Episode 4 - Home, But Not Free: Medications, Fear, and the Reality After Discharge

Going home was supposed to feel like relief.But it didn’t.In this episode, I share what life actually looked like after leaving the hospital — managing medications, adjusting to life without monitors, and carrying the constant weight of responsibility for a medically complex baby.From the ups and downs of daily life to the unexpected fear ofcomplications — including a blood clot — this is the side of recovery people don’t always talk about.Because getting discharged isn’t the end of the story… it’s the beginning of a new one.In this episode:-Life after CVICU discharge-Managing medication for a baby at home-Recognizing patterns, complications and continued advocacy -Navigating fear and distrust-Adjusting to a "new normal" as a medical parentIf you’re in this stage right now, or heading into it, this episode will help you feel less alone.Follow Something Wasn’t Right for more on navigating life with a medically complex child.