Folge 5: Pro Retina e. V. berät zu LHON

Von Erstberatung bis Patientenregister – zwei aktive Mitglieder stellen sich vor

Episode 8 of the rare stories Podcast - gemeinsam weniger selten podcast, hosted by CHIESI & Patients, titled "Folge 5: Pro Retina e. V. berät zu LHON" was published on April 18, 2023 and runs 28 minutes.

April 18, 2023 ·28m · rare stories Podcast - gemeinsam weniger selten

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Summary

Der Verein Pro Retina berät und unterstützt Menschen mit Netzhauterkrankungen und deren Angehörige. Anschaulich erzählt Dr. Sandra Jansen von ihrer Arbeit im Verein, Nadine berichtet von ihrem Alltag mit LHON, nützlichen Hilfsmitteln und ihrem Engagement bei Pro Retina – denn Austausch ist für sie das Wichtigste in der Unterstützung von LHON-Betroffenen. Was sind Deine Fragen? Hier findest Du Antworten!

Episode Description

Der Verein Pro Retina berät und unterstützt Menschen mit Netzhauterkrankungen und deren Angehörige. Anschaulich erzählt Dr. Sandra Jansen von ihrer Arbeit im Verein, Nadine berichtet von ihrem Alltag mit LHON, nützlichen Hilfsmitteln und ihrem Engagement bei Pro Retina – denn Austausch ist für sie das Wichtigste in der Unterstützung von LHON-Betroffenen. Was sind Deine Fragen? Hier findest Du Antworten!

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