Episode 410: From the International Progressive MS Alliance Digital Tools Workshop -- Part Two

Over the past few months, we've shared news about an algorithm that can accurately predict whether someone living with MS will experience worsening symptoms or a relapse in the weeks ahead. You've heard about a three-quarter-of-a-million-dollar investment by the International Progressive MS Alliance to support the development of an AI-based tool that will predict future disability as well as how someone with MS will respond to different disease-modifying therapies.   Just last week, you learned about a digital tool that can accurately diagnose whether someone has relapsing-remitting MS or progressive MS -- after a five-minute test!  Digital tools are poised to rewrite the rules when it comes to conducting MS research and providing patient care. Welcome to Part Two of our coverage of the Digital Tools Workshop hosted by the International Progressive MS Alliance.  In this week's episode, you'll hear Vanessa Fanning share her perspective as someone living with progressive MS on how digital tools can benefit people with progressive MS, while also highlighting some of the challenges that need to be addressed.  Then, you'll hear neuroimmunologist and data scientist Professor Sergio Baranzini discuss how all the data that digital tools produce will be integrated into MS research and MS care. Dr. Ruth Ann Marrie recaps the topics covered at the meeting and describes the next steps necessary to integrate digital tools into MS clinical care.  And we'll have to take a moment to share the frightening real-world consequences of last week's decision by President Trump and Congress to cut a trillion dollars from Medicaid. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The real-world impact of the Big, Beautiful Bill on people with MS and any other chronic illness  :22 An example of how a digital tool could revolutionize MS patient care  7:41 Vanessa Fanning shares a patient's perspective on how digital tools can benefit people living with progressive MS and reminds us of the challenges that still need to be solved   11:19 Professor Sergio Baranzini discusses managing big data in the clinic  23:15 Dr. Ruth Ann Marrie provides a recap of the workshop and describes the next steps to be taken   31:07 Share this episode  43:21 Have you downloaded the free RealTalk MS app?  43:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/410 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist https://nationalmssociety.org/advocacy Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 410 Guests: Vanessa Fanning, Professor Sergio Baranzini, Dr. Ruth Ann Marrie Privacy Policy