Episode 299: Update on the Prevalence of MS in the United States with Dr. Bruce Bebo

Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind.   This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular estimate of the prevalence of MS in the United States, analyzing it by race, ethnicity, age, sex, and geographic region. We're also reminding you that this is the final week for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and, maybe, win a $100 Amazon gift card. On June 14th and 15th, the National MS Society is hosting the virtual 2023 Black MS Experience Summit. And we're sharing all the registration info. Can Do MS is hosting a day-long in-person and virtual More About MS program on June 2. We'll tell you how you can register for this free event. We'll give you the details about the latest advocacy win for people living with MS. And we'll tell you about the new MS Society in the UAE. We're sharing the results of a study that analyzed the benefits of virtual reality therapy for improving balance among people living with MS. And we'll tell you about the somewhat puzzling results of a study of the incidence of MS in the U.K. We have a lot to talk about! Are you ready for RealTalk MS??! Next Week: Episode 300 (Yikes!)  :22 FINAL WEEK: Take the RealTalk MS listener survey...you might win a $100 Amazon gift card!  1:36 This Week: A deep dive into the prevalence of MS in the United States  2:31 Registration info for the 2023 Black MS Experience Summit   3:12 Registration info for the Can Do MS More About MS Program  4:12 An advocacy win!  6:13 An MS Society in the UAE   10:40 STUDY: Virtual reality therapy is shown to improve balance for people living with MS  12:34 STUDY: The incidence of MS in the U.K. has not changed for almost two decades  16:25 Dr. Bruce Bebo walks us through  anewly-published study that takes a granular look at the prevalence of MS in the United States   21:09 Share this episode  34:05 Please remember to take our listener survey!  34:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/299 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey STUDY: Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region https://jamanetwork.com/journals/jamaneurology/fullarticle/2805038 REGISTER for the National MS Society's 2023 Black MS Experience Summit https://nmss.6connex.com/event/BlackMSExperienceSummit/login REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration Advocate For Change -- Become an MS Activist https://nationalmssociety.org/advocacy The National MS Society in the UAE https://www.nationalmssociety.ae STUDY: Virtual Reality-Based Therapy Improves Balance and Reduces Fear of Falling in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Controlled Studies https://jneuroehgrehab.biomedical.com/articles/10.1186/s12984-023-01174-z STUDY: Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders Over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the U.K. https://thelancet.com/journals/lancet/article/PIIS0140-6736(23)00457-9/fulltext Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 299 Guests: Dr. Bruce Bebo Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy