Experiencing Love and Loss with PVS

from Navigating PVS Hosted by Jen Joly

💗 This is a very emotional conversation discussing child loss. Consider having tissues handy and taking breaks as needed while listening. 💗 In this episode, Jen Joly is joined by fellow PVS mom Brenna Smith for a deeply personal and courageous conversation about losing a PVS warrior – her son, Knoxley. Brenna shares Knoxley’s story, from a high-risk pregnancy and extreme prematurity to life in the NICU, a PVS diagnosis, and the complex medical journey that followed. Together, Jen and Brenna talk about what it means to fight for your child through unimaginable highs and lows, while also holding the reality that time may be limited. At the heart of this episode is the experience of loss: what it looks like to say goodbye, to process grief, and to carry forward the love and legacy of a child who changed everything. Because even in the deepest heartbreak, there is meaning, connection, and the enduring impact of a life so fiercely loved.

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Experiencing Love and Loss with PVS

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How long is this episode of Navigating PVS?

This episode is 57 minutes long.

When was this Navigating PVS episode published?

This episode was published on March 25, 2026.

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