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Folge 21: Gemeinsam für LHON: Herausforderungen, Teilhabe und neue Perspektiven

EPISODE · Dec 15, 2024 · 41 MIN

Folge 21: Gemeinsam für LHON: Herausforderungen, Teilhabe und neue Perspektiven

from rare stories Podcast - gemeinsam weniger selten · host CHIESI & Patients

Aktuell sprechen wir mit Sandra Findeisen, Vorstandsvorsitzende des LHON Deutschland e.V., über die wertvolle Arbeit des Vereins, ihre persönlichen Erfahrungen als Mutter eines betroffenen Sohnes und die Bedeutung von mentaler Gesundheit und Teilhabe. Wir werfen einen Blick auf die Herausforderungen der Vereinsarbeit, kreative Ideen zur Sensibilisierung und die wichtige Rolle, die der Austausch in der Gemeinschaft spielt. Ein inspirierendes Gespräch über Zusammenhalt, Mut und die kleinen Schritte, die Großes bewirken können.

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Folge 21: Gemeinsam für LHON: Herausforderungen, Teilhabe und neue Perspektiven

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