Episode 81: Almost One Million! The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, & Dr. Ruth Ann Marrie

It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results.   The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated.   In this special RealTalk MS episode, we're going to look at MS prevalence from a number of different perspectives. My guests include National MS Society President and CEO, Cyndi Zagieboylo, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and MS Prevalence Study Investigator, Dr. Ruth Ann Marrie.   But what about people who are living with MS? What are their thoughts about being one in a million? We're also talking with MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Diggman.   We have a lot to talk about! Are you ready for RealTalk MS?!  ___________ It's MS Awareness Week  :22 My Interview with National MS Society CEO, Cyndi Zagieboylo  3:40 My Interview with National MS Society Executive Vice-President of Research, Dr. Bruce Bebo  12:32 My Interview with MS Prevalence Study Investigator, Dr. Ruth Ann Marrie  24:18 Comments about the MS Prevalence Study from MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Digmann  34:34 Join the RealTalk MS Conversation  38:13 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android The Prevalence of MS in the United States: A Population-Based Estimate Using Health Claims Data A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with MS Validation for an Algorithm For Identifying MS Cases in Administrative Health Claims Datasets Give RealTalk MS a Rating & Review   ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 81 Hosted By: Jon Strum Guests: Cyndi Zagieboylo, Dr. Bruce Bebo, Dr. Ruth Ann Marrie, Tami Ryan, Lisa Jackson, Dan & Jennifer Digmann Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, TwiceAsMany, MSPrevalence, RealTalkMS