EPISODE · Nov 10, 2020 · 1H 17M
Finding Your Voice Through Dravet Syndrome
from Patient Stories with Grey Genetics · host Grey Genetics
Emily Richins and Chris Emineth connected through a Facebook support group for parents of children with Dravet Syndrome, a rare and severe form of epilepsy characterized by frequent, prolonged seizures, developmental delay, and other health problems. They share how Dravet has affected their lives and relationships, why the current Covid era is familiar and even easier for them, and what they’ve learned from one another and from their children. Links and Resources Dravet Syndrome Foundation Make A Wish Foundation - kids with Dravet syndrome and other forms of epilepsy automatically qualify Kids’ Waivers: information on Katie Beckett and other similar programs
What this episode covers
Emily Richins and Chris Emineth connected through a Facebook support group for parents of children with Dravet Syndrome, a rare and severe form of epilepsy characterized by frequent, prolonged seizures, developmental delay, and other health problems. They share how Dravet has affected their lives and relationships, why the current Covid era is familiar and even easier for them, and what they’ve learned from one another and from their children. Links and Resources Dravet Syndrome Foundation Make A Wish Foundation - kids with Dravet syndrome and other forms of epilepsy automatically qualify Kids’ Waivers: information on Katie Beckett and other similar programs
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Finding Your Voice Through Dravet Syndrome
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