Folge 4: Mein Sohn hat LHON – Einblicke einer Mutter

Wie eine Familie die Zeit vor und nach der Diagnose von LHON

Episode 7 of the rare stories Podcast - gemeinsam weniger selten podcast, hosted by CHIESI & Patients, titled "Folge 4: Mein Sohn hat LHON – Einblicke einer Mutter" was published on March 15, 2023 and runs 67 minutes.

March 15, 2023 ·67m · rare stories Podcast - gemeinsam weniger selten

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Summary

Birte hat als Mutter aus nächster Nähe die Zeit rund um die Diagnose LHON bei ihrem Sohn erlebt. Sie spricht offen über ihre Gefühle der letzten Jahre. Was sie sich wünscht? Mehr Aufklärung über die seltene Augenerkrankung und somit bessere Behandlungsmöglichkeiten. Und für andere Angehörige von LHON-Betroffenen hat sie gleich mehrere gute Tipps aus erster Hand. Hör mal rein!

Episode Description

Birte hat als Mutter aus nächster Nähe die Zeit rund um die Diagnose LHON bei ihrem Sohn erlebt. Sie spricht offen über ihre Gefühle der letzten Jahre. Was sie sich wünscht? Mehr Aufklärung über die seltene Augenerkrankung und somit bessere Behandlungsmöglichkeiten. Und für andere Angehörige von LHON-Betroffenen hat sie gleich mehrere gute Tipps aus erster Hand. Hör mal rein!

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