animal Model https://www.mdpi.com/2073-4409/11/11/1773/htm Fatigue in Multiple Sclerosis: A UK MS-Register Based Study https://sciencedirect.com/science/article/pii/S2211034822004655 Updated NICE Guidelines -- Multiple Sclerosis in Adults: Management https://nice.org.uk/guidance/ng220 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 253 Guest: Dr. Rosalind Kalb Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy