Folge 29: Diagnose Fabry in der Familie: Wenn plötzlich alles anders ist

from rare stories Podcast - gemeinsam weniger selten · host CHIESI & Patients

In dieser Folge von rare stories erzählt Olivia von ihrem Leben mit Morbus Fabry. Ihre Geschichte ist geprägt von einem späten Aha-Moment, mitten in der Schwangerschaft, ausgehend von der dramatischen Krankengeschichte ihres Vaters. Sie spricht über Fehldiagnosen, das lange Schweigen in der Familie, das verlorene Vertrauen in Ärzt:innen und wie sie wieder anfängt, sich selbst und ihrem Körper zuzuhören. Ein Gespräch über das Ringen um Sichtbarkeit mit einer seltenen Erkrankung: sensibel, ehrlich und stark.

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This episode is 40 minutes long.

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This episode was published on September 1, 2025.

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