FASD Across the Lifespan: A Longitudinal Perspective with Dr. Claire Coles

In this episode of Living with FASD, Candid Conversations, I am honored to host Dr. Claire Coles, a pioneer in the FASD field from Emory University. Dr. Coles shares the history of her groundbreaking longitudinal study—spanning 40 years—which has been instrumental in our current understanding of how prenatal alcohol exposure affects development, health, and aging. We discuss the critical need for better medical protocols, the realities of aging with FASD, and why stories from the community are the key to moving the needle on policy and research.Key Discussion Points40 Years of Research: Dr. Coles reflects on starting in the early 1980s when FASD was considered a "rare event" and discusses the transition from studying birth defects to understanding long-term health outcomes.Health Across the Lifespan: We delve into the findings regarding increased risk for chronic health issues in adulthood, including cardiovascular health, gastrointestinal problems, and early onset cognitive decline.The "Premature Aging" Phenomenon: We discuss the lived experience of accelerated aging in the FASD community and current research into immunological factors that may explain why many feel older than their chronological age.Collaboration and Advocacy: Dr. Coles emphasizes that research needs to be a partnership between scientists and the FASD community, urging listeners to speak up and share their stories to drive change in legislative and medical circles.Future Directions: We explore the urgent need for funded intervention studies and standardized medical protocols that support individuals with FASD throughout their lives, regardless of their access to insurance.Resources MentionedEmory University School of MedicineCIFASD (Collaborative Initiative on Fetal Alcohol Spectrum Disorders)Sip by Sip: Candid Conversations with Adults Living with FASD by Patti Kasper, available at https://books.by/yourfasdcoachThank you for listening to this episode. Please subscribe to stay updated on our latest conversations with leaders in the FASD field. Please like this channel and this video to help others find this information. You can email Patti at [email protected]