Families Conference 5 - 7 May 2017

Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017. Welcome & Introduction  Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster  What can an alliance of patients and professionals achieve – Prof Graeme Black Medical Q & A The current clinic experience for families – Rob Henderson The Genetic Eye Clinic experience – Theo Gale Life beyond diagnosis – Laura Ross How families cope and provide the right support for their children – Bo Anderson Q & A Translating Science into Medicine – Dr Mariya Moosajee Science Q & A A Family Story – Chloe Joyner & Bhavini Makwana Pathway to support for education – Wendy Sainsbury The Appreciative Enquiry Session (part 1) The Appreciative Enquiry Session (part 2) The Appreciative Enquiry Session (part 3) The Appreciative Enquiry Session (part 4) The Appreciative Enquiry Session (part 5) The Appreciative Enquiry Session (part 6)