Episode 95: Ambiguous Loss with Dr. Pauline Boss

How do you adjust every aspect of your relationship when the partner you've known seems to be vanishing right before your eyes, yet they're still very much there? If you're a caregiver for someone with progressive MS, or any chronic illness, it's very likely that you're living with the trauma of ambiguous loss.      My guest is Dr. Pauline Boss, who not only coined the phrase ambiguous loss, but has spent her career teaching university students, practicing as a clinician, and training family therapists, psychologists, and counselors around the world to help individuals and families suffering from the trauma of ambiguous loss and this form of grief that doesn't end. We're also talking about the research team that successfully duplicated a patient's blood brain barrier...on a chip! A breakthrough that could streamline MS research, make drug screening easier, and help make personalized MS treatment a reality. We'll tell you about a study that evaluated an online version of a successful MS fall prevention program. You'll find out how you can be a part of people-powered MS research. And we'll tell you how MS-FOCUS and Lyft have teamed up to get you to your next MS care appointment. We have a lot to talk about. Are you ready for RealTalk MS??! NEW! Download a transcript of this episode! ___________   What is Ambiguous Loss...and Why Is It So Important?  :22 Scientists Create Blood Brain Barrier on a Chip  4:32 The Free From Falls Online Program Is Evaluated   6:47 Register with iConquer MS & Be a Part of People-Powered MS Research  9:31 MS-FOCUS & Lyft Can Get You To Your Next Appointment  10:30 My Interview with Dr. Pauline Boss 13:28 Why You Might Want to Download the RealTalk MS App  31:55  ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Ambiguous Loss, Pioneered by Dr. Pauline Boss Books by Dr. Pauline Boss Human iPSC-Derived Blood-Brain Barrier Chips Enable Disease Modeling and Personalized Medicine Applications Evaluation of a Web-Based Fall Prevention Program Among People with Multiple Sclerosis iConquer MS MS-FOCUS Transportation Assistance Grant Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review  NEW! Download a Transcript of This Episode ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 95 Hosted By: Jon Strum Guest: Dr. Pauline Boss Tags: MS, MultipleSclerosis, MSResearch, caregiving, iConquerMS, MS_FOCUS, Lyft, RealTalkMS